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Posted 10/23/2013 8:27 PM (GMT 0)
Hi,

I was wondering if anyone could offer advice please??

I have been suffering from some very odd symptoms since February, and am getting pretty fed up with being told its 'stress' related. To cut a long story short, i was referred to a neuro, who point blank refused to test me! I have had an MRI, various blood tests, and apart from bit d and iron being low, everything has been normal! Admittedly my sx started a few weeks before a big move from Devon to Scotland, a move I was doing on my own with two young children, so yes a lot of stress, but I'm getting no better. I know I was bitten by a tick in the new forest (high epidemic area) in the summer of 2008. I also lived on Dartmoor in Devon (high epidemic area) for 2.5 years, but don't recall a bite, however my dog did have a bout of fleas, and wonder if these could pass them?? Anyway, my sx are as follows:

Dizziness but not true vertigo.
TMJ
Muscle twitches
Muscle cramps
Electric shock sensations
Wet/burning sensations
Vibrating sensations
Gastrointestinal problems
Muscle aches/pains
Zero energy
Tingling in my face, descended to arms and legs.
Burning feet
Stabbing sensation during menstration.
Repeated horizontal nail ridges.

I know being a female at reproductive age, I am prime for something autoimmune. I have just paid for a private Elisa, so will see how that pans out. I was just wondering if anyone had any similar experiences? Also my daughter who is nearly 4 was just diagnosed with autism, I might be clutching at straws, but have read of a possible link?? She also has those ridges in her toenails. I would be really grateful for any advice.

Thanks

Laura
Posted 10/24/2013 5:27 PM (GMT 0)
Hi Laura!
Welcome to our community!! First of all, I am so very sorry for all that you have gone through and for your little girl as well.

Yes! There is a connection with Lyme and Autism for many. There is enough of a percentage of Autistic children being helped by Lyme treatment that I would choose to do the treatments if I had a child with Autism. Many only see an improvement in symptoms, but some actually see healing.

Unfortunately, the ELISA is the worst test to be done for these diseases though. The Western Blot isn't much better as it misses 50% of those that actually have the disease. It also only tests for 4 or 5 of the 300 strains that can be found world wide. We don't have any idea how many of those strains actually cause disease in humans yet - more studies need to be done.

It's quite typical for someone's symptoms to increase or come on and not go away after a stressful situation such as you faced. That's one of the 'hallmarks' of this disease. You also show many of the symptoms of Lyme disease, and these infections can be passed by not only fleas, but any kind of biting fly, sand flies, mites, chiggers, bed bugs and even spiders in some cases.

If you haven't yet, please do read through our "New to Lyme? Start here!" thread as it's packed full of really important information about these diseases and more. Symptoms lists (as Lyme doesn't usually travel alone), detoxing instructions, questions that you can ask any doctor that you are seeking treatment from, helpful pdf's and more.

You might want to check out this website for more information in your area: www.bada-uk.org/

Of course you are encouraged to ask your questions here as well and we can help you with hints and tips that we have learned as we have all gone through treatments!
Posted 10/24/2013 6:08 PM (GMT 0)
Hi burt,

I second everything Trav said! Also, I have the ridges in my nails and I started treatment in march...I would say my nails are 50% better then when they were at their worst. I even joked on here that I needed wall spackle my nails were so screwed up.

I did not see a dr. in Scotland on my list. There are some in Switzerland, the UK.... I would recommend if you can find a good herbalist or naturopathic dr in Scotland maybe?

~beth
Posted 10/25/2013 11:47 AM (GMT 0)
Thank you both so much. My only doubt was the fact that I was bitten so long ago, but after reading the article about bacteria living in your body and then being triggered, all made sense. My husband is a submariner and due to sail next week, so it is probably of no coincidence that my sx have suddenly peaked in the last few days. Is it typical for lyme to move around? It's almost like something is moving around my body, and irritating different parts daily.

I'm going to take the blood test, but not holding my breath. I've also contacted a herbalist/naturopath. I'm going to start the paleo diet, and detox baths. Hopefully my body can then attempt to heal itself. The big question now is trying to find someone to take my concerns about me and my daughter seriously!! It's nice to know I'm not alone in all of this though.

Laura
Posted 10/25/2013 4:48 PM (GMT 0)
Yes, one of the hallmark symptoms of Lyme is that it moves around, sometimes daily, sometimes hourly!! Those 'migrating' issues really are due to activity of the bacteria, but it's likely because of it being in your nervous system, based on the symptoms that you listed above.

And yes, this increase in symptoms is likely due to the increased stress of your husband leaving soon. Try to relax about it, detox and find something fun to do with your daughter that you can look forward to!!
Posted 10/25/2013 4:49 PM (GMT 0)
Yes, one of the hallmark symptoms of Lyme is that it moves around, sometimes daily, sometimes hourly!! Those 'migrating' issues really are due to activity of the bacteria, but it's likely because of it being in your nervous system, based on the symptoms that you listed above.

And yes, this increase in symptoms is likely due to the increased stress of your husband leaving soon. Try to relax about it, detox and find something fun to do with your daughter that you can look forward to!!

We are all in the same 'boat' here, so you are far from being alone!! :-) Although I'm thinking we need a bigger boat!!!
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