Newbie lyme with questions

Hi Phoenix,

Welcome to our forum! Sorry to hear what you are going through. If you click on the "New to Lyme, Start Here " thread at the top of the lyme page there is loads of useful information on there on how to detox, lyme symptoms and how to go about getting treated.

You are not alone and you are not crazy. Most of us here were told that. Unfortunately, by this time especially 14 days of antibiotics really isn't going to do much for you. You will need to pursue western medicine, herbal and/or alternative medicine in order to get an accurate diagnosis and treatment. Specifically an ILADS trained doctor that specializes in tick borne diseases. I would get on this ASAP since most lyme doctors have waiting lists.

It is pretty rare to test "CDC" positive for lyme. The fact that you had three bands on a standard test says a lot - I myself never tested positive through labcorp - only through Igenex. And I am feeling better then I have in years after 5 months of treatment. I have recently gone off antibiotics and am continuing an herbal protocol.

Start a new thread, " Searching for LLMD in _____________-" These doctors are by referral only and names are not to be posted on the site for privacy and discretion. Please activate your email in your profile so folks can send suggestions.

Feel free to ask questions. This is a wonderful site with many great members and information. Please also read briefly through the guidelines for healingwell when you get a chance.

We have all fought with one or many doctors along the way to finding health. It's really sad how much we have to fight for our own health. I went 18 years before I had a diagnosis. I went through 3 years of therapy because I thought my neurological symptoms were from stress.

 I had a friend that was a psychologist tell me that when I felt all spaced out and out of my body it was because of severe childhood trauma and I must have therapy because I was mentally dissassociated. As she defined severe childhood trauma I was confused, why do I feel like this when none of that happened to me? She insisted I must have repressed it. So even people that care will literally tell you this is in your head.

I can't count how many doctors told me there was nothing wrong with me. I started to get afraid to mention my symptoms for fear of being labled a whacko. While having Lyme is no picnic, I am sooooo happy to know what it is and have an approach. I now know when I feel spaced out that I'm not nuts, I'm sick.

Groups like this have helped a lot, I don't feel as isolated as there are people that are informed and understand.

I am now working with a Naturapath and just started with the herbs. I'm scared of the herx but I understand it better and have a plan for detox.

You're right, it is frustrating, you're not crazy and You will get your life back

You could also order the kit from IGenex and go to your doc to have blood drawn or have him/her send you to a lab for the blood draw.

Kayla33

I did take the information that I learned years later and showed her that dissasociation is a symptom of Lyme and is not always the result of severe childhood trauma. Of course she's older now too and said she has been getting requests for helping Lyme people with mental health and doesn't know enough to help them. She said it's something new they are just now starting to encounter. She was actually curious about it.

It is better to be informed and understand what is truly going on.