Newbie...Late stage lyme, muscle atrophy, progressive symptoms , ALS?

Puzit I am so sorry you had to join us! I did experience weakness but not at the level you describe. Mine was more related to being in excruciating pain. All of my muscles sort of relaxed and my left hand became very weak and I had a neuropathy in it. So sorry you are going through this!

Have you tried ALA IVs? They really helped me with the nerve damage. I still have some but much of my left hand neuropathy has resolved.

I had an Neuro consult in Jan 2014 to rule out ALS/MS and other nasty stuff. Literally went from normal to not being able to swallow, facial numbness and other horrid nasty stuff. Yep perfectly healthy to not... more to my story but I wont post it all again here. Saw a possible brain infection on my MRI suspected lyme immediately and was diagnosed with bells palsy and inflammation of the cranial nerves. Didn't show up on my blood or tap so my neurologist kicked me to the curb. Found a LLND and was diagnosed with Lyme in April 2014.

I got a second opinion from another Neurologist who said I was ok. Clearly I wasn't. So Id say on the lyme track and you'll be ok.

Hang in there. There are lots of approaches to getting well regardless of the diagnosis. I would focus on lyme, when traditional docs can't help. There are many protocols, herbs, detox strategies,diet changes,supplements to try. Sometimes you just have to listen to your body and go from there.

Example: I noticed with my illness, I'm not able to tolerate meds that I had no problem with in the past. My symptoms brought me to deaths door after taking a few pills here and there. From all accounts, my liver looks fine on paper. A naturopath would tell you that my body is having s hard time processing meds for reasons unknown. Time to detox that liver!! So that is my current strategy in addition to killing the lyme...and we'll see if it helps any. Listen to your body and think outside the box a little.

Sorry you are going through this. I understand how you feel. I have twitches, spasms and night tremors. It's been a couple weeks since I have had the night tremors though. I also have pain pretty much everywhere, optic neuritis and erythromelalgia. Let me tell you that last one is a real bummer. Neuropathy in both hands and feet… Lesions on my brain.. The list is too long. I also have a high Mycoplasma count. Negative for literally everything else we have tested for and we have tested for everything. 3 out of 4 neurologists say I don’t have MS. We have tested for Lupus 4 times. I often find myself wondering if all this can really be caused by Lyme. But what can we do? We have to pick something and treat for it I guess. I have to believe IgeneX is correct and hope for the best with treatment. I’ve been in treatment for 3 months with very little results so far, but tomorrow might be better.

How you doing puzit31? New here and your story sounded similar to mine

Otie puzit you guys still around?