I have made many observations over the last 4 years concerning the topic of Lyme disease. I have read tens of thousands of technical articles and posts on several Lyme forums. I am so tired of ignorant people either disagreeing with or attacking those with whom they disagree, under the GUISE OF SCIENCE!
My awareness of this travesty began in the early months of Heather's illness. We didn't even know that she had Lyme, but I started looking for answers. I quickly found out that the IDSA's position is that lyme treatment should be denied under the GUISE OF SCIENCE. Heather's first 2 doctors were IDSA oriented doctors. We went on to have Heather treated by 2 LLMD's that practiced the ILADS approach. She improved, and then she relapsed. The "science" from doctors that held 2 completely different perspectives certainly did not heal Heather.
I did a lot more research and paid a lot more attention from more patient testimonies. I discovered a completely new treatment approach (for me) that made sense to me. It was a completely different approach that goes completely against the grain of what people have been taught to believe. Most people's perceptions range from snake oil, to skeptical, to downright fearful of this approach. Fine... to each his own. In actuality though, most people are happy for us.
Now, to the real point. We in the Lyme community understand the wilfull ignorance and stupidity of the IDSA panel and the doctors that use their guidelines. We cannot understand how they could even dare to deny treatment to desperately ill people. We loathe the notion that they would dare to take refuge under the GUISE OF SCIENCE!
The sad thing for me now is that I have observed that same mindset in the suffering Lyme community. I understand that some people are using a treatment approach that makes sense to them, but that is different from my own. Fine. The problem is when they discredit the success stories of those who become well from a treatment approach that is different than their own. I am tired of hearing the accusation that the treatment at the Hansa Center is questionable under the GUISE OF SCIENCE. That accusation comes from the same mindless, agenda driven approach that the IDSA promotes. It is sickening. Such a person is acting like a young child that is speaking authoritatively about
something that they know nothing about
.
All that person can really say is that he has not studied the science at all. Has that person read Dr. Jernigan's book? Has he read everything that Dr. Jernigan has published on his website, the Townsend letter, and on other medical journals? Has he studied the many patient histories of the people that have become well? Has he studied the large volume of the writings of Dr. Klinghardt, M.D. who employs an overall similar approach. If he would only
open up his mind, then he might eventually come to the knowledge that are other ways besides antibiotics that can be effective in treating Lyme. SCIENCE is not some little putty thing that can be shaped into whatever somebody wants it too be!
RANT OVER, back to normal mode, let's help people.
Post Edited (Heathersdad) : 1/3/2013 2:42:26 PM (GMT-7)