About to self treat with abx and no LLMD what will i need to know.

I simply can not afford a LLMD and i am about to start a run of antibiotics. i know this is not recomended but it is my only option so i am going ahead but i want to know as much as possible first.

after my second infection i was extremely ill 103% fever for 8 days and every single symptom their is. i got 1 month of doxy and 2 weeks of amoxycillin. that didnt seem to help during the course but shortly after most symptoms died down and i had 3 mostly good months before it all came back with a bang and hit harder than before.

Here is what i got for my second run at it.

amoxycillin 500mg
cleocia 300 mg
omnicef
sulfameth/oprim
tindazole 500mg
minocyline 100mg
doxy cyline 5tabs

i also have several types of probiotics magnesium etc. i hear the herx will be pretty heavy this time with my symptoms and that benadryl will help is their anything else i should acquire before starting? i also have a thermal infrared heating bag device to help sweat out toxins during a die off.

i know this is not recommend but its my only option anything i do is of my own accord so i wont blame any one for advice given here hopefully you wont worry about any legal stuff with that said so thanks a million to any answers here.

Please tell me you are kidding!
Start by reading New to Lyme.
You have no idea what this varied combination will do to your system.
I hope others have valuable input. IMO you will end up in worse shape than you are now.
Please be careful!

lymie,

You are really going to start off with 7 antibiotics? Most LLMD's would not exceed 3-4 antibiotics at a time. You are setting yourself up to becoming possibly dangerously ill. If you are determined to self-treat, why don't you at least start out with just a few. At any rate, 7 antibiotics is way too much to take at one time.

I agree with the others- You will be taking way too many. You need to do more thorough research. There is redundancy in what you are taking.

Frankly, I would not advise you to self-treat with conventional antibiotics. You are asking for trouble.

Don

I'm not a doctor but have you thought about what this amount of antibiotics is going to do to your digestive system?

I would think that it will cause havoc to your tummy flora.

Please,please be careful

Tickled

Well, I have to chime in here as well, as your plan could quickly become a life-threatening situation simply because there is so much to consider when using abx!

Like others here, I would suggest that you one of the herbal protocols. Personally I like Buhner's as it seems to be one of the easiest/least expensive, but there are several that you can choose from to suit your needs.

Having been on this forum since 2007, I've had the opportunity to 'watch' what many do and how they respond. I have to say that most who try to do abx on their own wind up back to square one (quickly) and about 1/3rd of the time, they end up in the hospital because they set off a sequence of events that leads up to major toxin overload, allergic reactions, harmful combination of meds, or something similar. So please, please listen to the advice of your peers here! We surely don't want to see you get any worse!

"herx", not "her"

Email me. I can send you some surplus andrographis that I have.

It must remain very balanced.. and you need to take other herbals and probiotics.

First we need to know your symptoms? What happened when you took the meds last time? Do you have any co-infections, because if they are not treated, you will never get rid of the lyme.

You can not take all those drugs at once. Never more than 4 of the proper combination at once. Although my doctor has never done more than 3, with herbals. You will kill yourself if you take all of them! Some of them you should not take together. And when you do start taking them, especially since you don't have a doctor to monitor you, you have to know what works for you and what doesn't, what you may be allergic to or have a sensitivity to. I would suggest you start on one med for 3 days, and add 1 pill at a time every three days until you are on your proper dosage. But not 7!

What are your symptoms???

Sincerely,
Samantha

Yes, and saccromyces.

Holy cow i didn't realize i made it sound like i was going to take them all together i am so sorry for getting you all worked up and then taking so long to respond. I feel bad about that really guys apologies galore and gratitude for all the helpful information and offers of assistance you are all the best!

Anyway il get some more of my back ground and symptoms listed here but first il update that so far today i have only taken 2 of the amoxicillin and im going to follow on with that for a few weeks and see how it goes and do all i can to detox as needed

i still have allot to learn and i am so great full for all of the help i get here this site is such a huge help i don't know what i would do without you guys!

my current plan is to go one kind of abx at a time and detox all i can i unfortunately can't even afford the herbal stuff or anything really until i get my SSI won im hoping that will be done soon because i have major spinal issues that they do recognize so i think ssi will be done soon but i feel for those of you who have to battle symptom by miss diagnosed symptom because SSi doesn't yet recognize Lyme.

even though i can't afford the herbal stuff right now i still am taking notes of all you're helpful info about that so all you're awesome comments are not wasted on me! :)

I also want to thank each of you for the links and things i will make use of them all!

I have all but 5 of the symptoms from the master symptom list basically every one that applies to males.

My first bite was back in 2003 i didn't realize it was Lyme but i had tingling and numbness across the top of my head if i touched the bite area on my forehead i could feel a strange numbness and tingling all across the back of my skull and down my neck. i had flash fevers flu like symptoms migraine for 9 years straight 70% of the time (><) lots of shooting pains severe sleep paralysis and my lung got stuck on the epithelial layer some how and collapsed they said their was orange discharge coming from a pustule in my lung but it was no big deal :( i never added it up but my father kept suspecting Lyme i should have listened then but when i the second infection occurred their was absolutely no doubt i was deathly ill right away and got just about every Lyme symptom their is right after the bite.

Here are some logs i made after reinfection

april 20th 2012 Western Black leg Dee trick bite.

aprill 22 tick located removed identified flushed.

aprill 26 103 degree fever chills and migraine 30 min after touching the bite area. slept all day.

may 2 el camino Er pots syndrome 2 weeks doxycycline neg test

may 6 Rota care 2 weeks amoxicillin and doxycycline.

may 31 Symptoms slowly fade but still dizzy and tingling back hands persist.

able to work out no significant P.O.T.S symptoms.

June 29 got dizzy and nauseated at the gym after heavy work out confused and disoriented.

June 30 still a little dizzy still tugging sensation under eyes. and tingling back hands.

September 1 woke up vomiting all morning dry heaving worst migraine i can remember and pain is my life. vomiting stopped around 4 pm facial cramps and eye ball pain muscle spasms return with a fury.slept the rest of the day and night no energy.

September 2 eye balls hurt cramps under both eyes tingling all over checks no energy sleept entire day and night.

September 3 slept all day and all night all symptoms continue and escalate

September 4 slept all day and night

September 5 slept all day and night

September 6 slept all day and night

September 8 triple required limits pulse jumping over 80 points when standing. worse muscle spasms facial cramping tingling feeling of being shaken or being on a roller coaster or fast vehicle while laying or sitting still.

September 11 left el camino hospital with no progress all symptoms the same as when i entered.

September 16 97 56 48 laying 127 71 110 standing Bleeding sinus sleep paralysis swollen lymph nodes. Sore gums inner left jawline as well as all other symptoms.

In my opinion sometime the abx make the symptoms worse, I would try a more natural approach . I barely made it out of bed for a week on Doxy. Maybe look into some of the Lyme protocols, they are easy to follow, and it will make it easier on your belly.

I would not try to much at once, you will be on overload, and really hurt yourself more than heal it.

Justme

Again i am really sorry about my original sloppy post! that just came out wrong i blame the brain fog but also except responsibility lol.

about co infections i show signs of bartonella babesis and hv6 as well as borrelia i am sure their are a few others i am usually the worst one in my local Lyme group my P.O.T.S is off the charts and my light sensitivity during October November and December was one for the record books. so i was diagnosed with all those and the Stanford research scientist who did it based it on the symptoms and some observation but wasn't actually practicing medicine instead doing a new cdc funded study to prove lyme under the guise of pots and cfs

but as far as LLMD primary care its just out of reach for me i can't afford it just yet same goes for herbs i can't buy them all at this time.

but so far i am herxing pretty good just off the amoxicillin alone and i am taking pro bio tics with it i have some of those at least. :)

i did react to the worm wood for babesis btw i think il know what antibiotics do what after this set of AFTER TAKING THEM SEPARATELY! LOL

THANKS FOR THE CONTINUED ADVICE AND SUPPORT BE WELL EVERY ONE.

Thank-you lymie.anon,

cleocia should help with babesia, altough it is recomended to take it with another med as well that is not on your list.

You could add tindazole to your amoxycillin, although doxy will help treat the bartonalla. If it were me, I would take the doxy and tindazole. But the tindazole should be taken only 3 days a week, so pick 3 days that offer you the most rest because tindazole can be difficult for some. However, tindazole can cause seizures, so if you are prone to them, I would be weary of the drug.

My daughter took tindazole and it did very well for her. Tindazole breaks through the blood brain barrier and also attacks the cyst form of lyme. It is said that lyme goes into cyst form it feels like it is in a threatened environment (because you are taking antibiotics).

I must inform you again that I am not a doctor. I am only giving my opinion based on what I have learned and know. And what I would do if I were in your shoes. Remember to start slowly and to give yourself 3 days before introducing a new medication into your regimen, so you know what you can and can not handle.

Sincerely,
Samantha