questions about Dr. J's at home protocol

Hi all,
I'm new to this site but not to this disease. Have been sick for 10 years with what I thought was fibromyalgia. My health has declined to the point of being bed-ridden for the last year and all my symptoms point to Lyme, including neuro. I'm disabled and have Humana Medicare which unfortunately is useless when it comes to getting help for Lyme. I've been through four doctors in the past year and can't get one to even discuss Lyme, no less test or treat me for it. Have been trying to find an LLMD for several months, but to be honest, after months of research, the thought of ravaging my already weakened system with antibiotics for what might amount to years really frightens me. So instead of doing nothing and ending up dying in my own dribble, I decided to give Dr. J's home protocol a try. My question is do the Perfect 7 protocols contain everything I need to get started, or are there other products that I need to purchase separately? I know I've read some great success stories, but it's very, very difficult to retain information. Any suggestions would be appreciated.

Jupitergma,

My daughter went to the Hansa Center, and of course used Dr. J's products to become well. They certainly worked very well for her, as she has not been sick for 3 years. I can't give you any particular advice on what order to take the products, or the dosages because I forget! I would talk to people on this forum who have/are using them, or I would even call the Hansa Center to have your questions answered.

I almost forgot- Welcome to the forum! I'm glad that you found us, although I am sorry that you are ill. We want you to make yourself at home, and to feel free to ask questions. We are here to encourage and support you. Our members are friendly and would love to help you. I would encourage you to read the thread "New to Lyme....Start Here" at the top of the thread column. It has a lot of good information that is useful to know for anybody with this illness. I look forward to hearing of your progress

I wish you well!

Don

WWJD20 said...
Hi again,

Nope, never been on antibiotics. I took samento and GSE (grapefruitseed extract) for a year then switched to Dr. Jernigan's products.

Yes, for me 1dropper was enough, but I think we all want to get better so we push it a little.....you know? Like, hey, if I dropper is working, I should try 2! Then I'll feel better faster... Doesn't work that way tho.

Anyway, the book is included in the perfect 7 protocol I noticed. And he recommends you detox for a week (?) before starting the other herbs. Detox by using the antitox formula.

Have you been doing any detox foot baths or baths? Those really help me.

Hi WW,

That sounds very encouraging. I'm ordering the perfect 7 protocol today. No, I haven't done any detoxing yet. My life for the past few months has consisted of trying to learn everything I can for a few hours a day, and sleep the rest of the time.

I've saved so many web pages in my favorites, and now I can't find anything.

Regarding foot baths.. When I first got sick I was slumped in my recliner 24/7. At the time I had been diagnosed with fibromyalgia/CFS and was waiting to be approved for disability. I literally had no income for almost 3 years.

My Mom found a chiropractor who did foot baths and paid for me to have 2 in a week. I knew it helped and felt better for a few days. Unfortunately I couldn't afford to go on a regular basis.

Now that I have a better understanding of lyme and the importance of detoxing, I can't wait to get going!

Thanks again.

Nan you're so inspiring! I wrote to The Ellen Show asking for someone to send me to the Hansa Center (all expenses paid)! Hey she grants wishes right?

Hey Jupiter Gma!!!! Welcome again! Let me know how you do with the Dr. J protocol. I too am on a whole natural regiment. I can't do abx, my body rejected them.

Also like you I have way way way too many webpages saved about Lyme (time to clean up).

Praying for your healing!

Hi Jupitergma,

I'm another one who did Dr. Jernigan's "healing at home" protocol and I have been well for 7 years now!  As far as foot baths, a really good one is the mustard/cayenne pepper foot bath (the instructions are in the "New to Lyme? Start Here!" sticky thread on top).

The book is really important and has so much information in it!

Good luck to you, you will get better! 

Denise

Carol, I just want to welcome you and encourage you. Please know that you CAN get better. It will be a slow, long, rollercoaster ride, but you'll get there. Many people go from completely bedridden to very active and healthy. The way that each of us gets there definitely varies significantly from person to person. Some of us heal w/ all herbals, some with abx only, and some with a combination of both.

It is wonderful that you are researching and learning about the herbal at-home protocols! You've probably read about the few out there including Jernigans, Cowden, and Buhner. I've heard good success stories from all of those!

I personally am on abx. and a variety of supplements to ease symptoms and strengthen my immune system as well as Grapefruit Seed Extract as a lyme cyst buster. My LLMD said that she likes to use herbals to break up biofilms and to ease the transition off treatment to avoid relapses. She typically starts w/ abx. though.

If you can find a good LLMD and afford to see one, it may be worthwhile to have a LLMD to evaluate you and make recommendations. Many LLMDs are completely open to herbals and supplements. You could call his/her office and ask about their opinion on that before scheduling with them. A good LLMD would be able to evaluate you for co-infections and guide you. For example, I don't have the classic signs of Babesia (air hunger and profuse sweating), but my LLMD strongly believes that I have it based on other symptoms of chills, cold feet and hands, low ferritin levels, a crawling sensation all over, etc. She's going to be treating the Babesia in a couple of months. If I was self-treating, I wouldn't know about the Babesia.

If you haven't already, read the "New to Lyme" thread on this forum. There is a lot of good info. on it about the disease, co-infections, detoxing, etc.

Make sure to DETOX, LOTS! When the lyme bacteria dies, it releases toxins into the body, causing inflammation and an increase in symptoms. You can start detoxing by:

-drinking tons of water with lemon. ALthough, if you have muscle pain and spasm, don't add the lemon (that will increase those symptoms)

-drink Alkaseltzer Gold (you can find it online, it's hard to find in stores) up to 4 times daily away from medications

-eats tons of vegetables

-Dry skin brushing

-do hydrogen peroxide epsom salt foot baths or full baths

-sitting in a sauna

-taking Chlorella. Take away from meds on an empty stomach.I take mine at night before bed.

Do make sure to start detoxing slowly though. Some of the detoxing can actually kill the bacteria and thus cause herxing which will worsen symptoms.

Also, start on the herbals slowly. See how you're doing and then increase if you're handling it. When we start to kill the bacteria it causes a process called herxing. Have you read about that? It causes an initial increase in symptoms. If you start too fast, the herxing can be very difficult.

I hope this info. helps!!!

Hey Jupiter, you're welcome.

Yes, you are right, we can't put LLMDs names on here. Using the first initial is fine.

The LLMDs are hard to find because they stay out of the public eye as much as possible.

However, many of us do have to travel several hours to see a good LLMD. There are more LLMDs in areas where lyme disease is considered to be highly prevelant, such as PA. But not many in states where it's less prevelant, such as OH. So, there may not be a LLMD near you. And, you want to make sure that you go to a good one that has a lot of experience. Otherwise, it will be a waste of time and money. When you call a LLMDs office, ask how long they've treated lyme, if they are ILADS trained, and if they can give you success rates.

I travel 3 1/2 to see mine. It is very hard physically; I have my mom or husband take me. And I stay overnight if need be.

I understand about the PCP thing. I don't currently have one either because I'm scared to go to a new PCP.I can't take being treated bad or like I'm crazy by a doctor again. The only Dr. that I want to see is my LLMD. However, I know that I do need to find a PCP also.