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Posted 2/1/2014 10:09 AM (GMT 0)
Hi.  I need some help deciding what to do next, thanks in advance for helping me.  Decision making is no longer a strength for me after dealing with Lyme. 

I have known that I have been sick for thirteen years, in actuality probably longer thinking back - 34 now, realized I was sick around 21.  Had the same issues as everyone, more doctors than I can remember misdiagnosing for years, friends, family didn't believe me.  Then thought to get the Igenex lyme test and came back positive. 

Anyway, I was knocking on heavens door about six months ago, so close to losing consciousness on a daily level, arthritic, manifestations of bell palsy, sweating, brain fog and confusion,etc, etc etc.  Thankfully, I discovered Dr. Buhner's protocol which literally brought me back from death.  Also got a rife machine (BCX Ultra) two months ago that has been helping a lot. Its six months later and I feel so much better, feels like I'm 90 percent better when I look back at where I came from but looking ahead to where I need to be its probably more like 60 percent better.

The problem is, I moved to Thailand from the US and then found out I had lyme disease.  No doctors in Thailand have a clue about lyme, I did most of my own research and found Dr. Buhner's protocol.  Anyway, now I have a chance to move to the States and be treated by a llmd.  I was thinking about moving to Seattle to see Dr Klinghardt but I have read some negative things about him.  The thing is, even though I am getting better everyday using Dr Buhner's protocol, I just keep having a nagging feeling that I need a Doctor to overcome this completely, maybe its my self doubt of being able to treat myself all the way to a negative test result.  I also don't really want to stop doing the Buhner protocol since its working, I am nervous that if I stop this protocol and switch to Dr. K's protocol that I would have a reaction or it wouldn't work as well.  At the same time, I also have doubts that the Buhner protocol, without professional help, would be able to heal me completely - even though I am getting better weekly.  Moving would also come close to financially breaking me, but its much more difficult (not impossible) to get bloodwork sent to the US for progress reports.  Also, no infrared saunas, ionic foot baths or other high tech type remedies to help with the process here.  Moving is no easy thing for me either right now, I would have two dogs to bring and to find a place and all kinds of drama.  I would rather not move if I don't have to, but will do anything to get on the final path to getting cured, regardless of my financial state.  I just don't want to make the wrong decision.

I guess my question is, do you guys think that if I could get professional help in the States with lyme literate Doc's that I should do it?  And if so is Dr K worth the money? Or should I stay here in Thailand and continue to treat myself with the Buhner protocol until I hit a peak or get cured - then if I hit a plateau, move at that time?  I just don't want to waste anymore time, I spent so much of my life sick that I don't want to waste another second going down a path that will stall in time.  I want to be on the "final" path to wellness.  Please help me, my decision making skills have not been top notch in the last years here and I don't want to make another mistake that will financially decimate me.  Thanks guys :)

All my love and hope to anybody else afflicted with this horrible dis-ease. 

Posted 2/1/2014 2:24 PM (GMT 0)
Oh, wow, Tim,

My heart goes out to you. It is a terrible paradox that we need to be able to make decisions to get our treatment, and yet the disease takes away that very ability!

From my experience, even simple travel sets me back so much. An international move on top of that would be a huge set back. And then the financial stress on top of that -- whew, recipe for disaster.

If you are doing well on the Buhner protocol, perhaps it would be best to hold the course. While I can truly understand wanting to get well as quickly as possible, low and slow is the considered by many to be the best approach.

Perhaps you could put out the feelers for a doctor there in Thailand who is interested in "exotic" (!) diseases. I know Buhner's suggestions for herbs to treat Babesia are used in other countries to treat Malaria. The doctors there must have experience with syphilis and tuberculosis: the treatment for those diseases is similar to Lyme. Who knows, they may have a very good idea of how to combat the Borelia bacteria, they just don't know it yet!

Perhaps you could make use of the traditional medicine there to help with your supportive therapies; acupuncture, massage, immune support.

There are also some Lyme doctors who will do phone consultations. I have no clue if they are successful or how the prescriptions would work in that case.

So, given the information you have provided, I vote for you to stay in Thailand and gather some strength. That would give you time to plan your move and change of treatment in such a way that it would cause you the least disruption and stress.
Posted 2/1/2014 6:05 PM (GMT 0)
I wish you all the best in whatever decision you make. It sounds like you are a real advocate for your health and have done a great deal to support yourself getting well. Good for you! I went to Dr K's clinic outside of Seattle within the last year and it was NOT a good experience at all. It was hugely expensive and from my perspective not at all worth the time or money. I found huge areas of unprofessionalism, bordering on very questionable practices. If you would like more specific information, feel free to email me.

I also realize that each of us has different experiences based on our own needs and situations. I have to say that I personally feel that Dr. K and his staff have strong knowledge about lyme but from my experience (and legal documents that are available on the web), I have significant concerns about the level of professionalism that was not there for me as it relates to his practice and the people who are working with him at the clinic.

The best to you in whatever you decide.
Posted 2/1/2014 7:37 PM (GMT 0)
I would hold the course, but get an LLMD or LLND, or both, to help you as you proceed.

Margaret
Posted 2/1/2014 7:55 PM (GMT 0)
If I was in your circumstances I would wait until I am not progressing anymore. You may or may not have heavy metal toxicity, mold toxicity, or a number of other issues you currently don't know about and for which you may need a doctor to diagnose you and treat you. It is very hard to address everything at once so I would say until you hit the wall stay put. See if you are a little bit more stable then so that you don't set yourself back by the move and the strain on your finances. Please do take this with a grain of salt because I don't know you and don't fully know your circumstances. Good luck in your decision!
Posted 2/1/2014 11:16 PM (GMT 0)
Hi Tim,
Have you considered contacting Buhner's associate to see if she would be willing to help you online, maybe via Skype or something?

I would also encourage you to stay the course. Usually once we find something that is going to work for us, it's best to stick with it.
Posted 2/2/2014 1:07 AM (GMT 0)
Tim just want to put my 2 cents in. Stick with Buhner protocol…... but Buhner stresses that as you go along the protocol needs to be tweaked for each individual set of symptoms. I think the very best thing to do is what Traveler suggests get a consultation from Julie, Buhners partner. She does Skype and phone and also gives some email support for the month after the consultation. Its $150 for initial consultation Next to Buhner she is the one most familiar with his protocol plus she puts her own spin on it. Let me know if you want her website link. Thats how you set it up initially.
Posted 2/2/2014 9:16 AM (GMT 0)
Thank you so much Grace, Kathleen, Teragram, Lymebabe, Traveler and JM65 :) I appreciate your replies very much. Its nice to hear the voice of reason amongst the sporadic herx panic in my mind.

I'm thinking I should stay the course until i get more physically and financially better, then reassess my situation at a later date. Will also get in touch with Julie and see if she can help. I had contacted her once months ago but had a traumatic unrelated situation happen to me around that time and never got back to her.

Thank you all so much. Much love and healing to you all :) Its so nice to know that even though most of the world is in the dark over this, we are all willing to help shine the light for each other. Thank you :)
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