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Lyme Disease
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Posted 9/8/2013 10:20 PM (GMT 0)
I was diagnosed with Lyme back in 2009. For the most part I think I have dealt with my illness quite well and have been seeing a LLD since that time. I did go on to have a good pregnancy in 2011 which I was on amoxicillian and delivered a healthy baby boy.

However, in the last few months I suddenly began having symptoms of shortness of breath and a racing heart. I was diagnosed with anxiety from the ER and my Lyme doctor concurred seeing how I wasn't having any other of my previous Lyme symptoms which were joint pain, burning, tingling and numbness etc. and I was feeling pretty good. However, I had been off antibiotics for a few months. I have been doing Crossfit three times a week since May and doing well with my diet.

about two weeks ago my LLD decided that I should go see a Cardiologist as my heart symptoms are still occuring. Everything really seemed to go down hill for me after that. I had a horrible week as she started me on Cylexa and first night I took it made my "anxiety" 10x worse. So that was a one time deal with that medication. Then I suddenly had a flare with the Lyme. Burning all over. A few days later I found out I was pregnant. I got a hold of my Lyme Doc and she put me back on amoxicillan.

It's with a heavy heart that I am now experiencing a miscarriage. So my question is to those of you suffering from Lyme-the minute we go off antibiotics does it just come right back? I just need a glimmer of hope that I can get my Lyme into remission without it building back up in my body without me knowing or is this just the nature of this disease? Is anyone from Utah here? Thanks in advance for any advice.
Posted 9/8/2013 11:34 PM (GMT 0)
Hi Klynne..so sorry for your troubles. And thanks for sharing your experience. I dont know if and when you can get off the antibiotics. I surely hope so because Im early into the journey. Even with the medicine I notice a myria of ever changing symptoms on a daily basis. Im hoping to switch to amox soon. And there is another person on the board who is currently pregnant with lyme. So Im sure she would appreciate your advice. And so glad you are off the Cylexa. Sounds like a horrible medication. I usually approach the experts with caution !
Posted 9/8/2013 11:41 PM (GMT 0)
Before Lyme I experienced lots of anxiety. Saw a naturopath and she has helped so much. I take stress arrest from designs for health instead of a prescription anxiety med. Also Lavella WS1265, natural lavender oil clinically studied for anxiety. Bach essential flowers has remedies for stress too. I was low on magnesium, iron and had high estrogen-low progesterone that was all adding to anxiety. if you can find a naturopath to help get to the root cause of the anxiety. I didn't want to take a Rx to bandaid it, and so glad I sought out natural ways to help. My progesterone as really low after having a son two years ago, so maybe worth a look at. Thyroid off balance can also cause anxiety. Let me know if you gave any questions.
Posted 9/9/2013 4:15 PM (GMT 0)
Well, I can tell you that if you are having to stay on abx to keep symptoms at bay, then the infection is still active. Does it have to be this way? No. Each of us requires specific parts/areas of our body to be supported as well as needing to clear toxins and kill the bacteria/protozoa that are keeping us ill. The trick is discovering what has been compromised and what has been damaged during the course of the infection(s) and correct that so that the body can go on to heal itself as the bacteria/protozoa levels get reduced.

Please know that Lyme disease can cause miscarriages too. I've had one myself that was "Lyme-induced".

Can you get past these infections? Yes, most everyone can, although no one can ever guarantee that of course. Each of us is very unique and require individualized treatments.

Although due to having had these infections go untreated for 37 years I have some permanent damage, I have been Lyme and Bartonella symptom free for 1 year and 8 months and Babesia symptom free for 8 months now. The other tick-borne infections have gone away sometime during the treatment for the infections that I named above. So I can tell you that healing is possible.
Posted 9/9/2013 8:11 PM (GMT 0)
Traveler thank you so much for the information. I'm feeling defeated since I have been being treated by a Naturopath Dr who I thought was very educated on Lyme. I was referred to her by another lady with Lyme who headed up the Utah Lyme Alliance so I thought I was in good hands.

Now with the heart issues and anxiety and now this latest Lyme flare I feel like I need to seek a different Dr.

So maybe it is possible to go more than a few months off antibiotics and be symptom free. Can I ask if you regularly use herbs while being off the medication?
Posted 9/10/2013 12:06 AM (GMT 0)
I tried treating with abx for 12 months before I ever tried herbs, but it made me so much more ill that I had to quit. I was much worse off after the use of abx. I used only herbs to treat my infections, and while I still take several herbs due to permanent damage and other issues that I have been left with - other than Trazodone that I take for sleep issues and have been weaning off of), I use no other medications that come from a pharmacy.

Many have used herbs successfully to treat, others have combined herbs and pharmaceuticals to treat and have done very well. So the choice really is yours!
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