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Update: Visit to LLMD today

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Lyme Disease
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Posted 7/9/2013 12:50 AM (GMT 0)
Just wanted to share that my husband took our daughter to her first LLMD appt today. She saw a pediatric nurse practitioner because the LLMD doesn't see pediatric patients. It went well and my husband remarked how nice it was to be listened to and believed. My last ped. dr. visit was terrible and the dr. was really oppressive. I sent my husband along with my notebook that I bought a couple of weeks ago and have been taking notes in. I keep a record of my daughter's symptoms, herbal supplements, medication, other treatments, etc. It really helped my husband out as even though he knows all that's going on, he hasn't been the one to go to doctor's appts and answer questions and some of the day to day minutiae escapes his notice (like is she taking vit. C?).

My daughter will be on amox. and azithromycin for 2 months. I am also going to add in the Buhner protocol minus the Cat's Claw, keep up with baths (epsom + hydrogen peroxide), and of course add in probiotics.

I also wanted to say YOU ALL WERE RIGHT!!!!! You said we needed and LLMD, and we did. You said 3 weeks of amox. was not enough, and it wasn't. I'm glad you told me the hard things so I could make the right decisions. Thank you all so much for taking time to read all the posts here and help people like me out.
Posted 7/9/2013 8:46 AM (GMT 0)
I'm so glad you are on the right track in getting your daughter treated. Sometimes it feels like we are on a merry-go-round - or maybe even a roller coaster - while visiting doctors and specialists. My husband, Toby, just mentioned today how good it feels to be pointed in the right direction. I keep a record of all of his doctor visits, treatments, and medications too. It is important to see how well the treatments are working and someday, I want to be able prove what this illness has done to him and how he wasn't treated for the root cause. I'm sure I can speak for everyone on this site in saying we are so happy you have been helped in making "the right decisions". There are many knowledgeable and experienced people on this forum so I hope you will continue to stay with us while your daughter is on the road to healing.
Posted 7/9/2013 4:39 PM (GMT 0)
Good. I hope it's uphill from here. How old is she, if you don't mind me asking. I have a daughter with Lyme and it was a long time before she was diagnosed.
Posted 7/9/2013 7:22 PM (GMT 0)
Hi Garden Peace,

My daughter is 8. It was nearly 2 months before she was diagnosed. She had a tick bite, but we never saw the tick that bit her. She never got a rash or a fever. A month after the tick bite she began taking naps after not taking any for a long time. I thought she might be going through a growth spurt, but gradually she became more fatigued, asking to go to be a half hour early, and just before the first doctor's appointment, she couldn't even pick up her baby brother as she was in the habit of doing. I thought it might be mono, the tick bite had disappeared long ago and my concern about it. But my husband had not forgotten the tick bite and he suggested Lyme. If it wasn't for him, who knows how long it would have been. The pediatrician ran tests for mono and Lyme, but only did the Lyme test as my insistence.
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