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Weigh in on LDN

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Posted 8/25/2013 1:09 PM (GMT 0)
 

My LLMD rec. this for me, he described it as immune-enhancing. We didn't have time to discuss it much. He prescribed 4.5 mg. at 9:00 p.m.

I did not last long because of the nightmares and the insomnia. I had been sleeping fine so I quickly stopped taking it.

I think that the dose may be too high, I weigh about 102lbs.

I wondered what others had experienced...

Thanks for your input!

Good Sunday to you all!

Posted 8/25/2013 9:09 PM (GMT 0)
Hi acharms.
My LLMD is pretty keen on LDN too. I also weigh 102 lbs, so he started me at 2 mg per day and I am supposed to go up to 3 -- eventually!

He warned me that it could interrupt sleep/give me vivid dreams. He said some people choose to take it in the am to minimize these effects. From what I understood, it is "OK" to take it earlier, but at bedtime is best effect.

Since getting sick I have had EPIC dreams (with many nightmares), so I know I'm sensitive to this. I have experimented with taking the LDN at bedtime (very bad sleep) or around 5 pm. If I take it at 5 pm I don't have too much trouble with the sleep dreams. I keep telling myself that I am going to take it at bed (and I have some prescription Sonata to help if need be), but I am still taking it earlier. I am reluctant to use the prescription sleep stuff since my poor liver has been working overtime for a very long time!

Even with taking it at 5 pm, I really think it helps - mostly with my mood. Almost the first day, I felt my attitude improve. I don't think was just psychosomatic, but the effect of the endorphin enhancement.

Overall, I would recommend anyone giving this stuff a try if possible. Other than the sleep stuff, if doesn't seem to have much down-side and might really make a difference!

good luck with your healing journey. It is quite a trip!
Trish
Posted 8/25/2013 9:58 PM (GMT 0)
Hi there, I'm on LDN 4.5 mg. I have vivid dreams but sleep very well. I have to take it at bedtime because it knocks me out. They said some people don't see a true effect for 2-3 months and some people right away. My neurologist prescribed it to me. You may need to lower your dosage. I hope the lower dose works for you.

Also I have noticed a shift...more energy and I believe its a great compliment to my current protocol.
Posted 9/3/2013 1:03 PM (GMT 0)
I have been on it for 2+ years now and I plan to stay on it forever :)

4.5MG is way to high to start. Most start patients on .5MG and work up by .5MG every 4-6 weeks.

Agreed that never go higher than 4.5MG. Although, your body may be happy at a smaller dose. I was on 3.5MG for 1+ years and recently increased to 4.5MG...I am going back to the lower dose as that appears it was "my happy place".

If you have Thyroid issues or are on Thyroid meds, make sure your Doc monitors your bloodwork, as LDN has been shown to aid the thyroid and many have to adjust thyroid medicine doses.

I too use Skip's Pharmacy. He himself uses LDN and is very kind in answering messages.
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