I still work, fulltime. I need the money for treatment. When on sickleave here, as the months go by, the amount you receive gradually goes down. Also, I think that working kind of keeps me up.
Sometimes I feel I'm going to have a nervous breakdown, but I'm kind of coping until now. It's very hard though, I go to work, but that's 'all', the quality of life I have is down to 0, especially after a day's work.
Luckely I have a sitting job, I work at an office, so there's no physical effort at all. My boss hired a temporary part time employee, and he will continue doing that because I can't do it by myself anymore. I had a huge excess of work before I started treatment, so I needed help anyway. I can sometimes work at home too, like 1 or 2 days a week (I don't have get traffic jams, I don't waste time taking an hour break, I work in a calm environment at home).
But I keep my boss informed about my condition, how I feel. I don't want him to feel I take advantage of my situation. Lyme/Bartonella is very much unknown over here, so I feel it my responsability to keep him informed. In my case it's like a balance, I work very hard, and I'm lucky having a 'human' boss. Once in a while he sends me home without me having to get a sicknote.
It's also because of him being understanding that I always try to go to work, he doesn't let me down, I don't either. He benefits, I benefit.
But it's hard, and I know it would be better if I took some time off, but that's not a possibility, I hope it won't take revenge on me at some point.
I'm also the primary earner of the family, and my husband just lost his job - the blessing of Murphy's Law... just what we needed.
But also, I learned to stress less in stressfull situations, that helps a lot (there's no energy for that). And during weekends: I don't go out, only for grocery shopping, no visit, no visiting, no efforts whatsoever, no heavy lifting (if I try to, nothing moves anyway 
).
Good luck with your treatment, just take one day at a time.