Igenex interpretation--trying to understand severity of infection.

I've seen an LLMD in Mississippi, who stated that I have Lyme, but didn't seem blown away by severity of infection based on results. He also didn't really expand upon IND, if I need to be retested/etc. He was rushed, to write the least.

We moved to a different state right after diagnosis, and I saw a nurse practitioner here who is iffy about this even being Lyme? She wanted me to have a C3A and C4A, among many other tests. I found a well-respected LLMD, and I am seeing him in a month.

Any thoughts are welcome. Thank you for the taking the time to help me. Also, I was CDC negative, Igenex positive on both.



Any bands not noted were negative.

IGM Result
18 kDa +
**23-25 kDa IND
**31 kDa +
**39 kDa IND
**41 kDa +
**83-93 kDa IND

IGG Result
**23-25 kDa +
**39 kDa IND
**41 kDa +++

My IFA B Burgdorferi test was 40

Thanks John.

This nurse practitioner was really rude (she is apparently their 'Lyme person') at this clinic, and she started off the meeting by saying, 'We do NOT do IVs, we do NOT do this, we don't do THAT.' It was crazy.

I just hope that I find someone whom I can trust.

Hi Greany,
Your test results won't tell anyone about the severity of the infection, it's the severity of your symptoms and the extent of your symptoms that does that. But, because you tested positive for so many of the Lyme specific bands, what it does say is that you were likely infected with "Bb sensu stricto" - the strain of Lyme that the test was designed to pick up on.

IND means "Indeterminate", meaning that there was something there, but not enough to turn it fully positive.

And I sooo agree with JohnRed on being forceful!! You have to become your own health advocate - be sure that you get the best possible treatments - no matter what others think of you!!

JohnRed,
It's not that Lyme is uncommon in Georgia, it's that it's uncommon to get a diagnosis because the docs won't give one, as you've found out. That's the way it is here in Arkansas as well.

I did want to mention that I have referrals for Georgia if you are interested. Of course I have no way of knowing if you've already received these and rejected them - but I'd be willing to share the names if you wish. Just send me an email.

Got it and answered. Let me know if you don't get it. I do hope it helps!

Hi Greany1979. I wonder if you'd please email me by clicking on the envelope under my forum name and tell me who and where the LLMD is in Mississippi that you saw. I may be changing soon.

Thanks!