Daily activities you do to pass the day while in pain

Hopefully we can all find new things to do by hearing from others :) post what activities you do while in chronic pain*

I suffer from head to toe chronic pain and can't do any of the old activities I did or enjoyed before the pain took over (sewing, beading, painting, drawing, card making, reading, cooking for fun, cleaning, texting, chat, blogging, video gaming, pedi's and mani's, soaking my feet, etc) my neck seems to pull me under the wagon whenever i do activities where my fingers, hands, arms or neck are strained.

So most my activities are done laying on my back with my arms slightly propped with pillows with the i-pod on my tummy or the laptop on a case slanted toward me. I try to get out but I don't go on walks very often (1x every 2 to 3 weeks) due to the pain and pain episodes it causes when my pain goes over my thresh hold, it feels like a herx each time.

0. love and cuddle my 13 yr old dachshund

1. I personally don't enjoy watching movies, it makes me wayyy to antsy no matter what i watch. I found though that i enjoy watching episodes of comedy or funny talk shows on hulu, that brightens my day :)

2. I enjoy laying down and singing, recording it on my computer, then putting an effect over it to make a little song.

3. I take my lil camera and lay it down in random places and record it (record my feet moving, the dog sleeping, me laying down, etc), download it to the computer and make short music videos with songs i like to listen too.

4. p.t stretching/massaging myself

5. play board games on my i-pod

6. scroll through sites i don't have to click like tumblr, pinterest, etsy, fb, etc.

Thats all i can think of. I need more things to do, would love to hear from all of you :)

pacing yourself link: http://media.psychologytools.org/Worksheets/English/Pacing.pdf

Wow, what a story. I don't have pain but severe issues with my throat, ear/head, eating and neurological.

I'm basically home all day and can do little things around the house. I have a hard time doing too much but I also find it hard to relax so I don't enjoy tv like I used to. My mind is a little scattered so I don't read like I used to either...sigh!

Can you read with the pain? There are lots of great electronic books and magazines out there. Some have the voice activation. There are also books on tape, so you don't have to turn pages.

Louise74 said...
Wow, what a story. I don't have pain but severe issues with my throat, ear/head, eating and neurological.

I'm basically home all day and can do little things around the house. I have a hard time doing too much but I also find it hard to relax so I don't enjoy tv like I used to. My mind is a little scattered so I don't read like I used to either...sigh!

Can you read with the pain? There are lots of great electronic books and magazines out there. Some have the voice activation. There are also books on tape, so you don't have to turn pages.

Awe Louise, I'm sorry to hear that. I wish we could both read again, hopefully we will sooner than we expect <3

I used to be an avid books on tape listener in the 90's haha, but thats a great idea though to find new books or magazines that read it to me :) Thank you*** Do you personally know any sites that do this or sites/apps you use?

Can you add detox modalities.?
I had Pain like yours and it was detox that got me off all pain meds and out of bedridden state.
Treating the lyme if your in such pain can mean your too toxic and the pain comes from the lymph system that is so backed up that it expands and it hits the nerves and we hurt all over. This has been my experience.
As I detox and get body toxins moving and moving out and cleansed the pain has gone way way down.
I know what it is like to be in such pain you can do nothing and go nowhere.

Consider if you can even laying in bed going Enemas. You can hang a bag or use a bucket and put it by your bed. You can do it all right at home and it is the one thing that can really get things moving and start you out.
Also baths and dry body scrubs and even those three things at home can do a lot.

See the Detox detox detox thread that was started.

I used to be bedridden and only online while laying in bed and it was my only contact to the world
Now I can barely come around here because it takes away from things I can and want to do.
The opposite !

Keep on Fighting and please consider this and just try it for a few months.
it is a lot of work but you can do it all right in your house and even in bed and or in the bath.
You even could lay towels or blankets in the bath and do the enemas in there and then do a
dry body scrub laying there and then fill you bath and do it all right in there one after the other.
Do that three times a day or as much as you can tolerate.

I can not overemphasize the detox and the toxins causing our symptoms!

Blessings

There are 600 lymphs all over the body. Not just the few we all think about in the neck and underarms and groin. They get stuck and stagnant and they back up like a sewer and thick and like sludge and clogged up.

The other thing to remember that the baths and the enemas and dry scrubs will get some channels open to let the lymphs start moving but you also have to do something to move them and Lymphs only move by movement which is the harder part. But if you even just bounce at the end of your bed by sitting on your butt and just bounce while watching a tv show or such. Then you can progress to a rebounder and also you can just sit on it and do now have to stand if you can't on it. Soon you will as you get better be able to be more active in total.

LoveTheLight said...
Can you add detox modalities.?
I had Pain like yours and it was detox that got me off all pain meds and out of bedridden state.
Treating the lyme if your in such pain can mean your too toxic and the pain comes from the lymph system that is so backed up that it expands and it hits the nerves and we hurt all over. This has been my experience.
As I detox and get body toxins moving and moving out and cleansed the pain has gone way way down.
I know what it is like to be in such pain you can do nothing and go nowhere.

Consider if you can even laying in bed going Enemas. You can hang a bag or use a bucket and put it by your bed. You can do it all right at home and it is the one thing that can really get things moving and start you out.
Also baths and dry body scrubs and even those three things at home can do a lot.

See the Detox detox detox thread that was started.

I used to be bedridden and only online while laying in bed and it was my only contact to the world
Now I can barely come around here because it takes away from things I can and want to do.
The opposite !

Keep on Fighting and please consider this and just try it for a few months.
it is a lot of work but you can do it all right in your house and even in bed and or in the bath.
You even could lay towels or blankets in the bath and do the enemas in there and then do a
dry body scrub laying there and then fill you bath and do it all right in there one after the other.
Do that three times a day or as much as you can tolerate.

I can not overemphasize the detox and the toxins causing our symptoms!

Blessings

There are 600 lymphs all over the body. Not just the few we all think about in the neck and underarms and groin. They get stuck and stagnant and they back up like a sewer and thick and like sludge and clogged up.

The other thing to remember that the baths and the enemas and dry scrubs will get some channels open to let the lymphs start moving but you also have to do something to move them and Lymphs only move by movement which is the harder part. But if you even just bounce at the end of your bed by sitting on your butt and just bounce while watching a tv show or such. Then you can progress to a rebounder and also you can just sit on it and do now have to stand if you can't on it. Soon you will as you get better be able to be more active in total.

Hey Dear,

yes yes and yes, I have tried literally all you wrote. Thank you for taking the time to write out your advice though, i really appreciate it. I unfortunately could not detox fast enough for how fast the lyme was dying off. The littlest things make me herx, and so i am constantly detoxing. I have almost all the lymph sites memorized and have taken one on one classes on how to do lymph massages and do meridian point releasing. I personally believe that not detoxing fast enough is what has killed my friends with lyme disease, its toxic! So yes, everyone should absolutely be aware how to release the toxins when trying to rid the body of lyme.

best best <3

HI Daze,

Thank you for this posting! What a wonderful idea. And you should totally change your name to Warrior or something cool like that!

Some things I did when I was out of commission. My fingers were always OK but my eyes weren't.

1)Colored in a coloring book - literally go to the dollar store and get crayons and book $2 for all that entertainment. I got despicable me. The cartoons always made me happy and I could still stay in the lines.

2)Origami - it is kind of my thing and relaxes me

3)Lumosity or free online brain games. I figured if my body couldn't fight at least I could try to get my mind too!

4)Lift one pound weights a few times a day. Now I know this one is too much for a lot but I could always do 1 lb, not on my weakest days but on my ok days I could. It made me feel better.

5)Make list about what I'm going to do when I'm better from lyme <--------HUGE MOTIVATOR. :)

LoveTheLight said...
If that's true for you
Stopping trying to kill for now would be a consideration.

Also massages and manual pushes like that you describe can not be good options because it can push things back toward heart and blood supply.

I have heard you have to not do such deep massages to the lymphs but instead use the cleansings and diet and hydration and keeping bottom end flowing so too end doesn't back up.

Think of you body like the pipes in your house.
Lymph pockets are your septic sewer tanks
You wouldn't stir up your septic tank while your drain pipes are clogged as that would create more toxic back up and it would try to find a place to go too and seep or push backwards instead of draining.

If we have a flowing system in place and are normally functioning then that's why healthy people enjoy a good lymph massage.

We shouldn't until we get to that place.

Haha :) no no, must been a miss communication, i don't ever think i said deep tissue. And again, I have been professional trained on lymph massages and gone over the technique with other dr.'s and specialist who approve. And I already stopped "killing" when it started killing me, so I'm on the right path ;) :)

So glad that you found what could help :) if you want to speak more about this please pm me, this post was for activities :)so If you have any activities you'd like to share with the group please do :)

best wishes*

opugirl said...
HI Daze,

Thank you for this posting! What a wonderful idea. And you should totally change your name to Warrior or something cool like that!

Some things I did when I was out of commission. My fingers were always OK but my eyes weren't.

1)Colored in a coloring book - literally go to the dollar store and get crayons and book $2 for all that entertainment. I got despicable me. The cartoons always made me happy and I could still stay in the lines.

2)Origami - it is kind of my thing and relaxes me

3)Lumosity or free online brain games. I figured if my body couldn't fight at least I could try to get my mind too!

4)Lift one pound weights a few times a day. Now I know this one is too much for a lot but I could always do 1 lb, not on my weakest days but on my ok days I could. It made me feel better.

5)Make list about what I'm going to do when I'm better from lyme <--------HUGE MOTIVATOR. :)

Hi Opugirl :) thanks SO much for adding a list of activities!! Greatly appreciated*** :) haha i can see how the funny pictures would cheer anyone up :) and thats so cool that you do origami* i hope you've been feeling better than usual and aren't out of commission at this time, peace and joy being sent to you*

wow, very interesting. Didn't know this was offered in my country! Thanks for the info!