Dear lord this is frustrating

My heart goes out to everyone who has dealt with this 5+ years. I've only been dealing with this 8 months and I'm already losing my mind over the lack of competency or even acknowledgement regarding lyme and it's widespread location. It still remains to be seen whether or not I truly do have lyme or coinfections but until an LLMD (which I'm hoping to see in the next month or two) says absolutely not and I've run an IGeneX test, I'm not taking no for an answer. You keep hearing that it's psychological that you start second guessing your own sanity. Everything I've dealt with is just too similar to the story everyone else has told. I don't want to be one of those people who has chronic lyme 2 years from now.

If in fact I do have lyme or co and get it treated, I'm young enough that I'm almost tempted to go back to college and get another degree so I can open up my own practice as an LLMD. I already know more than 75% of the doctors I've seen so I'm already ahead of the curve. There's certainly a market for it given the hundreds, if not thousands of people who are undiagnosed.

Post Edited (mattyb429) : 3/11/2014 4:13:46 PM (GMT-6)

I hope you do get an answer soon and that you can getter better from the right treatments for you. That's thoughtful of you to think about going back to school to become a LLMD so you will be a better one after going through Lyme. Your practice would grow fast once the word got out that you had it and understand what many go through.

sknight said...
Quote: ".....There's certainly a market for it given the hundreds, if not thousands of people who are undiagnosed...."

I think it's more like HUNDREDS of thousands. :(

That's the sad truth. This petition to change the guidelines has probably been posted dozens of times on this forum but I still think it's worth looking at if anyone has not signed it.

www.change.org/petitions/the-u-s-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf

I signed it last week. :)

Whats your locale mattyb..? Possibly someone here can direct you to someone that could help.

Hey man as soon as you get the abx you should start to feel better. You can go to a walk in treatment and tell them you were bit to get a short term course of abx to hold you over until you get help. Or hang in here if you are going to wait it out.

Barngurl how much omnicef per day do you take, my doc has me on 1200mg, plus Zithromax at 500 mg, also how are you pulsing it?

Matty I am so glad you are even considering Lyme, wish I would of 15 yrs ago. I guess I was checked but of course it was thru labcorp and was negative. If I was younger I would also consider being a LLMD.
Good luck with your treatment, hope it doesn't take long.

Post Edited (Revive) : 3/11/2014 8:39:56 PM (GMT-6)

It is noble of you to want to become a LLMD to fight this illness. Dr. David Jernigan, Dr. Burrascano and even my LLMD got into Lyme because they themselves got infected. I guess this is how we got into it too.

It would help to find a cure if more money was made available by the government to fund clinical research the way AIDS has been funded.

I was on 3000mg a day of amox.

Mattyb429: I am in Florida too. It's a big state but I would be willing to drive. Is your LLMD good? The best I could find is not so great.. He is the only one willing to treat me, but I don't really feel comfortable with him. I'd love to hear about your experience with your doc. It's hard to find a good doc in FL, let alone a good LLMD.

mattyb the doxy is enough to send the bacteria in hiding but not to kill it. Also may depend on any coinfections you have. Some abx work for one type others do not etc. I was very sick with late stage Lyme and I showed improvement immediately with 200 mg doxy. It didnt halt the disease but did improve some symptoms. Hope you feel better soon.