heat intolerance

I am curious how many suffer from horrible heat intolerance as one of the main symptoms?  It seems to be the worst part of my experience along with the fatigue and pain of course.  I always feel much better when the temperature is in the 70s of less.  Once my core temperature rises, it takes quite a bit of time to lower it. I get disoriented and confused when I get hot and I feel like I will faint and even die from situations where I cant cool down.  Can anyone relate to this?

Hi Areelius!!
Welcome to our little community!! Are you new to Lyme? Are you in treatment yet? Are you treating with abx, or with natural medicine of some type?

First of all, you could be experiencing a herx from the heat as heat kills the Lyme bacteria. The other thing is that we are much more sensitive to the heat as well, sometimes due to adrenal insufficiencies or orthostatic intolerance issues.

Other than the suggestions that Marie has already given, I found that if I was careful to dress in layers that I could take off - or put on! - as the temps changed, it was very helpful.

If you haven't already, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists (as Lyme rarely occurs by itself), helpful links and pdf's, how to detox when one has these infections, and a list of questions that you can ask any doctor that you are seeking treatment from!


We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge about our infections and the different ways to treat them!

IndiaBeth, that sounds like a symptom of adrenal insufficiency. Have you had a 24 hour saliva test for your adrenals done?

For more information about adrenals (& thyroids), I suggest this site:
www.stopthethyroidmadness.com/

I have no connection to this site in any way - it's just one that I have found to be very useful!

Areelius, some of my worst symptoms is intolerance to cold (and recently found out that also to hot). I live in Chicago and you can only imagine how bad my winter was. Even when it is in the low 70s I am wearing a light jacket or a sweat shirt and jeans.

This summer we went to Florida for a week. I was so happy because it was going to be in the 90s and I could finally wear a t-shirt and shorts and feel normal. How wrong I was. I could not walk on the beach and just being outside I felt dizzy, like I would faint at any second, had difficulty breathing (air too humid) and my energies were completely drained. It was so bad that I had to make a conscious effort to breath normal. I spent the week indoors and would only go out in the late evening or night.

The weird thing is that I shower with very hot water and when I was the dishes I also like the water to be hot. Also, the water that I drink has to be lukewarm as I can't tolerate cold water or ice cubes in my water. At night I sleep with pajamas and three blankets. I keep the house at 78 degrees Fahrenheit all year long.

I have low heat tolerance too, worse after the stress I was under for 3 years. Then I have a hard time staying warm when it's cold. 70-75 degrees is the best overall temp. for me. I know my adrenals are off. I don't sweat very much either, so that doesn't help either.