HealingWell
Search Close Search
☰

chronic lyme ideas on getting well

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/20/2013 6:48 PM (GMT 0)
I finally got to my lyme md for first time he was great and believes in long term treatment with antibiotic for lyme disease. he drew my blood and sent it to igenex. he thinks i have chronic lyme and bartonella. based on my clinical symtoms and i had the rash 1 yr ago.

he said it will be a battle to get well. that some people get better and go into remission and sometimes you ahve setbacks and have to be treated again. is this anyone's experience? is anyone doing well with chronic lyme?

I also am benzo withdrawal coming off kloinipin after 17 yrs of use which is making me very ill on top of having lyme i have never been this sick the md alos says i have virus cmv, candida, mold and food allergy, adrenal fatigue, low female hormones, what else lord?
Posted 4/21/2013 4:20 PM (GMT 0)
I didn't use abx (or any other pharma meds other than 1 for sleep issues), but I had chronic Lyme for 37 years and got better! I also had Bart, Babesia, RMSF, Ehrlichia, Anaplasmosis, & Myco bacteria and EBV. I also have had the adrenal fatigue, and Hashimoto's Thyroiditis due to these infections.

I too am going through benzo's withdrawal, although I've only taken them for 6 years and it's still a tough one!

The CMV, Candida, adrenal fatigue, & low female hormones can be directly related to your tick-borne infections and what they have done to your body. I would also suggest that you get your thyroid checked - and not just the 'TSH' but specifically T3 & T4 production. You can read more about this and the effects on the adrenals here:www.stopthethyroidmadness.com/
Posted 4/21/2013 7:08 PM (GMT 0)
thank you traveler i will read that you give me hope i am overwhelmed and depressed
Posted 4/21/2013 8:12 PM (GMT 0)
Hang in there, Mystery1!
It is a long road for some of us, but it is also well traveled! There are lots of people here to help you with suggestions and articles to get you through this! Many also find that a local face-to-face support group is helpful.

Be sure that you are detoxing - instructions are in the "New to Lyme?" thread, as it's the toxins that are causing most of your symptoms (www.encognitive.com/node/5768.

Start off slowly because it's easy to overwhelm the body with many things as you start off. By using the methods described in the "New to Lyme?" thread, you will be releasing toxins into the blood stream in order for them to be removed from the body through the skin, urine or feces. Just go slow - I like to say that slow and easy wins this race! LOL!

Your Bart infection will stop you from healing the Lyme completely, so be sure that your doc treats the Bart soon or at least before s/he decides that your done with your treatments. Just ask them at your next appt which infection you are treating right now and what the plan is for the other infection(s).

I would also suggest that you look over the symptom lists to be sure that you don't have any of the other tick-borne infections as they have a way of not showing up on any blood test as well. Any co-infections have the potential of stopping the healing from Lyme.

Be sure to ask tons of questions, not only here, but of your doctor as well!! An informed patient makes for better healing!
Posted 4/21/2013 9:09 PM (GMT 0)
thank you traveler. I just want to go back to work. I am a rn and I so miss it.
Posted 4/21/2013 9:22 PM (GMT 0)
My daughter started out with ABX for about 6 months, then we added some herbals for another 8 months. She started to relapse a few months later, then we pursued a completely different treatment approach. The main focus of this approach is not chiefly to kill the microbes, but rather, to restore the person's ability to heal on its own. She is well today- 3 years later.

I just want to encourage you not to worry about the future. There are several different approaches and methods to becoming well. You will learn a lot as you go along. Almost everyone that has this illness for a long time is forced to make adjustments along the way. Some make minor adjustments, and some make major adjustments.

I hope that you can be back to normal soon!

Don
Posted 4/21/2013 10:04 PM (GMT 0)
I have late state Lyme also, What I can say is don't give up. I keep adding new things to my approach, and I am doing better , then I was at the beginning. I haven't gotten my life back yet, but I am sure going to work like heck to get it back.

I did abx for three months, it made me worse so now I do herbs. My body handles the herbs better, less stomach pain.

I hope you get well, that we all do soon.

justme
Posted 4/22/2013 4:12 PM (GMT 0)
Traveler - how long did it take you to recover from lyme, and what was the rate of your progress.  I also believe I have very long-term lyme (almost 30 years) and I have been discouraged that it would take forever to get well again.  Thanks.
Posted 4/23/2013 12:03 AM (GMT 0)
Hi CraftieKittie!!
Welcome to our little community! I'm so sorry that you too have been affected by these diseases for a lifetime, but you can heal!!

In June, it will be 3 years of treatments by a Traditional Chinese Medicine Practitioner who is a Master Acupuncturist and a Master Western Herbalist. When I first started seeing her, my adrenal glands were starting to shut down, my thyroid was a wreck, my intestines were shutting down on a regular basis, I was in sooo much pain and I had all of the tick-borne infections, so I spent the first 6 months detoxing and trying to get things functioning again.

I treated Lyme for 9 months and the last 6 months of that, I treated my Bart infection as well. My Babesia infection was the hardest one to treat, and I'm still a bit confused as to what actually worked (LOL!), but whatever it was, it worked!!! LOL!

When I first realized what I had and how long I had it, I was about ready to quit before I ever started!! All of the 'estimations' about how long I would have to be in treatment were around the 10 year mark. I just decided that we'd have to see about that! Ans I set out to heal. Surprise, surprise (it was to me!!) - it didn't take nearly that long since I found a treatment that worked with my body!

Educate yourself about what you have and what it does to the body, that way you are "armed" to do battle with a very complex disease that so few understand. I happen to believe that Holistic healing is the way to go, especially when one has had these infections for a very long time as the body needs the support it will get - but that doesn't mean that people don't heal using abx or a combination of abx and herbals!

If you would like to 'talk' more in depth any time, please feel free to email me. Just click the little blue envelope under my name and it will bring up your email client - or that's what's supposed to happen! LOL!
Posted 4/23/2013 5:37 AM (GMT 0)
I have read steve buhner's book on herbal treatment of lyme. I am trying to decide how long to take antibiotics. the md says I may have to take them for 1 year.
Posted 4/23/2013 3:05 PM (GMT 0)
I agree with the above great advice. I have been battling for 6 years and believe I have for about 13 years. I am feeling great, not totally well, but great. Certain symptoms creeping back in and trying to get a hold of them, the worst of which right now is the burning skin/neuropathy. (We are trying antibiotics again to see if its bartonella causing or just effects of long term lyme).

Anyway, my belief is that it will be a lifelong battle. But don't let that discourage you. There is no one alive without a life long battle - whether it be financial, mental, physical, etc. - we all have them. Consider it just another one of life's challenges and without challenges, what is life really? lol. You can and will get well but you must make lifestyle changes. The more you relieve stress, the better you will feel. I have found that I had to change my outlook on life. I stopped blaming myself for feeling horrible and although I push myself, I don't overdo it or feel guilty for taking naps or just doing nothing. I have totally changed my way of thinking and accepted the fact that I have an illness and know that tomorrow is another day.

I hope you feel well today.
✚ New Topic ✚ Reply