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Posted 10/3/2013 5:25 AM (GMT 0)
My gosh is there any rhyme or reason for this insomnia??? I go to bed sleepy and then just  lay there with my eyes wide open, listening to my husband snore!! Anybody else suffer from this? My "other" bed is the couch and its awful! sad Also, is low blood pressure or low pulse a symptom of this illness? My bp has been about 90/60 and pulse in upper 40's while resting. Ive had this for awhile but always thought it was from my running, well I'm not doing that to much anymore so that can't be it! Well, to anyone who is up because they can't sleep I hope you finally get some good rest!
Posted 10/3/2013 5:55 AM (GMT 0)
It sounds like you're describing my daughter. She stays up until she can't hardly keep her eyes open. She can be tired and yawning, but can't fall asleep. If she does fall asleep, she wakes up after a couple of hours. Melatonin will sometimes help her sleep quality, but she'll be groggy in the morning.

She also has low BP and a low body temperature and a slow pulse. The doctor's assistant asked if she was alive after he checked her vitals. LOL! I think those would all improve if she could exercise.

I know of some who sleep on a Biomat and it helps. I nap on ours and go to sleep pretty easily. They aren't cheap, though.

I'm sure others more experienced with Lyme will chime in with suggestions. I hope you find a way to sleep better.
Posted 10/3/2013 6:02 AM (GMT 0)
Thanks Garden Peace, what is a biomat? Does your daughter have Lyme?
Posted 10/3/2013 1:35 PM (GMT 0)
lymerunner are you on medication ? I had this symptom before starting tx.
Posted 10/3/2013 3:24 PM (GMT 0)
I tried almost everything and nothing worked. Then my ND put me on Calm PRT and it worked like a miracle pill. It was the rhodiola rosea in it that put me to sleep. Apparently lyme screwed up signaling between my hypothalamus and pituitary glands and that restored it. haha I'm yawning now. The downside was after being on it for 3 weeks I became very ill, vomiting, couldn't eat anything etc. I called the ND and she said to get off of that and not the other medicine I was on. Tricky trick business. So I am sleeping about 4-5 hours a night and it isn't a great sleep but before I was getting 1-2 hours a night and that was horrid.

Others have tried Melatonin, tryptophan, sleepytime tea, ashwaganda, valerian, GABA, benedryl, I tried all of those except the GABA and it didn't work.

Posted 10/3/2013 4:59 PM (GMT 0)
I find it really interesting that so many have tried so many different things for insomnia - a byproduct of these infections - and it takes something different for each of us!

It would seem that it's not only that these infections take something different for each of us to heal, but that even the damage (temporary or permanent) that is done also takes different things for each of us to respond to.

I'm still weaning off of an antidepressant that I was taking for sleep (talk about a long road!), and I'm now coming back into sleep issues again - even though I'm taking other things to help my sleep issues, they don't seem to be the "right" things.
Posted 10/3/2013 6:19 PM (GMT 0)

lymerunner said...
Thanks Garden Peace, what is a biomat? Does your daughter have Lyme?

http://www.biomat.com/ Some sellers offer a trial period. They are hard since all the channels you see running from side to side are filled with amethyst rocks. There are sheep skin covers for them that people use when they sleep on them at night. I haven't done that myself, though.

Yes, she has Lyme and so do I.
Posted 10/3/2013 6:22 PM (GMT 0)
Wish there was some safe pill that would work. I've been on zolpidem for way too long. For the first time, my mail order was two days late and the first night I thought I going to go insane.

I broke down and took some left over clonazepam at 5:00 which I had tapered off of totally two months ago. I fell asleep finally around 6:00 am.

Today the pills came and I'm so relieved. But I feel so upset that I'm so dependent on them

What helped the second night--last night was Tapping. It calmed me down. I only just discovered tapping (EBT) and so often things work in the beginning--kind of like beginners luck and then it stops working.
Posted 10/3/2013 6:22 PM (GMT 0)
Thanks guys for all the suggestions! Never in my whole life have I ever had problems with being able to sleep until I got sick!! I take Tylen PM when it gets really bad but side effects are crappy next day! I have been off my antibiotic for about a week now and Im having symptom flare up of other kinds right now. Maybe thats why insomnia has come back? I heard about Magnolia Bark from Dr Oz for sleep. Has anyone heard or tried this? Scared to take herbs too much with my low bp and pulse
Posted 10/3/2013 9:46 PM (GMT 0)
I also have had the can't fall asleep or can't stay asleep problem for a lo-o-ong time. I take benadryl to help me on those bad nights. If I use a regular adult dose, I drag really bad the next day. I found a childrens chewable Benadryl. If I chew up just a half of the 12mg tablet, it is enough to give me a much better night. I can even take it during the night. I won't take it after about 3-4 a.m. so I'm not to tired the next day. It may take more a dose for some, but the lower dose has been something I am so grateful I accidently discovered.
Tammy50
Posted 10/3/2013 9:49 PM (GMT 0)
lymerunner I was off the abx for about a week and it turned into a relapse not a flare up. I do sometimes take an OTC sleep aid esp when I dont want to be up worrying all night.
Posted 10/4/2013 6:00 AM (GMT 0)
Barngurl, I think that is what it feels like...a relapse. I'm getting symptoms back I havent has since March this yr!!! I went back on my flaygl, just a pinch! That stuuf kicks my butt so I stay on low dose and slowly improve :-)
Posted 10/4/2013 6:06 AM (GMT 0)
I'm up too and have insomnia. Everything hurts and the depression awful. You're not alone. The lyme doc in Boston who I was willing to spend everything on called and said I was fit and fine without seeing me or a visit. I live in Texas. Whatever happened to the Hippocratic oath?
Posted 10/4/2013 6:34 AM (GMT 0)
Sorry to hear about your lack of sleep and the meds you use to help you with that Korissa! I know they help us sleep but the side effects are sometimes worse than insomnia!!
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