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NeuroLyme Symptoms?

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Posted 5/30/2014 5:48 PM (GMT 0)
I'm just wondering what are other people experiencing for neuro Lyme symptoms? 

I haven't had the vibration sensation for awhile now which is good because that could be Lyme bacteria drilling into one of my brain cells, but I got floaty like sensations this morning, like my brain is floating. 

Everything else is good for my neuro lyme symptoms, no word block, no getting lost, no brain fog, no anxiety, no depression, and no short term memory problems. 

All that usual stuff is all clear all I have been getting in the past 4 weeks is floaty feeling in the brain, vibration sensations (even these are gone now), and tingling. 

 

Posted 5/30/2014 6:03 PM (GMT 0)
I am getting short term memory loss, light-headedness, back of my head tingly,
and a weird sensation behind my eyes.
Posted 5/30/2014 6:29 PM (GMT 0)
I have been off the doxy for 2 days now because me doctor said she thought I was having an allergic reaction due to my tounge and lips swelling. Since stopping the doxy the cold sensations have returned...it's awful. The tip of my nose will feel like someone is putting ice on it, the backs of my ankles. It's even stranger that after I wash my face, my cheeks will feel like that too. It feels like different parts of my body are different temps. I have been living with undiagnosed lyme for at least 4 years, and was recently reinfected in the last 1-2 months..with the severe memory loss I can't be sure when exactly I pulled the tick of my neck. The nuero symptoms are what bother me the most. The joint and muscle pain seems to have subsided. I can't get into a LLMD until at least July 14th and then only if I have 475.00 for the initial visit. I so have an appt with an ID doctor on the 19th. It sucks that you have to choose between what insurance will pay for and what will probably work better because a lack of funds.
I am happy to hear that your other symptoms have improved though. I find myself afraid to read through a lot of the posts on here.its always nice to hear someone is doing well, even if not a 100%.
Girlie, I get a lot of pain behind my eyes and I can actually see what I assume to be a spirochete (sp?) on my retina/eye.
Posted 5/30/2014 7:00 PM (GMT 0)
I have a light numbness sensation in my left cheek and my left hand. These were some of my original symptoms but have recently returned when I was prescribed Amox about 3 months ago.

I have an appointment June 10th with my LLMD and hopefully she can change up my meds.
Posted 5/30/2014 7:21 PM (GMT 0)
I also have tingling in my feet and vibrations - usually down my right leg into my foot...sometimes my entire back as well.

But, I don't know if that is neurolyme..or my peripheral nervous system affected....who knows?

there are so many symptoms - none of which I have ever experienced in my life - it's a wonder we're not all in the psych ward cuz sometimes I think i'm goin crazy!
Posted 5/30/2014 9:55 PM (GMT 0)
Girlie,
If I end up in the psych ward, I hope I am with other Lyme patients!!!!!
I'm happy to report a reduction in the Babesia symptoms :-)

My neuro symptoms are vertigo/balance, slurred speech and my handwriting is garbage. I fell in the bank the other day, and had to explain to the teller that I have vertigo. Between that and the speech and filling out the deposit form with this crazy handwriting, i am sure they thought I was drunk. ... I only wish I could just taste a sip of wine!
Posted 5/30/2014 10:30 PM (GMT 0)
speaking of wine - what's really weird is I seem to have an aversion to alcohol - have not desired a drink of any type of alcohol since my symptoms started....
Posted 5/30/2014 10:38 PM (GMT 0)
Where did you hear that vibration is lyme drilling into a brain cell?
Posted 5/31/2014 1:00 AM (GMT 0)
It just makes sense to me that they are drilling into a neuron. It is just my case, maybe they are moving around but we don't really know for sure. All I can base it from is on the way I have seen them behave in microscopy video clips.
Posted 5/31/2014 4:08 AM (GMT 0)
I have had anisocoria (one pupil enlarged), loss of feeling in my arms and hands upon waking, brain fog, a feeling of bugs chewing inside my head, and pressure in the forehead. It comes and goes, but it's always there in at least a minor form.
Posted 5/31/2014 8:04 PM (GMT 0)
The nuerological and psychology problems are way underappreciated.

You can try adding more detoxing protocols to see in the symptoms are and excess of endotoxins rather than the spirochetes drilling in.
Posted 6/1/2014 12:14 AM (GMT 0)

LymePickle said...
I'm just wondering what are other people experiencing for neuro Lyme symptoms?


I haven't had the vibration sensation for awhile now which is good because that could be Lyme bacteria drilling into one of my brain cells, but I got floaty like sensations this morning, like my brain is floating.



Everything else is good for my neuro lyme symptoms, no word block, no getting lost, no brain fog, no anxiety, no depression, and no short term memory problems.



All that usual stuff is all clear all I have been getting in the past 4 weeks is floaty feeling in the brain, vibration sensations (even these are gone now), and tingling.

So sorry to hear about the Lyme in your brain, I've been battling neurological lyme myself for over 17 years. What are you using to treat your Lyme and how long have you had it for?
Posted 6/1/2014 3:16 PM (GMT 0)
Hi dazee,

I'm using minocycline, tinidazole, and Plaquenil. Had it for just over 6 months now.

I've tried other things but find these are the most effective.

My remaining symptoms. I'm now virtually symptomless... I feel sick from the tinidazole though. I get a mild tingling sensation in the past few weeks in my brain that comes and goes. That is it though.
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