Ready to Give Up

I don't want to be the downer, but I'm just done with this. I do not know what is going on. I've been treating for about 7 months, and thought around January that I was making a little progress. I was getting out a little more, and even started driving short distances in February. I was on 3 abx. We stopped the Bactrim, and went to HH, and it seems like everything just went downhill.

For 3 weeks I didn't know if I was herxing or just getting worse, so we stopped the HH, and I was put back on the Bactrim. I cannot tell what is going on. Some of my earlier symptoms like insomnia and heart palpitations have really improved, overall, but my balance/vertigo/dizziness is worse. I can't carry my son up too steep a flight of steps, for example, because my body gets all disoriented, and everything is moving and wavy. I stopped driving again.

My doc gave me a script for valium which she said might help with that, but I don't want to take it. I am getting scared that I'll never get better. I don't know if the abx have stopped working, or if I'm just peeling off more layers. I also have random pains now that I never had. I can live with that- but the dizziness has me on the verge of praying to go to sleep and never wake up again. A year like this- and no breaks. Maybe since the other symptoms improved it means I need a better detox regimen? Maybe it is just neurotoxins gone wild with die-off? Or maybe I'm just witnessing the progression of this disease. But really? Could it seriously progress that badly when I've been on 3 abx for almost 6 months?

Biaxin, Bactrim, and Ceftin. All 3 together for probably... 4 or 5 months?

Hi, ToddPaul.

Yep. She said I have Bartonella and Babesia. We talked about adding a cyst-buster next, and I think eventually Mepron. (not sure in what order or in what combo). But I have been wondering...maybe the Biaxin and the Bactrim really knocked out the Bartonella, hence the improved anxiety, palpitations, and insomnia. Maybe now it has allowed the Babesia to just sort of take over?

I just want to know that I am getting better. If we need to go after Babesia, then I'm ready. I am trying to be thankful that some of the other symptoms have gotten better, because they were pretty awful, too.

It can't be like this forever, right?

I have a little boy who needs me.

Thanks, ToddPaul.

It's so nice hearing from someone who understands all this stuff.

Thanks, opugirl.

I really appreciate that! It is interesting hearing about your personal experiences with things that worked, or stopped working.

I have considered changing doctors, but I really feel like the one I see now knows her stuff. I think I might see how it goes with the next regimen with her, and if I'm still sliding come summer, then I'll start looking. Maybe you wouldn't mind emailing me a few other docs in our area? It would be great finding someone who takes insurance, too.

I'm so glad you have been doing better! Great news. Only vitamins!

Binduspire, I had the same problem that you are having with balance/vertigo/dizziness. What I learned was that as I got worse (before treatment) my brain, in order to compensate for the illness, was adjusting my gait and balance which basically meant that I was learning to walk again. As I treated my illness, the infection lessened the effects it had on balance. So now, my brain had to adjust once more on how to walk "normal" once again. I don't know if that makes sense but basically I had to learn to walk twice (or three times if you count when I was a baby).

The same thing happens with vision. People who are affected by Lyme learn to compensate double vision, contrast issues, etc, etc. When the infection is treated, we have to get new prescription glasses and learn to adjust our vision again.

So next time that you feel worse, think about what your body is going through and if it readjusting.

Don't give up! You need to treat Lyme and it's co-infections from 3 different perspectives.

1. The bacteria that are reproducing by cell division can be killed with Minocycline + Tindamax taken together. Both these can cross the Blood Brain Barrier to get to them. One of each, taken together every other day according to the info in Dr. Eva Sapi's work on how Borrelia reacts to different abx's and several different very successful Doctors. The Marshal Protocol has adapted the pulsed Mino/Tind, also.
2. The cyst form of Borrelia will also be killed by the Tindamax but it takes two weeks for it to get to them so be prepared for a good herx about the third day and the 15th day.
3. You also need to get to the ones who aren't reproducing (which is when the abx's kill them). To do this you need to also take Pinella or Wild Cherry Bark Extract drops in some herbal tea or 100% Black Cherry Juice. Expect a herx from the Black Cherry Juice! (Gotta be from Black Cherries as the Red Cherries don't have the anti-bacterial properties the black ones do.)

For Babesia you need to add Artesiminin. Expect a herx from this too. Start easy and work up to times a day BUT stop after 3 weeks and take a full week off of Art because your stomach will start to make an enzyme to neutralize it. After a week off, stomach will stop making the enzyme and you can start another 3 weeks again. Since Babs lives in your red blood cells and you make 20 Billion new red blood cells every day, that means 20 Billion are dying, possibly releasing Babs when they do, if they were infected.

Tri-Biotics has a nice combo of Artesiminin, Berberine, Citrus Seed Extract, and Black Walnut Hulls. All these are anti-bacterial. Borrelia, Babs and Bart have no defense against them but they work slowly, that is why you need to do the pulsed Mino/Tind to begin with for a few weeks.

I'm not a doctor but I cured myself like this in 2010 (almost died) and in 2012 when I was re-bitten and no symptoms since!

Good luck and keep the faith.

binduspire, I am sorry you are having the problem with dizziness. I myself have not have this problem yet. I can tell you from experience tho, that valium is not the answer. it will mask your lyme disease symptoms, is addictive, and in time taking it you will become tolerant, and will need more and more.

I was given benzodiazepines 20 yrs ago, told I had an anxiety disorder when my lyme symptoms first started, then that morphed into polydrugging. I became sicker and sicker until now I can hardly get around. I found out 7 months ago I have had lyme disease all this time. there are other drugs available for dizziness one being antivert. I am surprised your doctor did not order this. I am amazed how many doctors use benzos for anything. so many people like me become accidental addicts. I spent 1 yr in withdrawal getting off klonipin, a slow titration. I am still in withdrawal. I was very sick then I realized that I was indeed physically ill. thus found out I had lyme.