Sickest after sleeping.

I wondering if anyone else feels like their symptoms are worse when they wake up, whether from sleeping all night or just from a long nap.

I've never been a morning person, so I know what it's like to be groggy in the morning. Lot's of people need a cup of coffee to start their day, so whenever I try to explain to friends and coworkers that I feel bad in the morning, they think I'm just talking about having trouble getting out of bed. My problems in the morning go far beyond that. I always wake up with extreme sensitivity to light and sound, and most of the time it is associated with severe headaches, with that loud ringing in my ears. I can't think in the morning or process information (my wife asks me questions, and I cant concentrate my mind to form thoughts, or complete sentences). My vision is terribly blurry, I can't focus my eyes at all. All my limbs are numb and tingly. Combine that with my dizziness, and I can't stand without leaning on something.

This all lasts anywhere from half an hour to almost two hours. Today I pushed myself to get up after only half an hour, and I was able to get to an appointment, but I had to come straight home and sleep for an hour or two because my body completely crashed.

I've mentioned this to doctors, and sometimes they try and explain that certain viruses/diseases/pathogens can be more active while you're sleeping, but none have given me a real answer. I've tried researching this myself, but I always ending on results relating to morning sickness from pregnancy. Do any of you have any personal experience or knowledge to share on this? Thanks!

Adrenals? I don't know if we've done anything to specifically check those.

Thyroid? It's out of whack, but my doctor's aren't exactly sure why. I was seeing an endocrinologist for while, but she moved away, and I haven't found a new one yet. She thought my thyroid issues could be due to a cyst they found on my pineal gland in my brain (it grew 1mm over the course of a year). They also found a cyst on my left thyroid gland, but it was tiny. Blood work showed I have a lot of glandular issues, and hormone issues... but nothing we've tried has fixed it.

I've been treating with various antibiotic regimens since last November. Oral abx, then IV rocephin, then IV vancomycin, then more oral abx, and now I'm on Alinia, Tindimax, Rifampin, and Factive. Along with probiotics, enzymes, and vitamins and such.

I don't think much of mornings either - that initial couple of minutes as I regain consciousness, wondering what condition the body I inhabit will be in, wondering what joys this disease bring to me today. I am not a fan, I think it is a major reason for insomnia too - if you don't go to sleep, you won't have to wake up.

There is a very good book about hormones. I highly recommend you read it:

http://www.amazon.com/Stay-Young-Bio-Identical-Hormone-Replacement/dp/1890572225/ref=sr_1_1?ie=UTF8&qid=1405044715&sr=8-1&keywords=staying+young+and+sexy

My mornings are the most difficult part of the day too but not anywhere what you describe. Praying for you!

Hi Ccbrunk,

I have the same thing going on. It is sooooo darn hard to keep working. I'm dragging myself up a mountain every single day. But whenever I take time off (I long for that, so that I can sleep...) I get worse... It's so contradictory...
I get nauseous, my pains are worse, that cotton wool feeling, brain fog.

My dr says it's lactic acid building up because of not moving.

I don't know... It can also be adrenal issues like Trav said, cause I probably have those issues as well. And since your thyroid is not behaving... I would look for a good endocrinologist if I were you.
Please let us know when that feeling goes away, I'm really interested in how to solve it.

MarieLS