Seeking Lyme disease treatment in Southern California

Please advise of competent, knowledgable treatment center or dr to treat Lyme disease in Southern California. (Marina del rey)

Thank you for your response. My 26 yr old daughter has just received a prelimary test result that shows positive for lyme. There are two other parts of the test that will not be completed for another week so we are waiting for those results to confirm. In the spring she was training for a triathalon and thought she might have possibly been bitten by a spider on her upper leg. There were three spots with the one In the middle the largest. Little thought was given to it until later. She competed in a tri at the end of May and was training for a second when she appeared to have an acne problem her jaw line. She went to a dermatologist and was diagnosed with a staph infection. Her health began declining from that point on. She was diagnosed by her kaiser general doctor with another infection and was given four different kinds of antibiotic ove the next several months. She was tested for Lyme through Kaiser but it was negative. pretty much her doctors have tried to give her pills for her "head" since they could not come up with any other diagnosis. She has all the symptoms of Lyme so we researched further and found a naturopath that sent her lab work to Igenx which is what we are waiting on for the completed test results. If this is the diagnosis where in California would be the best treatment? Or where else outside of Calidornia? what are your thoughts on the clinic in Florida that comes up when you search Lyme treatment?

First of all, I too am very sorry to hear about your daughter. I would go nuts if it had been one of my kids instead of me that was so ill!! And thank you so very much for understanding that we are a bit protective of our docs!

There are a few ways to approach finding a LLMD in your area.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, you can start a new thread titled something like:"Looking for LLMD/LLND in the _______ area." Although you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

You can email Stephanie at: [email protected] You can also go to: www.turnthecorner.org/ if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. The ILADS site is another great place to read to get you started on your Lyme journey. www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html

I also have some listings in California as well. If you would like to email me (click on my name or the little blue envelope under my name), I'd be happy to share them!

No matter how you find a LLMD, I hope that your daughter has a smooth healing path!

Hi there,
My daughter sees a great llnd in arroyo grande ca. We saw the nd in San Diego. Not the right fit for my daughter. Email me if you want his name. So sorry to hear about your daughter. But know there is hope once you find the right dr for her. We went to the hansa center as well. It definitely helped and was part of her healing path. But we needed local support as well. I really like the nd we see. There is also I md in Thousand Oaks I have heard is good.
This is a great forum. Great group here
I'm so thankful to you all. ;).

Calilyme,

Do you mind telling me what happened with Dr. M., the ND in San Diego? I can't decide whether to stay with her or not.

Margaret

I am seeing someone in the san diego area. I really really like her, although I am in my first 6 mos. of treatment. I believe there are other specialists closer to the LA area but if you don't get a response post again and I can give you my LLMD's contact info.

-p

I just started treatment with a LLMD in the Malibu area - he was the 2nd one I visited. I have heard great things about him and my first visit was very promising. He only uses ABX, so I am also going the Eastern Medicine/Herb route in addition. What I liked about him is he did not Poo-poo that! He was very open and honest and said he doesn't know anything about herbs and stuff but he seemed to know his stuff in regards to Western Medicine and ABX.

Hi, new to community as well & also seeking competent Lyme Md "detective" ,as Dr H would say, here in SoCal. So sorry to here that your daughter was infected, I feel your pain. My son was diagnosed with ASD @ 3 years old & we're still fighting that battle. He's now 11 & goes to school that costs more than my college tuition. Can't even begin to tally up our medical expences for him over these last 10 years. Now I'm battling this mysterious illness that feels eerily similar to the exhausting battle that I lost countless times with the medical community, school district, etc... We can't beat ourselves up when dr's treatments fail us & those "close" friends abandon us when we need them most. I read recently “In order to succeed you must fail, so that you know what not to do the next time.” ~ Anthony D’Angelo. Such wise, difficult words to absorb when our hearts are breaking, which is how I felt/ still feel, watching my son & all his struggles. Anyway, I too am searching for a Lyme "detective," here in SoCal, preferably an Md that works with conventional & alternative protocols, if anyone has found a great Lyme Md, would love to hear about who. Hope your daughter is doing well & please share or email me if you found someone to help. Take care

The problem with that is that they don't treat complex infections like the ones that occur with Lyme, Bartonella, Babesia, Rock Mountain Spotted Fever, Ehrlichia, Anaplasmosis, and other infections that can be passed from a tick or other insects. These are some of the most complex infections known. That's why we have our own listing of doctors that treat according to ILADS standards.

No offense meant, but while they likely have great success with helping people to detox, they likely have no clue about the real issues with Lyme disease from the little I saw on their website.

thank you for the suggestion though, OCguy.

Hi Gene - welcome!

I edited your post to change the Dr name to initials only.
We do this for their protection.

What is the treatment? (If you're willing to share)

We encourage new members to read through the info in the thread: "New to Lyme?...Start Here!"