Trying ACT for Lyme & SIBO

Hi everyone,

I've been coming here to research for some time now and I finally want to post about my journey. I lean mostly on the alternative side. I take western and Chinese herbs, lots of supplements, IV therapy (love Glutathione), hydrotherapy and weekly acupuncture. I have tried numerous diets including macrobiotic, raw vegan, raw non-vegan (yes raw meats), and now the GAPS diet.

I have also tried NAET, Rife, neuro-feedback, biofeedback and the Tomatis technique and all have been helpful in their own right. I do a lot of EFT at home and try to address the emotional, psychological and spiritual aspects of wellness as well.

Here I am 12 years after diagnosis and I'm very grateful for all the gains. I'm grateful to not be on disability, to not be bedridden and to be able to work full time. It took me 10 years to work up to that. But I'm still very symptomatic and I spend most of my time outside of work either receiving treatments or sleeping. I push through pain to get out of bed and I push through brain fog & fatigue to get through my workday. This is tiresome existence and I am seeking greater gains.

I'm trying ACT because the idea of cell training through stimulus-conditioning intrigues me and because I get my money back if I don't like it after a month.

I listened to a lot of Gary's videos and I have to say, I find him underwhelming. I'm sure he's a nice man and perhaps he's gifted but he doesn't present in a way I relate to and at times he offends me. That caused a lot of hesitation for me but since I have nothing to loose I figured I'd try it.

Today was the first day of the Lyme class. When the lady read the codes at the end I felt a little pressure in my head. Listening to the music I felt nothing and when I called in to "get set" I felt light-headed and dizzy for a while. It lasted for 30 minutes.

So far I have nothing significant to report. The main reason I wanted to post this is because I had seen people post about how great ACT is and that raised skepticism. I also saw some attacks which seemed unfounded. I would like to report my experience without much hype. I'm not sure if this will work, if it does, great and if it doesn't, it makes for a fun story and I get my money back. I'm not stopping all the other things I'm doing.

I have learned so much from your experiences and feel lucky that we have forums where we can exchange ideas. I hope to provide qualitative feedback about this modality.

Wishing everyone well in their journey!

Hello Shannon,

I’m just finishing week 2 and the changes I'm seeing are very subtle. The best way I can describe how he works is that he's combining NAET and Rife. Every week we send him an updated version of our symptom tracker that is numbered from 1-10 with our top 10 symptoms and some short paragraphs of our gains and pains for the week. In the pain section you list your top three symptoms you wish to work on for the week. I believe he takes all the reports in consideration and creates the codes for that class. When the codes are read I still get a very strange sensation in my head and body. The rest of the day I’m a little woozy. On the following two days I herx pretty badly and then gradually improve. Some of my symptoms have disappeared, some reduced, & some have stayed the same. I have three more weeks of trying it and if I don’t feel it’s right for me, I’ll get a full refund.

So far, I’m pleased with the process in ways that are hard to explain. It’s been an interesting experience.

I think last week many people complained about pollen allergies so he told us to be ready to work on it in class. I have to say, it helped me greatly. I haven’t sneezed once this week. We’ll see if it lasts. I’ll keep you posted.

Are you considering ACT? What else have you tried?

Hi I am new to lots of this. Can you guys tell me more what ACT is? I have never heard about it before. I also am on the GAPS Diet and have been now for about 7 months. I also have SIBO which takes forever to get rid of I guess but the diet finally has given me so slow steady relief. I was so bad broth was all I drank and ate for months. If you guys can tell me more I would appreciate it............thanks Andy

I was also doing ACT up until this past week. I started back in November, but it did not work for me. I was in a class of about 20 and I'd say half of the class was seeing results. I stuck with it for as long as I could but with no improvements yet, I could see that it just wasn't working for me. I may try again in the future. I'll be curious to see how you are doing in the class in the near future.

I’m so sorry for my delayed response, I wrote a reply to all three of you on Word the day I received your posts but I see that I never posted it. Here it is:

Shannon,
I was thrilled about you going to the Hansa Center. I can’t wait to hear it. As for my ACT Journey it’s been going very well so far. I herx like you wouldn’t believe but after 2-4 days I improve and I feel better than before. As I look at my symptom tracker, I see about half of my symptoms have improved. Several of them have gone to zero. It has done wonders with my allergies. So far not once day of allergy meds. I work with two acupuncturists and they both see significant improvements in my pulse, tongue, and coloring. I’m amazed by it. I want to keep going for now. So often I respond very well to a protocol and later relapse, so I don’t want to get too excited but so far it’s been amazing. How are you after Hansa? How was it?

Andy,
I’m so sorry about your SIBO. That thing is so stubborn & you seemed to have a bad case. I went on four rounds of antibiotics and they didn’t work so finally I did the elemental diet for 20 days and that did the job. It seems a lot of Lyme patients with Bartonella have gut issues and SIBO can be one of those issues. Please keep in mind that the GAPS diet was not designed for SIBO and many of the foods on this diet still feed the bacteria. Doctor Alison Siebecker at www.siboinfo.com is working on a book that describes what we should be eating. I can’t wait for it to come out.

Here’s more info on ACT. If you are on Facebook, look them up, you'll get to hear about people’s experiences. You can always try it for 5-6 week & if you don’t notice a change, they refund your entire money. That policy encouraged me to try it.
http://www.advancedcelltraining.com

Don,
The horror of Heather's story is unimaginable! How is she doing now?
As for the GAPS diet, I would recommend it for anyone who either has gut dysbiosis or whose body is fighting something. For those of us with Lyme and a host of other infections, it reduces digestive stress, promotes a quick absorption and reduces food for opportunistic organisms within the guts. I met a Lyme doctor who puts all his patients on it. I researched GAPS the Specific Carbohydrates Diet for a long time before I did it and it’s a truly health promoting experience. I’m on a modified version of the GAPS that’s basically only meats, and fermented dairy and veggies and some cooked low starch veggies. It’s more of a Weston Price diet I suppose. The less sugar in the diet, the less food for pathogens.


Wishing everyone healing in their journey of choice.

Hoppeful

Shannon,
I'm so sorry about Hansa not producing the effects you were hoping for. We all respond differently to various protocols, maybe this wasn't for you or maybe the results are delayed or not yet measurable. Here are some of the improvement areas for me:

MAJOR IMPROVEMENTS:
Heart issues 8 to 0
Insomnia 7 to 0
Pollen allergy 7 to 0
Rashes 8 to 0
Candida 7 to 0
Lowerback pain 8 to 2

SOME IMPROVEMENTS- HAVE WAYS TO GO
Brainfog 8 to 6
Fatigue from 10 to 7
Jointpaint 10 to 5
Stiff neck/upper shoulder 8 to 5

As for the GAPS, the intro is extremely important. I've done it twice. The firs time I wasn't very by-the-book. The 2nd time I spend 1 week on stages 1-3. After 3 weeks I moved to Stage 4 and spend a couple of days on stages 4-6, still abstaining from fruits for various reasons (even cooked). Being underweight is a very important concern, I'm glad you're being careful. Loading up on fats might be helpful if you can tolerate them. Avocados, coconut oil, homemade sour cream, cheeses, and animal fats are some possible options.

Shannon, a huge part of this Lyme journey is dealing with the depression that comes from feeling so sick, and feeling that almost nothing is helping. Managing these disappointments can be hard. It's okay to have a bad day here and there. I'm glad you're asking for support, I think it's helpful. Know you're not alone in your struggle and know that eventually you will stumble across that one thing that helped you feel better.

A big hug,

H

I am so glad ACT is working for you. I am sticking with class still, but so far no improvements for me. The great part is I am doing it for free right now until I start to notice improvements. I know others have stayed in class for over a year and I am at about 6 months now so I want to give it a little more time.

I too herx after doing certain codes so I know it is possible that it can work. Keep us posted on your progress.

Hi. I am still doing ACT. Been in class 8 months now and I am doing better. I still have my bad days, but am having  lot more good days and starting to do a lot more than I was able to do before I started the class. I wasn't sure at first either, but figured what did I have to lose. But I plan to stay with it a bit longer to see if I continue to improve. Have had some of the best weeks this summer than I have in a long time so I credit I to the class.

I still herx too after codes so that tells me that it is killing bugs and generally feel better afterwards. I did the antibiotic route for 3 years. It did get me well, but I relapsed 3 years after stopping and I'll never do them again, so for me this is a great alternative and it seems to be helping far.

I know others have been in the class for over a year to two years before they considered themselves healed. I've had lyme for 15 years (3 years in remission) so my journey is a bit longer so I know I have to give it more time, but I am thankful for the improvements I have had in the last 8 months.

It is $55 a week, but if you don't want to continue after 4 weeks you get your money back. It wasn't working for me in the beginning so let me stay in class for $15 a week. He will work with you based on your results.

Can someone direct me to a website that explains this? I did a couple of searches, but didn't come across anything that seemed right. I'm curious about it. Thanks!

Shannabanana can you tell me your experience 27th jernigan protocol