Alphabet soup...so to speak...

It seems to me that everything I am dealing with is turning into "alphabet soup." I have been diagnosed with:

Fibromyalsia, colitis, Celiacs Disease, EBV, Bi-Polar, Depression, Anxiety, Sjogrens Syndrome, Arthritis, Lyme, Chronic Fatigue, skin sensitives, acid reflux, etc.

They all are just mixing together. The symptoms overlap, treatment, theories , etc...

It makes me feel like I am chasing my tail!!! So frusterating...after being blown off by so many doctors it just seems so monotonous. I want to get better, not get more diagnoses.

Doesn't it seem weird to you that they all have so many similarities? When I found out I had Lyme and told my family and friends I could feel their eyes rolling behind my back "GREAT, she has yet another disease!"

If my mind/memory wasn't shot, I would put myself through medical school!!

I guess I just feel like part of the puzzle is missing...could there really be no concrete answers...I guess enduring this herxing is making me question things...ya know?!?!?

I need a yellow brick road.....

Deejavu- yep, been detoxing my bum off.

Its just that all of my specialist, other than my LLMD, believe that Lyme doesn't exist- chronically.

Anyhow, with my meds and herxing it makes me question things. I have been detoxing for years. Well before I was diagnosed by my LLMD in Jan this year.

Lyme soup can mimic all of the symptoms of the diseases you've listed.

What facinates me is that although we all suffer from Lyme and coinfections, we all have different but at the same time similar symptoms,if you know what I mean.

If I have learned anything since joining this forum,it is that everthing is possible with Lyme,no symptom is too bizzare or far -fetched,that's what makes it so difficult to treat.

Sooooo,follow the Lyme Brick Road,goodness knows where it will end! Hopefully to a symptom free future.


Tickled

Hi Mom,

Why put yourself through medical school? It certainly didn't do our doctors any good!

I'm very new to recovery; have been following Dr. Jernigan's protocol for a little over a week; but sick for 10+ yrs, also diagnosed with many of your problems. My worst problem has always been excruciating, crushing, burning pain in my knees that is so bad I've been in pain management for several years. Well as hard as this is to believe, the day after I started Dr. J's protocol, the knee pain went from a 10 to a 3. Now, about 10 days into the protocol, I can feel a prickly sensation in my knees, like it wants to start an attack, but no attack comes! I've been slowly lessening my narcotic dosage and am now taking about half of what I was taking. I can't give the pain meds up yet as I also have spinal stenosis and scoliosis, which along with the knee pain has kept me in bed for years.

Yes, I will make my point.. As whoever put my package with Dr. J's products together forgot to include the book (which finally came today) Deejavu has very kindly guided me regarding the proper doses to take and helped me understand the importance of detoxing.

I do dry brushing followed by an epsom salt and peroxide bath every night before bed; only take one day off a week from this. No, it doesn't hurt at all. It's very soothing and relaxing. When I pour the epsom salts into the bath, some of the salts don't melt and can feel like tiny bits of sand when you get it. I find that annoying, so I wipe the bottom of the tub with a washcloth to break them up before I get in. I do a Jernigan's mustard foot bath at least 3 or 4 times a week. I drink about a gallon of water a day.

I have to admit I was grossed out when it came to the coffee enema; but 'rah' for me.. I did one this morning and it actually woke me up, same as drinking a cup.

So again, as Deejavu said, no matter what protocol you're on, you have to remove the toxins from your body to heal.

Am I healed after 10 days? Of course not. I still have many, many horrible Lyme symptoms. But I truly believe that with tons of patience, a lot of prayer and by sticking with my daily protocol including detox, detox and more detox, I will beat this. We all can!

jupiterGma

Post Edited (jupitergma) : 3/21/2013 11:28:59 AM (GMT-6)

Mom,

I'll take this one step further than Deejavu has. When I saw your title, it made me hungry. The only problem is, I have started my diet today. I can't allow myself to go downstairs and rummage through the pantry and refrigerator for a snack. I know that I could eat a stalk of celery or a carrot, but that doesn't appeal to me!

I am sorry that you are having so many symptoms. I guess that you are in good company with your peers here on the forum.

Don

Thanks Marie! Your so helpful! I have to go pick up my meds today, so I think that I will try to find a kit somewhere! I'll take what I can get....plus I read you can hear your gallbladder drain?!?