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Extreme Muscle Fatigue

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Lyme Disease
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Posted 4/10/2014 4:44 PM (GMT 0)
I was diagnosed with Lyme Disease in the Fall of 2013, but have probably had it since the fall of 2012 when the symptoms (joint pain, back and neck aches, headache) first started. This fall I was treated with Doxy for 2 months, and now my LLMD has me on Clindamycin and Rifampin. My lingering symptom is extreme muscle fatigue...I can walk short distances...type, hold my camera, do household tasks for a bit before the shaking and fatigue starts. I find driving difficult for the same reasons. I find baths ( with Epsom salts) to be exhausting...the heat seems to make things worse. I take a probiotic, a good quality vitamin, and eat well. I have been gluten free since this started. A rheumatologist suggested I have a connective tissue disorder. They have ruled out MS with several MRI's.
Has anyone else experienced this debilitating symptom and how have you been treated. Thanks in advance.
Posted 4/10/2014 5:03 PM (GMT 0)
Weak and heavy feeling muscles is common with Lyme and Co's. I attributed my weak thigh muscles and heavy arms to Babs. Short walks on flat ground was OK but climbing stairs was a challenge. It has gotten much better lately but remains one of my lingering symptoms.

Most Rheumys don't have a clue when it comes to lyme.

It will take time, but it will resolve with treatment. There is no magic ABX combo to fix it. Have you treated for Babs yet?
Posted 4/10/2014 5:09 PM (GMT 0)
Thank you for answering. I don't know if I have Babs...my doctor is going by the standard ELISA test and Western Blot. She didn't want to use Igenex labs in order to keep my treatment costs down. She did tell me that this was a long and that I would probably be on antibiotics for 6 months...
Posted 4/10/2014 5:55 PM (GMT 0)
Bugsy, it is very likely that your infection has affected your endocrine system. You may want to have your doctor run blood tests for ANTI-TPO, have your levels checked for FT3, FT4, Vitamin D3, Vitamin B12, Iron, as well as TSH and ACTH.

I suffer from the same thing that you described. If you want to take natural herbs, Gaia makes an adrenal support and thyroid support products that work well. There are similar products by other manufacturers.

You may also want to go to Amazon, search for gaia adrenal support or thyroid support and read the reviews of people who are consuming the product to see what their symptoms were and you will see that the people reviewing the product had similar issues as you and me.

Your doctor may also prescribe Armour for thyroid support. This is also a great thing to take and will bring quick results once you find the right dosage.

Hope this helps you get to the bottom of it.
Posted 4/10/2014 6:15 PM (GMT 0)
HealingWell
Thanks for those recommendations on blood tests. I am going to MD in a week and will ask to include those.

Bugsy WI
So sorry you are feeling lousy. I have read that the spirochetes hate the warmth, therefore, you are rocking their world when you take hot baths! (That is a good thing)
I have also read that an infrared sauna is good for the "humans vs. spirochete battle". Don't know if you have access to one or not, but maybe when you build up your strength, which you will, you can explore that option. I am looking into that now - a local gym has one and I am going to see how much it would cost to just use that.
I also suffer from weakness of the arms and legs. Blow drying my hair is such a challenge!
Good luck 😃
Posted 4/10/2014 6:22 PM (GMT 0)
Thank you all for your suggestions!
Posted 4/10/2014 8:48 PM (GMT 0)
BugsyWI, I was diagnosed dec 2012. Most of my symptoms have been neuro and muscular. When I first started tx, I could barely walk the length of the yard because the muscle fatigue and shaking was so bad. Muscle fatigue still lingers but now I can walk long distances and even run a mile on a good day. It does get better! Do you take mg?
Posted 4/10/2014 8:56 PM (GMT 0)
I am new to these forums...what is tx...I'm guessing treatment? I do not take mg, do you feel it was helpful? I'm so glad you responded, it is nice to see someone who is doing better. Thank you for your response.
Posted 4/11/2014 3:15 AM (GMT 0)
hey I have really bad muscle fatigue. I have been basically in bed for 2 yrs and I am weak from that. I do simple tasks round the house, can walk pretty long, but I can't do heavy work or anything like that yet or exercise like I used too, lift weights, and swim, ride my horse. I will be so glad when I get my strength back.
Posted 4/14/2014 5:43 AM (GMT 0)
BugsyWI, sorry about the abbreviations!! I'm a nurse, so I do that sometimes without thinking! Yes I meant treatment, and if your not on magnesium, you might want to talk with your LLMD. I have found it to really help muscle fatigue, twitches, and pain. :-)
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