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Lyme Disease
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Posted 2/9/2014 3:51 PM (GMT 0)
Oh the struggles are so real! There's a guy who has been asking me to go out several times now and I kept turning him down due to how I feel. Well, yesterday I had a smidge of energy and didn't want him to think I didn't want to see him because if I was in my right frame of mind/feeling/etc. I would have been out with him a while ago. We went to a sporting event where we got to talk and get to know each other better and all we did was sit at the venue & have a car ride. He kind of knows about my Lyme and I got to explain it more so that was nice and he was very understanding.

The thing is I wake up this morning and I feel like I drank 10 beers worst hang over ever and then I was hit by a semi. Keep in mind all I had was pizza and water no alcohol involved. Does anyone else ever get like this? I hate that I can't even do normal things anymore & when I do this is what the result is...I'll be in bed all day now.

#thestruggleisreal
Posted 2/9/2014 7:01 PM (GMT 0)
Sorry to hear your not feeling well, hopefully it will pass soon. I have days like that and all you can do is lay around. I cheat once in awhile and eat gluten but never really feel any different but some people get severe reactions to gluten.

You are young still and have a life to live, hopefully you get to feeling better soon. I feel like I had my 40s taken away, I've been suffering for 15 yrs and will be 53 in a few days. I fought thru all of it since I was active and still made myself on the days I could get exercise.

Why are you not on any meds for Lyme? I would find a doctor or herbalist, I took the Ayervedic medicine route for years but must of not killed anything, I just felt 90% better but when I quit all the symptoms started returning and then some.

Good luck with your new beau, if he is a good one he won't care about your illness. Hope you feel better soon.
Posted 2/9/2014 8:09 PM (GMT 0)
Thanks for your encouragement, Revive. I'm sorry for all of the suffering you have gone through & I kind of feel the same about gluten I can't really if it has an impact on me or not.

I was able to take 28 days of doxy per my request after seeing a neurologist (no lesions on brain with MRI). My Lyme test came back abnormal with a few positive bands. After all the research I have done I requested to be put on it to see if it would give me any type of improvement (that was back in November). I will say it did help improve my fatigue a lot but of course after the 28 days I started feeling bad again. I received a LLMD rec on here and am going to see them this Wednesday. The snow storm in my part of the US two weeks ago forced me to reschedule an appointment I'd been waiting on for almost three months. I'm hoping I will be able to officially be diagnosed and start a treatment plan. Overall my attitude is well but physically my body is just falling apart as you all can relate it's just so frustrating!
Posted 2/9/2014 9:07 PM (GMT 0)
Hello, I am new on here, but not new to this journey. I feel the same about gluten, but what caught my attention in your post was that you went to a sporting event. Yes you sat, but where you sat had a lot of stimulation from what it sounds like. Just the anticipation of the date, getting dressed up, and feeling excited about getting to act like you are normal is way more energy than our bodies are accustomed. Then you compound that with the stimulation of the modern world and the nervous system goes into "glitch mode" ....that is what I call it. I avoid any place where there is too much noise or activity around me or it will affect me greatly. I went to a wedding last night. Same story, I rested all day so I could go, was excited to be in a dress instead of sweats with my sweetie, and I got there and even the wedding was too much stimulation. I had to leave early and was in bed by 8:30. Today, I can't knit, which is my gauge for whether my nervous system is working or not, so I am pretty much surrendering to the couch today and quite possibly tomorrow. Sometimes we try to reach outside ourselves for the answer, but if you ask your body what it didn't like about last night it will tell you.
Posted 2/9/2014 9:13 PM (GMT 0)
Ginger I see your symptoms in the your signature and mine match exactly! I have a lot of slurring and word loss as well. And jaw and neck burning.
Posted 2/9/2014 11:24 PM (GMT 0)
alohajen-"feeling excited about getting to act like you are normal is way more energy than our bodies are accustomed" This is so right!! I miss the days where I didn't have to think about how I felt, could do what I wanted & where I could just be and not worry about when the symptoms would creep up on me. I know it will come back to me again I just have to be patient.

Bella Rosso-Hi! It looks like you caught your Lyme early if I'm looking at your signature right. How have you been feeling since you started taking medication?
Posted 2/10/2014 9:05 AM (GMT 0)
I'm totally with Alohajen...

I avoid places with bright/flickering light, music, movement, smells. It's just too much. No alcohol, but it feels like a huge hangover.

Whenever I'm preparing to go to a social event (rarely), the dressing up already consumes all of my energy. After 5-10 minutes I start getting very aggitated, just out of the shower, fresh clothes, nice hairdo, then I start sweating like a pig, need to undress again to cool down - put my hairdryer on (cold, not warm) to cool down and make my head stop sweating.

Last year, I got myself ready at a friend's house, together with some other friends; They looked at me as if they were seeing an alien. They said they never saw something like that. I think that the people that were present then saw with their own eyes in what bad shape I'm in.

If the event is not that far from home, we take both cars, then I can get back home when it's starting to get too much.

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