LLMD question

cant find a llmd near eastern SD.  I know there has to be one in Mn or WI.  Prefereably in Mn.  I went and saw an ID doctor.  She said that there are basically two forms of lymes. One affects more physically and one more neuro.  I have the neuro kind.  Weak legs, brain fog, dizzy etc.  I was originally put on doxy for 6 wks with some improvements but not much.  She said doxy doesn't get into spinal area or brain area.  I took iv rocephin for 8 wks.  Slowly felt a bit better with time.  She said rocephin does enter spinal and brain area and I should be over it.  That I now have Post lymes syndrome now that Ive been off meds for 3 wks.  I feel terrible..brain is spinning.  don't know what to do...no one has any idea what to say to help.  I have gotten no help finding a LLMD near me.  Can any please give info on a llmd near eastern SD?

hi Verg,

other ways to find a dr.
is in the "new to lyme" thread of this forum (I'm pretty sure) and also

before I came here I was on mdjunction website lyme page and they helped me too with Dr. names.

and, I have some info on WI Dr.s that I can email you if your email is available. I'll check in a bit.

I've heard there are some lyme literate Dr.s in MN, so that of course, would be closer, but I don't know their names, sorry.

As far as the "post lyme syndrome", well, maybe you know this, but there are two schools of thought on this. One (from the Infectious Disease Society of America) that says what she said "the abx have done their job, and now your body is having an autoimmune reaction to the infection you had. So sorry, but this is your new normal. Have a nice day." ugh!!!

And, then the (correct) school of thought, promoted by Doctors who eat, sleep, and breathe lyme research and treat patients with success (these are Dr's who are ILADS members or think like them)…and they say…that there is evidence that the lyme bacteria for various reasons takes longer to treat, usually much longer than the 3-6 weeks you were on antibiotics. So, keep treating!

A very good book, if you have the time-it's well worth it, on the subject is "Cure Unknown" by Pamela Weintraub. I'm learning so much from this book, as well as from others here and elsewhere.

Anyway, I'm glad that you're here looking for help to find a better doctor. I'm sure others will come along and give you advice too. I'll see if I can get you the WI dr. names I know of.

I fixed my email so you should be able to check it. Thank you for your efforts!!