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Edema in ankles and legs

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Posted 6/5/2014 2:16 PM (GMT 0)
I have had edema in my ankles and calves since my symptoms started last spring. Just wondering if anyone else has this symptom. I have been using a modified Cowden protocol for 5 months but haven't seen any change in this symptom. Anyone know if this is a Lyme symptom or co-infection symptom? Thanks for any information or advice. (I thought it was non-pitting, but I just came from the osteopath who says it is pitting in my legs.)

Post Edited (dmw52) : 6/5/2014 1:25:08 PM (GMT-6)

Posted 6/8/2014 5:19 PM (GMT 0)
I have a lot of oedema. It gets much worse when temperatures are high.

I have been on treatment for 22months, of which 6 on a modified cowden protocol, no change either.
Dr is not worried at all, says it'll pass once I start getting better.

I haven't tried it yet, but i very recently read that parsley could help. Is it already part of your modified cowden's?
Posted 6/8/2014 5:51 PM (GMT 0)
Thanks for the reply Marie. It's nice to know that your Dr feels that it will pass when the infection clears. I have not used Parlsey yet, but have some on order, which should be here any day. I'll let you know if it helps.
Posted 6/8/2014 6:17 PM (GMT 0)
Thank you, that would be great!
Posted 6/8/2014 6:55 PM (GMT 0)
Edema is usually caused by insufficient kidney function or insufficient heart function. I like to address it because it your condition worsens, then what? Something is causing the edema and my goal would be to determine what is causing it. Keep a log, both for edema and food. See if you can determine a pattern on what foods cause more swelling and what foods cause less swelling. Then find out what those foods are made of and only eat foods that don't cause swelling. Sounds easy but it takes time, patience, and attention to detail.
Posted 6/9/2014 10:25 AM (GMT 0)
Georgia, I've had my kidney function tested and they tested better than normal. I've had heart palpitations/chest pressure so I've had a 24 hour holter monitor, and EKGs which didn't show anything. Is there something else which should be done? The edema seems to always be there. I had both feet operated on last year (bunions). Could this have caused the edema? I guess the only way to check for which foods cause swelling would be an elimination diet. Since I am gluten free, dairy free, sugar free, and I don't eat processed foods, my diet is already quite limited. Thanks for your help.
Posted 6/9/2014 10:45 AM (GMT 0)
Hi all
I did 6 months full Cowden protocol & then my legs started swelling. I had another problem not lyme related but I contacted Nutramedix, supplier of Cowden for those that are not familiar, about the swelling. They felt it was a systemic fungal infection which made sense when I thought about it.

I finished up in hospital with the unrelated problem, 2 broken bones in my spine, I was given 10 days antibiotics for legs but it made little difference. I will be finished an herbal treatment for it on Friday & I have nice slim ankles again. I must say I did have athlete's foot, foot fungal infection, dermatitis & some sort of a peeling thing on my hands. It will take a while to see if all of those are cleared.

I am not sure if it's ok to mention what I am using here so email me if interested.

The broken bones are slowly healing but the brace is so uncomfortable & I still have to wear it for another 6 weeks.

Wishing you all a healthy day.

Mary
Posted 6/9/2014 11:08 AM (GMT 0)

dmw52 said...
Georgia, I've had my kidney function tested and they tested better than normal. I've had heart palpitations/chest pressure so I've had a 24 hour holter monitor, and EKGs which didn't show anything. Is there something else which should be done? The edema seems to always be there. I had both feet operated on last year (bunions). Could this have caused the edema? I guess the only way to check for which foods cause swelling would be an elimination diet. Since I am gluten free, dairy free, sugar free, and I don't eat processed foods, my diet is already quite limited. Thanks for your help.

I could be from the surgeries, but didn't you have edema before the surgery?

I would want the Dr to look at copper levels.

Hormone issues can cause edema and elevated aluminum can block estrogen elimination. Perhaps your aluminum levels are high or too much BPA?

Your magnesium levels could be low and the catch 22 between increasing Mg and not increasing Mg levels. I'm a supporter of giving the body what it is lacking to increase it's normal performance. Disease is the lack of normal performance.
Posted 6/9/2014 12:17 PM (GMT 0)
Georgia H,

You are talking about copper levels. Mine were extremely high. about 60 times the max level. What are your exact thoughts on this?
Posted 6/10/2014 10:13 AM (GMT 0)

MarieLS said...
Georgia H,

You are talking about copper levels. Mine were extremely high. about 60 times the max level. What are your exact thoughts on this?

You are probably low on molybdenum and manganese. Ever been tested for a CBS mutation?

Do you have red hair?

Supplements that would lower copper levels are molybdenum, EDTA, and a low dose of carnosine. Supplementing with Zinc could be beneficial but could be harmful as well. Without knowing what your Zinc levels are, supplementing with it could be a problem. Anytime someone supplements with Zinc, they should start slow and gradually increase the strength to try to prevent more Glutamate release.
Posted 6/11/2014 10:57 AM (GMT 0)
Georgie Hunter,

Manganese was high too: 29 (range: <4,50)

Copper: 1048 (range: 1,45-60,00)

Molybdenum was normal: 41 (range: 9,70-100,00)

I have dark brown hair.

I had to take zinc in the past, prescribed by my llmd, I'll ask him about that again, but I won't be seeing him before mid August.

Posted 6/11/2014 11:02 AM (GMT 0)

MarieLS said...
Georgie Hunter,
Manganese was high too: 29 (range: <4,50)
Copper: 1048 (range: 1,45-60,00)
Molybdenum was normal: 41 (range: 9,70-100,00)

I have dark brown hair.

I had to take zinc in the past, prescribed by my llmd, I'll ask him about that again, but I won't be seeing him before mid August.

Call him and ask a nurse. You need to normalize that value to function more efficiently.
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