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Posted 3/4/2013 3:05 PM (GMT 0)
Have any of you gotten over your derealization? (dream-state, blurry background vision, feel like you are swimming, vision disturbances 24/7 etc. etc.)? If so, what treatment have you been doing?

I would be really interested to know!! I have been struggling with this thing and HATE IT!

Thank you so very much.

Wishing you all in better health soon!!
Posted 3/4/2013 4:46 PM (GMT 0)
That is--without a doubt-- the WORST symptom to have!!! I have been very lucky and have only experienced it about 5 times since July. I nearly had a panic attack straight away until I remembered that others had experienced it too. I actually used my Xanax prescription that I keep on hand for anxiety and it does help since it is an anxiety related issue.

It is awful and I hope it passes for you soon! If there is any way you can get some anxiety meds that would be very helpful. Also, detox,detox, detox.

Good luck!
Posted 3/4/2013 8:22 PM (GMT 0)
Thank you for your reply!

Here's the kicker...I don't have anxiety! Like at all! :( If I did I would feel confident that once the anxiety subsided so would the DR...

Thoughts?
Posted 3/4/2013 9:35 PM (GMT 0)
Well, technically speaking, in the DSM manual which I happen to have for school, it's listed as a dissociative disorder. But since you have Lyme it would obviously be considered an organic issue due to Lyme affecting/attacking brain tissue.

Since you don't have anxiety, I'm not sure if a benzo would work for you or not. I do have anxiety and I did not like that feeling and I nearly had a panic attack over it. So for me, yes, the benzo worked because it helped calm me down and realize that I wasn't, in fact, going insane it was just a Lyme thing. I do know that when I had it I did extra detoxing and that helped, too. Some say meditation can help.

But it is awful and I hope it passes. How long have you had it? Have you recently increased your meds/herbs? It happens to me when I increase my herbs. So it may be part of a herx, or just too much ammonia/toxins in the brain... I just don't know. Please share if you figure out a way to end it! I know PLENTY of others on here have had it. If you do a search some past conversations should come up. Maybe you can get some useful info from those!
Posted 3/4/2013 10:16 PM (GMT 0)
Thank you so much, and I do realize that many people have it (from anxiety caused by the lyme) and that makes COMPLETE sense, but the fact that I do not have anxiety is strange...don't you think? I am trying to figure out what I could be doing to help myself heal. As long as I know it is not permanent... :( because I am really getting sick of it!!

It is comforting to know that many others have had it (though actually it isn't because I hate that other people have had to experience this!!).

I have had it for 4 months 24/7. I am taking herbs and supplements but I have not increased them, and I will be starting antibiotics today. How are you doing??
Posted 3/4/2013 10:18 PM (GMT 0)
Also, this is a stupid question, but I am new here and can't figure this out-How do I do a search for posts like that? Do you have to just kind of scroll through old posts?
Posted 3/5/2013 12:36 AM (GMT 0)
When you do a search type 'Lyme--depersonalization/derealization' (in the box in the top right-hand corner that says 'Google custom search') or for whatever info you're looking for. You need to type Lyme first so it knows which forum to look under. Although alot of times the stuff does get cross referenced with the MS and Fibro forums.

Oddly enough, this past week I've had a couple of moments of derealization since I started abx again 3 wks. ago. It only lasts a few seconds and like a rubber and being stretched it just snaps back. I am always so grateful. It's sooooo unnerving and I feel terrible for you!! My sister who had a kidney transplant and is on heavy meds says she has this all the time. so it really makes me wonder if it's a side effect of medicine more so than actual disease itself or more likely die off of bacteria. It's so hard to know and we likely never will since it's not an area that gets studied.
Anyway, I'm babbling. But I completely understand about finding comfort when you realize you're not the only one. It's why we are all here to begin with. ; ) and just when you think you have some totally random, crazy symptom low and behold--at least 5 other people on here will have it or have had it.

Good luck and welcome to the forum!!
Posted 3/5/2013 12:46 AM (GMT 0)
OMG!!! Sooooo funny and it's the best chuckle I've had all day so I'm leaving it in!! I'm sitting now at my ionic foot bath so I'm using my iPhone to type you a response. I don't know if you have an iPhone but the autocorrect can be rather challenging to say the least. So I my post above it corrected 'rubberband' to 'rubber and' !!! Hysterical. I'm not at home snapping rubbers! Lol

Then again maybe I am while I'm visiting the other side of my consciousness and I'm just not aware of it! Lol oh boy.
Long day. These abx are killing me!
Posted 3/5/2013 3:38 AM (GMT 0)
I had both derealization and depersonalization disorder at the same time. They are 2 different things. When I had them I was toxic. I thought that I could jump off my deck and fly. Life just didn't seem real, neither did death for that matter.. Nothing did..
Posted 3/5/2013 3:46 AM (GMT 0)
I am laughing Shabbychic! ha it's even funnier because I didn't even think anything of it!! :)

Thank you so much for writing samjones! Gosh it is literally driving me mad! Oh my gosh it sounds like it was awful for you. I was begging to be put into a mental hospital my vision was so strange and I felt like I couldn't relate to anyone. Now it is a bit better, but it is still so hard to do just daily tasks. I am hoping this isn't permanent...

Did you have it 24/7? Did you also have anxiety (I don't, which makes me think this is even more strange).
Posted 3/5/2013 3:48 AM (GMT 0)
Also, I have derealization (not so much depersonalization, the feeling out of body). It is more just the visual disturbances... but ALL the time, literally.

and samjones, I am sending your daughter wonderful thoughts!
Posted 3/5/2013 9:16 AM (GMT 0)
I have these episodes, I've been having them for a very long time (for about 12 years). Sometimes I feel like I'm sitting/hanging in a tunnel, everything seems close and at the same time very far away. It comes and goes.
I had bad anxiety attacks too. My acupuncturist helped me with that, I didn't even realize I was having them, he was the one who taught what it was. It took me a long time to get a bit better (I wasn't being treated for Lyme/Bart then, so I guess it was normal). I still get it, but now I recognize it when it's there. He gave me a herbal treatment based on Passiflora Incarnata. It would calm me down without sedating me, or making me drowsy of sleepy.

I also have desorientation problems. All of a sudden, for just a few seconds, I don't know where I am, or I don't remember how to do what I'm doing. The last time was at work: I was going down the stairs, and while going down, I looked at my foot, didn't know what it was, I froze, didn't know where I was.
Posted 3/6/2013 1:06 AM (GMT 0)
I didn't have any anxiety while I was having the depersonalization/derealization bouts. It anything, I was reall calm and mellow because I really didn't know what was going on. I didn't even know that I didn't know..lol. I had to get off my meds when it got reall bad. Like I said, I was toxic. There was too much of a die-off and my body couldn't rid it fast enough. Now I know that I have the MTHFR gene mutation which makes it difficult to detox. I also have the double HLA marker, which makes it even harder for me to detox. This explains why I went toxic so many times. I even went into sepsis!.

Make sure you are doing everything you can to detox. I have come across a few people that were toxic when they had the derealization/depersonalization issue especially without the anxiety (and I don't mean feeling out of it for a while or a foggy brain, although that is very upsetting and aggravating as well). This issue happens for days, until the body can detox some. Sometimes getting off the abx for a few days is key.

My mother almost had a heart attack when I told her I could fly. Needless to say she stayed by my side until it was over because jumping off my deck seemed so appealing since it would give me the leverage I needed to fly..lol.
Posted 3/6/2013 9:34 PM (GMT 0)
Hi lemons and lymes...(very funny, btw!)

I have had lots of brain fog and hard to talk, think..not quite what you experience, though. Most of mine is gone now.

From seeing Dr. Jernigan at Hansa and learning about neurotoxins in the brain, and leaky brain, I am pretty certain that toxicity is at issue here.


here is an article about leaky brain: http://www.hansacenter.com/pdfs/AmmoniaBloodBrainBarrier.pdf


Neuroantitox II is a good remedy and safe. It has helped me. And whatever kind of detox you can do...detox baths, Fir sauna . also getting chiropractic to make sure neck and cranial bones are moving properly.
Posted 3/7/2013 4:05 AM (GMT 0)
I can definitely relate with this one. Gotta say by far, is one of the worst symptoms I ever had to deal with. Nothing seems real, its almost as if I'm acting out a dream. Its pretty scary. I think Ive had it for 7 years now so sadly I've gotten used to it. But I'm trying to do some detox now so hopefully that can lead to some relief. If you guys find anything that really works let everyone know!
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