feel like you are on the verge of a medical emergency with no answers?

I'm so sorry you're going through such a tough time and not getting the help you need. Is there another LLMD you could go to since the one you are going to isn't responding soon enough? Or is he/she the only one and has too many patients that need help?

Keep coming here for support and others may have helpful advice for you. Hang in there.

My LLMD books appointments so far in advance, and it'd be nice to actually go to the doctor when you are feeling especially bad so they can be monitoring your progress/lack of progress. My LLMD never ruled out other conditions hence me having to be back and forth between an MD who knows literally nothing about Lyme but has tried to rule out other possibilities and my LLMD who is basing my treatment on non-specific WB bands and seems unphased by my level of debilitation since he has seen it before but has never considered other options besides coinfections. I wish there was a happy medium between the two but for now I have to go back and forth w/ conflicting info and recommendations that arent working.

I have used a dry skin brush and have taken a few epsom salt baths---they have been too warm and make me uncomfortable and not at all relaxed. I'll try to use cooler water and start w just foot soak. I am definitely in no condition to exercise any time soon unfortunately. I guess I'll have to detox in a stricter way.

Thanks, I actually won't be back to see my LLMD but will hear from him when I get the results back (probably next week) with instructions on how to proceed. He doesnt book follow up appointments for typically 4 to 6 months unless you can get in on a cancellation.

To violets: yes I am similar. showers used to relax me but the heat of it has been getting to me recently as well as the sun and exercise intolerance. I thank you for your kind words, I've been trying to think positively, but as I'm sure you know it can be very tough. Yeah my non lyme MD prescribed me an SSRI and am hesitant to take it. I'm glad to hear everything ended up working out for you.

Nj, One of the things that I have learned from Lyme is that it feeds off of many of the nutrients that your body needs. You need to replace these nutrients so that you feel better. The more the Lyme steals from you, the worse you are going to feel. Some specialists suggest that you should "starve" the Lyme and others say to replenish what it takes. It is my personal experience that replacing the minerals and vitamins that it feeds off of makes me feel better.

I am reading the new book by Stephen Harrod Buhner, a person well respected for his knowledge of Lyme and coinfections and in this book he states that we need to replace what Lyme takes from us.

Vitamin B complex, minerals such as zinc and magnesium, fatty acids, and multivitamins are just some of the things that he recommends. I can tell you that vitamin B has given me a little bit of energy which I was depleted of. The shaking, the fatigue, and the shortness of breath sound like you are very low on magnesium. Someone here posted their personal experience on how three pills of magnesium given to him by his doctor helped this person within a few hours of feeling terrible. It just may be what you need right now.

I have also found that being on a gluten free diet has eased some of the symptoms that I was experiencing. If you read through the posts here and on other websites, you will find information on what has helped other people cope with symptoms such as yours.

You may also want to try natural antibiotics which are very helpful and can be taken in combination with pharmaceutical antibiotics.

You may also want to post specific questions on some of your symptoms and what this community can recommend to ease the symptoms. There is a wealth of knowledge on this board and everyone here will be more than happy to help you get better. Good luck to you.

Reducing gluten really seemed to help me. Also, reducing sugar and dairy. Some people might say to go to a NO gluten,sugar and dairy diet. It's more difficult to shop at first. And if you.feel cruddy then cooking is probably not what you want. I cook a bunch of vegetables in the oven (broccoli, green beans, carrots) seasoned with sea salt, & any herbs like basil, etc, tossed with olive oil (bake it for 30 min at 400 degrees). After cooling, I divide the veggies up into their own separate biggies and freeze. I sometimes cook and shred chicken & add some to each baggie. Then I can microwave or let thaw then warm up in. skillet. I can't cook everyday, but on a "good" day I do & it is so great to have something easy to throw together. Oh! And I cook a whole package of quinoa & divide & freeze. I'm not sure why I went into such a digression from your question.Good luck, and I never had any side effects from either cycline drug. I drive a convertible with the top down most all year and get a "farmer" tan just like before I got sick, but haven't sunburned from either drug.