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Your Main Symptoms--Every day?

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Lyme Disease
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Posted 6/24/2014 9:33 PM (GMT 0)
I do have a few good days here and there with no fatigue or aches.
Then I try to catch up on my family life but on the bad days I am sleeping a lot and not even getting dressed. Feeling flu-ish aches and all over yuckiness I feel pretty miserable at times even after
4 months of treatment. My doc is checking for co-infections now so I will see if that brings changes.

But I am wondering what your days are like especially for those who are still new to the rocky Lyme road?
Posted 6/24/2014 10:02 PM (GMT 0)
I have a couple good days a week. But, on my good days I still have some symptoms...just not as bad.
My bad days are quite painful. I don't get flu-like symptoms...mostly pain and stiffness, vibrations through my body, and chills, adrenaline rushes, and more. I get nerve pain on my left side - shoulder blade/arm, hand, finger. Muscle/joint pains randomly - some constant, some migrating - in rest of body. I still don't sleep like I used to. Some nights are better than other.

On all days - good or bad, my symptoms worsen late afternoon/evening.

When I stay home and dwell...symptoms are usually worse, but sometimes I'm hurting too bad to leave the home. It's unpredictable, so i am not able to work, which affects me emotionally - worry about our finances.

Sueg- on your good days - you are symptom free? Wow, that must feel good..i can't remember what it feels like to feel no pain. How often do you have good days?
Posted 6/24/2014 10:27 PM (GMT 0)
i have the same symptoms...

it is hard to explain to the others how you feel.

the hardest thing for me is when i m outside, walking..
Posted 6/25/2014 3:56 PM (GMT 0)
My good days are with a little stiffness in my legs & back but other symptoms are gone and I get 2 good days--more or less-- a week. But I always struggle with extreme fatigue. Even after sleeping well at night I feel tired after being up a few hours. I really feel exhausted, almost drugged & groggy and need to nap again for a few hours--crazy!!

Does this sound familiar at all? Maybe this is not LD and my positive Lyme test was wrong!
Posted 6/25/2014 4:05 PM (GMT 0)
sueg don't doubt your positive test!

Everyone's symptoms are different. Fatigue is a symptom that is common to most.

I have doubted mine - because I don't often get the fatigue and the need to sleep. I think mainly because I have the nervous system vibrations...they keep me jacked. But, even though I don't feel tired, I still don't have the motivation, drive to do anything productive. So, maybe that is fatigue?
My worst symptoms are unrelenting pain.
Posted 6/25/2014 4:10 PM (GMT 0)
On good days twitching becomes almost non existent, mild head pressure and tinnitus.

Bad days
Twitching like crazy
Burning muscles
Bad head pressure
Balance problems
Memory issues
Spine pain

MUCH better than 2 years ago
Posted 6/25/2014 4:16 PM (GMT 0)
On good days - Very minimal symptoms, just aches and pains, and possibly nerve damage. Just feeling the 'Aftermath' of the disease.

On Bad days - Not really many bad days anymore but residual symptoms still there. Vibration sensations in the brain still remain, some spirochetes remain in my vision as squiggles. Darn neurolyme! I hear it is 1 year of treatment with oral cephalosporin and probencid.
Posted 6/25/2014 4:24 PM (GMT 0)
I've had Lyme disease for about 2 years and have been getting treatment for 6 months now. On my good days I have a slight headache, maybe a little twitchiness here and there and some fatigue. On my bad days I have full blown headaches, body aches, dizziness, convulsions, depression, weakness, mood swings, fatigue, anxiety, and migrating joint pain. I feel like every time I start to think I'm really getting better, I'm slammed with a really bad day and it feels very discouraging. But every once in a while I have a really good day (I can remember maybe five in the last year) and I feel almost completely like myself and those are the days that give me hope and the strength the push forward.
Posted 6/25/2014 5:06 PM (GMT 0)
Sueg,

This sounds very familiar to me. I also struggle with extreme fatigue. I general, I am doing slightly better than I used to but I still need a two hour rest (which most often includes a nap) every day. Some days I have to miss this afternoon rest due to appointments or whatever but if I miss I really feel it. On the weekend I met with friends for an annual get together. I was "OK" in the morning but had no choice but to lie down in the afternoon as I was falling apart. After an hour long rest I was able to continue on with the visit but I was very groggy for a while. My LLND told me that babesia was what was causing this awful fatigue.
Posted 6/25/2014 5:29 PM (GMT 0)
Every day: Pain Everywhere, Fatigue, Weakness, Vision Problems, E.M. (Red burring hands), Muscle Twitching, Loud Joints, Rash, diminished sense of touch

Randomly: Night Tremors, Balance Issues, Cognitive Issues, Mild Nausea, Other things I’m probably forgetting
Posted 6/25/2014 5:36 PM (GMT 0)
Pain (like everywhere) and fatigue/exhaustion are my main daily symptoms, and constant headaches or migraine attacks, digestive problems, neurological problems.
Other symptoms come and go, switch places, skip a day or a few hours.

Don't doubt your positive test!!! Fatigue is so common with LD. I'm 23 months into treatment, and it is still there. It is also my oldest symptom, it all started with fatigue 20 years ago.

Try to keep your activity low even on good days, cause overdoing yourself is what many of us do as soon as we have a better day.
Posted 6/25/2014 11:10 PM (GMT 0)
My everyday symptoms are muscle twitches, especially in right arm which is very visible and embarrassing.. Random sudden joint pain in fingers and toes, pins and needles mostly at night while sleeping (This wakes me up frequently as well as muscle twitches.)

But on a positive note, shortly after starting doxy my energy is back, insomnia gone, and night tremors have diminished greatly. Let's hope it stays that way!!!
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