I have a diffuse lesion on my brain as well as every symptom from the MS society webpage plus several more for good measure. I was told by my first neuro that I definitely had MS. I went to the Cleveland Clinic and saw their expert. She had me do a lumbar puncture. She said I didn’t have MS. In February my eye doc diagnosed me with optic neuritis which is most common with people who have MS. I then saw another MS expert and she also agreed I don’t have MS. My eye doc disagrees and wants me to see HIS MS expert… So yeah it’s a pain for sure. I do have a positive IgeneX test so I’m going with Lyme since no one can convince me otherwise. I too am scared that treating one thing might make the other worse if I guess wrong, but what else can I do? I have an appt with another LLMD on Monday. Fingers crossed he is better than the last one.
Just try to hang in there and ask questions here. I am so thankful I found this forum. I would be complexly lost otherwise.