Got My Test Results Back

I posted on here a few weeks ago about getting a Lyme diagnosis from my ND and then sending in for the tests.  I am not very good at all of the technical jargon, but she said the tests we a very strong positive.  She actually used the phrase "Raging Infecction", lol.  The Western Blot, I think it was, turned out in a way that even the CDC would say I have Lyme.  This seams like a real good thing if my high-deductible insurance would ever come into play.  There is no gray area anymore about whether I have it or not! 

I also am showing no co-infections!  I have a friend with Lyme who says this is very rare.  Especially after so much tick exposure.  My ND said that it is very good to show nothing, but that it doesn't rule them out entirely.  My immune system isn't mounting much of a response anymore to the Lyme(also any co-infection, I would assume) and therefore it may not produce the required antibodies to show up on testing. 

She also mentioned that she was surprised I am doing as well as I am.  Not sure what to think of that, but I will take it as a testiment to how hard I have been fighting against this unknown disease for so long.  A drastic change to my diet 2 years ago has saved my life, I know.  I have also shed about every possible stress along the way, not knowing why I needed to, just that I did.

Anyways, she is putting me on the "Natural Approach" for 6 weeks or so before we reevaluate.  I am thinking she will have a better idea at this point whether any sneaky co-infections are involved based on smyptom changes.  Maybe get retested for them?  She didn't say this, but I am wondering if she wanted to see if my immune system will get active and start engaging anything else.  It also seams like you don't want to start with antibiotics until you are as certain as you can be that you know everything that is going on? 

After 6 weeks we will see where we are and maybe start oral antibiotics and then leave IV stuff as a last resort in maybe a few months.  She did also mention that she would consider calling in another LLD in town that she knows in 6 weeks if she is not seeing what she wants.  Why am I now getting this eerie feeling that she is hiding something from me?  She seams really confident in herself, why would she need help? Oh well.

I will run upstairs and grab my test results and pills.  I would really appreciate any insights on them.  I am not really too sure what to think of it all yet and am not too thrilled to start loading mulitiple pills down my throat every day, but what can you do.  I will post the rest after bit.  Thanks a bunch.

Lyme Disease Protocol

Quintessence(herb blend) to help with cognitive stuff and my heart rhythm.  4 droppers twice a day.  Not there yet since this stuff is disgusting.

AlliUltra - Antimicrobial.  Pretty much garlic I think.  1 pill daily.

Nattokinase to break down biofilms, I think.  Comes from soy somehow.  2 pills per day.

Eleutherococces?  Siberian Ginseng to help with fatigue.  1/4 to 1/2 ts in morning.

Melatonin.  1 dropper before bed to help me with sleep.  Haven't tried yet. 

Degrata?  She is ordering this one for me.  Not sure what it is for.

I am easing into this and did about 2/3's of them today after getting them on Monday.  I think tomorrow I will do full doses for the first time.  My legs have been especially achy the last 2 days and my energy is running a bit lower than normal too.  Last night I had a 2 hour episode of feeling terrible after my Alliultra pill.  I just layed in bed and tried to nap and it luckily wore off quickly.  I think tomorrow may be interesting.  I think I finally may have taken a benefitial detox bath tonight, which helped a bit with my legs.  I cut out the hydrogen peroxide and added baking soda instead, and only stayed in for 20 minutes.  I also made sure the water was only 98 instead of 103 like my last one.  That last one casused a pretty bad reaction for me.  I think this is all I have for now.  I really am thankful for any replies. 

 

Hi Prairie Wind!!
Welcome to our little community!! I agree with ToddPaul in that your test results are pretty impressive! LOL! I didn't test positive for anything until I had been on abx for a full year! LOL!

If you haven't already, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists (as Lyme rarely occurs by itself), helpful links and pdf's, how to detox when one has these infections, and a list of questions that you can ask any doctor that you are seeking treatment from!

We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge about our infections and the different ways to treat them!

As for your doc saying that she would call on another LLD if things weren't like she would hope, that's not such a bad thing! If she is kind of inexperienced at treating these diseases, then you want someone who isn't afraid to call on someone else!! Although I would suggest that you check into the doc that she will be calling! No need to be ultimately treated by someone that you don't agree with their approach.

I would suggest that you take ramping up your dosages a little slower, as you have already told us that you have reacted to it. Try using less than what you did - like 1/2 a dropper and only start one new thing every three days. That way you will know what caused what reaction if you do react. You don't need to create an overwhelming herx! A herx is an overload of toxins in the body - the bacteria put off toxins as they die, and if the body can't get rid of them fast enough, it causes chaos in the body - a painful chaos! Also, be sure that you never allow a herx to stretch into days and days or even weeks. When the body is already overloaded with toxins in the blood stream, it can't heal as well or as fast. No need to make your treatment any worse or any longer than necessary!

Detoxing methods that we recommend are listed in the "New to Lyme?" thread.

The co-infections are a tricky thing to be sure! The most knowledgeable LLMD's diagnose based on symptoms (clinically) as that is actually a more accurate way than trusting the blood tests!

I mention this doc because he has a website and advertises openly - Dr. James Schaller, a Lyme researcher and doc says this about Babesia - "No blood smear will be positive for Babesia unless you have a profoundly massive number of infected red blood cells, which is rare. Therefore, no blood smear should be considered negative unless it has been examined for thirty minutes." www.personalconsult.com/posts/babesia-checklist.html

The best thing you can do at this point is to learn all that you can about the diseases you have/believe you have, as information is power with these infections!

If your symptoms are quite tolerable, then carry on!! For some of us it can be completely overwhelming to start more than one thing at a time.

I really don't know about having treated for 6 weeks with natural treatments and being "ready" to test once again. You'll have to find someone more knowledgeable than me to get a good answer on that one!! LOL!!