HealingWell
Search Close Search
☰

Just Doubting the LLMD's

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 2/4/2014 4:56 AM (GMT 0)
I am thinking that the LLMD's might be crooks who just dreamt up a scheme to help desparate sick people. What if all the Igenex tests are always positive?

I am not saying this to make anyone angry I just wonder why the big conspiracy thing. It is like a suspense movie. Why would a caring PCP not want to do their best to treat a sick patient who might have LD?
Posted 2/4/2014 5:34 AM (GMT 0)
I think the just of it is no one wants to admit they're wrong. And I don't think many of them really care to research about the different cases they see. They're glad to pass you to someone else.

I think there's a little politics in there too from the CDC side. Can you imagine the repercussions to the medical industry if it comes out that MS, Parkinson's, ALS, Rheumatoid Arthritis, Fibromyalgia, Chronic Fatigue, the list goes on, are really treated by abx....that's billions of dollars of wasted pharmaceuticals, medical specialty degrees, ... right there.
Posted 2/4/2014 5:43 AM (GMT 0)
I don't doubt the LLMD's but I do think you can have a PCP who is informed and wants to help you get better. My doctor is really up on Lyme and has treated me with care, compassion, and good medical treatment. He is also very open to me using alternative medicine to compliment the antibiotics he is prescribing. He's been honest about how it will get worse before it gets better and that there is no quick fix.

I consider myself lucky because of all I have read and heard about online. He has been my doctor for 13 years now and I feel like I am in good hands. If that opinion changes, I would seek help from an LLMD.
Posted 2/4/2014 12:21 PM (GMT 0)
Not all llmd's are equal. The one is saw in Nov insisted I was 'only' depressed, that if I took Celexa ALL my SYMPTOMS would GO AWAY, and that was with a positive 6 strand IGeneX test.

I sent this office a letter stating the office personnel should have informed me via my first phone call that the dr does NOT accept positive IGeneX tests. I would have NEVER made the appt. I asked for my $550.00 back, as I feel NOT disclosing this is bate and switch. I haven't heard from them yet.

Do your homwork, ask people, and don't give up. I see a llnd today at 11 am. I am praying today I start on my road to recovery.

Good luck to you and all of us.
Posted 2/4/2014 1:24 PM (GMT 0)
I had a positive western blot through the crappy local hospital here and then again through labcorps. I'm sure some LLMDs are crooks and probably not real LLMDs. I've tried to convince myself this disease didn't exsist because it was easier than facing the horror that my 6 kids likely have it, from me, and that there's no real "fix" without walking through likely years of more hell. With that said chronic lyme exsists and thank god some of the medical community wants to learn about it and help people. From the nations blood supply, to saving face.... There are so many reasons to cover this up. However I don't think it will be long before it just can't be gaffed off anymore. It's too big a problem and affecting women, children, and men. It's not just a womens issue which often gets less attention at first. This disease isn't picky, presidents, movie stars, Olympic athletes, and next door neighbors, nurses, school teachers, park rangers, you name it! It's in the process of gaining recognition. I feel it's gaining momentum, soon everyone will know it's not in our heads we are really really sick, and hey maybe their grandmas dementia wasn't dementia at all.

Post Edited (Maine76) : 2/4/2014 6:31:04 AM (GMT-7)

Posted 2/5/2014 6:09 AM (GMT 0)
not all Igenex are positive. My son's was negative, but with an IND on band 39 and 41 ++. But yet he has soooo many symptoms of lyme, so many. It is really, really, seeming like he has lyme, even with the negative test.
Posted 2/6/2014 2:17 AM (GMT 0)
I am glad I went to an LLMD. I discovered I had rock bottom low vitD which I would have never found out otherwise. I also have heavy metal toxicity which how do you know without a lab test? Then they did allergy tests and I came up allergic to almonds, nutritional yeast (which is in EVERYTHING!), and candida. Was able to change my diet and improved some because of it. I would always recommend seeing a doctor.
Posted 2/6/2014 2:22 AM (GMT 0)
My primary care doc found my vitamin D was super low too. Seems so many of us with Lyme have low D or maybe everyone does. I now know of a few friends who had low D as well. I had to laugh because they also ran a test to check for viper venom antibodies. Now I know I might not remember getting bitten by a tick but I am pretty sure I would recall a viper bite!
Posted 2/6/2014 7:29 PM (GMT 0)
Remember Nor Cal we are supposed to be all crazy because this disease supposedly does not exist. So why not try a viper?
Posted 2/12/2014 5:19 PM (GMT 0)
I do think the also sometimes. I think when you go through so many Dr's you automatically want to question your LLMD. I still question her motives at every visit because it is $600 out of pocket every two months for me and my daughter. But my daughter who is 4 has come a long way so I know it's working. You just have to think "is this working for me?'' "Am I seeing improvement?" If the answer is yes then you are on the right track.
✚ New Topic ✚ Reply