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Posted 1/8/2013 12:07 AM (GMT 0)
I know i've seen posts on this topic before but i'm looking for some clarification. I've never had this before, as a symptom of LD or otherwise. The pain im feeling is on the outer edges of both my feet and has moved up to my two smallest toes on my right foot. They feel incredibly bruised (like I jumped off a 3 story building flat footed) and very tight (like ive been doing some major powerwalking). Does this sound like somthing LD or a co infection (my dr thinks I possibly have babs and bart)? Its been going on for about 2 weeks now and seems to be getting gradually worse.
Posted 1/8/2013 1:08 AM (GMT 0)
That's a common symptom - often the tell tale symptom - for Bartonella. You will likely need to treat the Babesia and Bartonella infections before you can resolve the Lyme infection.

Nothing I ever tried helped ease that foot pain - other than staying off of them and even that didn't help all that much!
Posted 1/8/2013 1:15 AM (GMT 0)
Well....as much as that stinks, I'm glad to have my suspicions some what validated! Almost all my symptoms point to Bartonella. Ready to get some more treatment and be well!! Does it make sence that the pain began like a week after I stopped taking my meds though? I was on ABX for 3 months through GP and now I have 1 1/2 months till real LLMD appt where I can get on a new for of treatment.
Posted 1/8/2013 1:20 AM (GMT 0)
Actually, it does make plenty of sense - the bacteria can come out to 'play' now that there are no more abx making them go away!

I hope that you find a novel way to ease that foot pain!
Posted 1/8/2013 2:00 AM (GMT 0)
I have this too. In addition to your symptoms, I also have neuropathy type pain in my feet. It's always worse in the morning. The tight skin sensation is very odd. It's particularly bad for me in the morning. At first, I thought that it was dryness, but then realized that it goes along w/ the other foot symptoms. My LLMD said she believes it's Bartonella and put me on Rifampin. I'm also on Ceftin and Minocycline for the Lyme. She did not test me for Bart because she said that the testing for it is as flawed, if not more so, than Lyme. Since my symptoms fit Bart., she decided to treat me for it.
Posted 1/8/2013 3:20 AM (GMT 0)
I have this too, but didn't realize what it was. Bart / Lyme is very unknown over here in W-Europe. It hurts very much when I get out of bed, can't walk straight up. It's like my feet are very bruised, swollen, like the skin is so thight it's gonna burst. I almost never wear high heels, now I know why. My husband was always asking why I didn't wear them... I also get it when I sit for a while and have to get up afterwards. I don't know how to soothe it, just walk on them and wait for it to calm down...
Posted 1/8/2013 4:26 AM (GMT 0)
Its not to the point where I cant walk and hopefully it doesnt get there :( Now I'm wondering if I could have my Dr. just diagnose my symptoms rather than me spending $1000 on co infection tests that arent reliable....
Posted 1/8/2013 4:56 PM (GMT 0)
It's worth trying for, Gracelynn! There are many strains of the bacteria/protozoa for each infection that aren't even checked for on those tests, and the tests assume that the immune system is up and working well - two things that just aren't true!

Many very knowledgeable LLMD's diagnose clinically and don't rely on the tests in order to start treatments.
Posted 1/8/2013 7:55 PM (GMT 0)
Gracelynn-I would ask about treating based on clinical diagnosis. I can walk on my feet; it's never gotten so bad that I couldn't. The strangest part about it is that when I'm not very symptomatic/not in the middle of a flare-up, I barely have any foot pain at all, even upon waking.

Marie-w/ proper treatment for Bartonella, it should slowly ease up. Mine hasn't yet, but I just started Bart treatment 4 weeks ago. Epsom salt foot baths and massage help my feet feet better. Probably gets the bacteria out.
Posted 1/9/2013 4:56 AM (GMT 0)
My feet are killing me right now and nothing seems to be helping. Any suggestions?
Posted 1/9/2013 5:14 AM (GMT 0)
Now I'm really discouraged. I called to see about getting a clinical diagnosis before I spend the almost $1000 on tests that the Dr. already told me were not reliable. The receptionist was very rude and informed me if I wasnt willing to spend the $$$ I must not be THAT ill. Uhhh what?!?! And that there is no such thing as a clinical diagnosis for lymes.If I wasnt having reservations about going to a LLMD I am now. I have been doing the foot baths and they seem to help a bit. Anything is better than nothing!
Posted 1/9/2013 10:14 AM (GMT 0)
The receptionist is not the doctor; you should ask those questions of the doctor him/herself and not the receptionist.

Be aware that footwear makes a big difference for me. I had gotten so that I could not walk or stand at all due to severe foot pain.

Then I got correctly supportive footwear that actually fit MY feet (and not some strange "average foot shape/size" that does not accommodate bunions and other foot oddities)...and the pain was immediately decreased significantly.

And then I got supporting inserts to put in my shoes...and the rest of the foot pain disappeared.

So make sure you have appropriately supportive and correctly sized footwear before assuming the pain is from Lyme/coinfections.
Posted 1/9/2013 1:17 PM (GMT 0)
Very true, Razzle and a good point! I've found that if I wear my best supporting shoes, my feet wouldn't hurt quite as bad - even now I know that I must wear shoes (well boots for me) that support not only my feet well, but even my ankles is really helpful.

I still have some foot pain, but to be honest, I've broke most every bone in each of my feet and have Lyme arthritis, so I doubt I'll ever be pretty much pain free in my feet! Those Epsom salt soaks even help with that though!!
Posted 1/9/2013 10:26 PM (GMT 0)
Any suggestions on footwear and or inserts? I am going to do the epsom salt foot bath. Last night I rubbed bengay and put my feet on a massager and they were still screaming at me!! Is this what they consider neuropathy pain? I am in a lot of pain these days- a lot of stress. My mother in law died last night and so we are dealing with a lot plus I am PMS to boot, add in nights of lack of sleep while we were waiting/watching after her stroke, oh yeah and you still have to feed people and get them to do homework etc. Life really throws you curve balls sometimes. Thanks for listening.
Posted 1/9/2013 11:36 PM (GMT 0)
Hi Shadow,
I'm so very sorry about your Mother-in-law. My deepest sympathies to you and your family members.

I am, however, glad to know that you are doing the foot soaks! Stress like what you are going through can really reek havoc on someone who has these infections! So do your very best to get the rest you need, eat well, drink plenty of water (aim for 64 ounces a day) and keep up with the detoxing. These things will help make this time a little less miserable with your body.

AS far as footwear, get a shoe that has good support all around the foot, and has a good sole on it. I like boots, but there are some pretty good tennis shoes that will give your foot good support.

Do you have an old fashioned shoe stores any where near you? If so I would suggest that you go there and get fitted and tell them you need a really good shoe that has really good support. Then let them bring you the shoes to fit to you. Once you know what shoe you need/want, go find somewhere less expensive to buy it! smilewinkgrin
Posted 1/13/2013 7:35 PM (GMT 0)
I was suffering with significant foot pain for several months, which my LLMD attributed to a coinfection. My homeopath had me massaging in BAB-1+oil nightly, but I didn't feel any relief. I then developed arthritis in my hand; my arthritis doctor put me on Meloxican (7.5 mg x2) for the arthritis, and the foot pain started disappearing within 2 days. At one point since then I had a gap in the medication for several days, and the foot pain came roaring back. As soon as I restarted the medication, the foot pain receded. I don't know if anyone else has been prescribed Meloxican for lyme foot pain, but I'm absolutely convinced it works for me.

Post Edited (mloeswick) : 1/13/2013 12:41:08 PM (GMT-7)

Posted 1/13/2013 8:15 PM (GMT 0)
Thanks for the post! I've been off my meds for 3 weeks now that Im waiting for my appt with my new LLMD and it started with foot pain (outer sides and 2 smallest toes on both feet ) and now the foot pain is worse, I have major hip and wrist pain and its hard to walk in the mornings. I feel as though I'm 9 months pregnant hobbling around until they get a little looser and I can walk semi normally but the pain is still there full force. I just make myself walk normal because I hate the questions and comments at work. Thanks for letting me know about meloxican. I will be sure to ask my dr about it.
Posted 1/14/2013 1:15 PM (GMT 0)
Let's not forget that foot pain is a major indicator of a Bartonella infection, and that Bartonella blood tests, like Lyme blood tests, aren't very reliable! Each person needs to be evaluated clinically (by symptoms) for this infection. If you have foot pain, please go to our "New to Lyme?" thread and look for the symptom list for Bartonella to try to eliminate an undetected co-infection from going untreated and stopping the healing from Lyme disease!

If you have already been well-evaluated for Bart and it's been ruled out, and still have foot pain, then be sure that you do as the above suggestions say to try to alleviate that pain.
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