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New to list, have Lyme symptoms need MD Manchester NH

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Posted 7/3/2014 12:55 AM (GMT 0)
I am looking for a Lyme friendly doctor around Manchester NH area, Anthem exchange (have not been able to work since January due to symptoms). Is Dr. Lahey at Dartmouth Hitchcock someone you would recommend - infectious disease doctor? Is there someone who uses the Igenex Labs?? I had 2 tick bites in May 2014 and since, my symptoms have increased and worsened dramatically. Tested myself at Labcorp, positive only IgG P 41, no IgM tested, it was the western blot I believe. All my other labtests so far normal, CBC, iron normal, B12 normal, metabolic panel normal. I do not feel normal.

Other info: I have a history of cervical neck radiculopathy (I finally had a doctor do an EMG - negative cervical neck radiculopathy after all the years of treatment, steroids, PT). I have pins and needles fingers, one or both hands, comes and goes, pain moves to other shoulder/neck without reason. Increased muscle and joint pain, dizzyness, palpitations, vertigo, pins and needles, GERD, tingling in back of my teeth, thyroid goiters off and on. Increased allergic reactions. I've had Lyme tests before and was on Doxy last year, but then bitten again after receiving antibiotics, and 2013 had hives trunk area which lasted about 6 months. I have been having increased palpitations, dizziness, brain fog, clumsiness and dropping things, neuropathy mostly of right hand but also get this "rush" dizzy feeling off and on all the time, increases in evening, hot flashes, probs with heat and hot weather, nauea off and on. I went off Gluten 3 weeks ago, which really helped the joint and particularly right shoulder pain, and the other symptoms, but now starting to get numbness tingling in right upper extremity again. I want to make sure Lyme is ruled out properly. Off Omeprazole now, wondered if that was causing dizziness. HELP!!!!
Posted 7/3/2014 4:46 AM (GMT 0)
Sounds like classic Lyme symptoms -- Multi-systemic and migratory. I would recommend you see a bona fide LLMD. No doc on staff at Dartmouth Hitchcock will make you well. Nor will a "Lyme friendly" doctor, or an infectious disease specialist. LLMD or bust!

You can make a request for a list of LLMDs via email to
[email protected]

ILADS has a great web site, too.

Good luck. I know how daunting is to feel so sick and lost and confused but you can get better! I was strong and athletic and perfectly healthy until I developed all the symptoms you have. I saw every specialist imaginable - rheumatologist, gastroenterologist, orthopedist, endocrinologist, neurologist, podiatrist, allergist. I had MRIs, physical therapy, EKGs, Xrays, endoscopy, ultrasound, and I slept in leg splints. I tested my well water for heavy metals and my house for radon gas. It was Lyme all along, but like you, I never tested positive except for IgG 41. My diagnosis is strictly clinical. But ten months into treatment with a LLMD and I'm feeling terrific, and almost all my symptoms are resolved.
I live in southern Vermont, and I believe there is a strain of Lyme (my LLMD calls it. "A Lyme-like disease) in this area of New England that ELISA and western blot don't pick up. I know lots of people in the same boat. The tests are unreliable, but your symptoms are absolutely classic.
Posted 7/3/2014 7:46 PM (GMT 0)
Maine knows of someone really good, but I haven't seen her posting lately.

I have her email somewhere, in one of my accounts, but I don't know which one. I could try emailing her, and see if she would answer your post.

Let me know,

Margaret
Posted 7/3/2014 10:18 PM (GMT 0)
I found a doctor thru the Lyme literate site, I'm able to get seen before he moves in Sept! Lucky me!
Posted 7/3/2014 10:21 PM (GMT 0)
Thank you for your help, much appreciated !!!!
Posted 7/5/2014 12:48 PM (GMT 0)
Glad to hear you got an appointment with a LLMD. You are on your way!
What is your plan when your LLMD moves...?
From the sound of it, your infection is not from the bite in May, but your 2013 treatment was ineffective and it has been in your body a long time. Your treatment will (should) take you well past September.
If you want to get a head start, you could immediately begin a low-yeast diet. I can send you a link to the diet I use, if you like. It is a vital component to treatment. No pasta, bread, or processed food. Limited fruits, all the meat you want, and green veggies to your heart's content. Lyme thrive on yeast.
Lots of people follow Candida diet or Paleo diet.
You are welcome to contact me privately if you have any questions. There is an overwhelming amount of information to process, and it helps to have someone who's a lap or two ahead of you.
Most importantly, YOU ARE GOING TO GET BETTER!
Posted 7/5/2014 1:17 PM (GMT 0)
VTFarmer:

Besides the diet, what kind of protocol were you on? ABX, supplements, etc?
Posted 7/5/2014 1:22 PM (GMT 0)
Hi. Thanks for your response . I have been gluten free since June 13. I also discontinued omeprazole, caffeine free no processed food. My pain level decreased 80 percent. Still nagging joint pain rt shoulder. Last year I also developed scapula dyskinesia which an result from virus and or other factors just to make it more complex!! Since June 13 I ended up in the ER after eating Msg laden food - new allergies I never thought I had. It takes a long time to book an appointment so I've tried another ND but she was a disappointment . We'll see.
Posted 7/5/2014 4:43 PM (GMT 0)
aphysicalwreck, I see a LLMD who basically follows the Burrancaso protocol. First 6 months on compounded Tetracycline and amantadine, along with nystatin and fluconazole to offset any ill effects of the abx. Now I am on clarithromycin and hydroxychloroquine (still with nystatin mans fluconazole). No herbals, no supplements except he has me taking Centrum A to Zinc because I've lost a lot of hair.
I put all my eggs in one basket with this LLMD and he has saved my life. 10 months into treatment I am 90% better.
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