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Question for gluetn free people.

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Lyme Disease
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Posted 5/22/2014 3:56 AM (GMT 0)
I know everyone is different but I am curious to know what sort of reaction people have to gluten when they have been off of it for a while. Particularly when it is a very small amount. Example, one bit worth or less.
Posted 5/22/2014 4:06 AM (GMT 0)
I reduced gluten and all grains about a year ago (but ate it every now and then). In Jan '14 when my GI problems got really bad, which was at the time I also started treatment I went completely gluten, grain, dairy, sugar, and caffeine-free. A couple of times I had to eat what was in front of me, which contained gluten for sure and my gas, bloating, pressure, and cramping symptoms returned (in stomach and sometimes in upper/lower GI. Hope that helps -

-p

Post Edited (Pirouette) : 5/21/2014 10:24:20 PM (GMT-6)

Posted 5/22/2014 4:17 AM (GMT 0)
I have not had gluten in a little over 4 years, however, my sis has been gluten free for 2 years - a few weeks ago she ate a little ( wheat ) pasta at a family gathering and had terrible pains and cramping ..

She stopped gluten 2 years ago not for serious medical reasons, but just to be healthier ... so when she ate a little bit a few weeks ago, she reacted much stronger than she ever did prior to stopping ..
Posted 5/22/2014 4:58 AM (GMT 0)
Diarrhea.

Margaret
Posted 5/22/2014 9:00 AM (GMT 0)
I get dizzy and off balance. Almost like I've been poisoned.
Posted 5/22/2014 3:14 PM (GMT 0)
I have been gluten free for half a year. If by accident I eat any gluten (as in a supplement, in soup, etc) I get extreme anxiety, my heart starts racing, I get chest pains, start burping like crazy, my stomach starts growling, and my digestive system begins to empty quickly, such as solid waste every 5-10 minutes, then watery diarrhea every minute until my body expels what I ate.

let me tell you, there are few things worse than having extreme anxiety, a racing heart while sitting in the toilet with the runs. As soon as I get up and take a step, I need to run back to it and sit down again.
Posted 5/22/2014 5:09 PM (GMT 0)
I get worse bloating, cramping and bowel problems then usual. My heart jumps and I get crazy palpitations then I sometimes vomit or get really constipated/diarrhea then I get so tired I pass out for hours within about an hour or two of eating. I avoid it of course but even salad dressing has glueten these days. Eating out is not really an option the longer you are glueten free. Most restaurants have glueten in everything from sauces to salads.
My man didnt even fully stop, but because he doesn't eat it as often he gets reactions from it too, usually diarrhea and cramps. Makes you wonder if we all have negative reactions to it upon stopping yet we don't all have Celiac, then is glueten really tolerated well by anyone? I
Posted 5/23/2014 2:53 PM (GMT 0)
I can eat small amounts of gluten just fine. But remember that the gluten issues run from allergy, intolerance, celiac disease, and most of us really don't know which one we have. Depending on what we have that is how we will react.
Posted 5/23/2014 3:04 PM (GMT 0)
From airborne gluten:

Diarrhea, nausea - lasts a couple days. Then, migraines and horrible cramps with every monthly cycle within a minimum of 6 weeks of gluten exposure (small amount of gluten; larger amounts of exposure - including airborne = 3-6 months or longer).

I haven't been brave enough to try knowingly eating something with gluten...cross contaminated items result in same symptoms as above, plus a really heavy feeling in my stomach.

I have one Celiac gene, but negative biopsy (does not rule out Celiac, as the inflammation is patchy and easily missed) therefore have to call what I have "Non-Celiac Gluten Sensitivity."
Posted 5/23/2014 3:36 PM (GMT 0)
Thanks everyone for the input. My lyme symptoms seem to very day to day but seem to be a lot better after cutting out grains. I don't notice a huge difference with cross contamination but the other day I went out and ordered sweet potato fries and they use the same basket for everything and did not clean it and I ended up eating a few tiny bits of the batter they put on there fish. I did not notice any immediate results but a day or two after I started to feel slow and heavy again. I put on about 5-7 pounds in those two days. I haven't really felt that way since I changed my diet and adjusted my herbal medications. I wasn't sure if it was related to the accidental gluten intake or if it were purely coincidental.
Posted 5/23/2014 5:31 PM (GMT 0)
My mom has celiac. She gets bloated if she accidentally has gluten. She says she feels like she's 6 months pregnant. She gets diarrhea too. Sometimes I wonder if she has LD too.
=]chloe
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