One step forward...two steps back

Just looking to vent, since I've forced everyone around me to stuff corks into their ears.

But this really, really sucks. I have these episodes - these terrifying, traumatic waves where I get really dizzy, almost about to pass out, and then immediately rebound with an overdose of adrenaline pumping through me. They come out of nowhere, pumping my heart rate and blood pressure stupid high, and all that motivation, self-confidence, and preparing feels utterly useless.

And then if that wasn't enough, then comes the shaking, the mood swings (scared, sad, angered, lost, repeat), and the onset of being even more fatigued from effectively sprinting a mile.

I'm on 200 mg Doxy, waiting for my results to determine if it's Lyme (it may actually be another tick born infection); but I'm starting to think I'm being scooped out more mentally/emotionally each time than I can fill back.

At the same time, I realize how lucky I've been - how it's been almost a full month since I've had an episode this bad; how I realize people out there have suffered through worse (how is that possible?!); and how there is an indeed a light at the end of the tunnel. Even if I can't - or don't want to - see it yet.

Gluten was the first one I happened to stop consuming and it has diminished my symptoms fantastically. So much so the first physician was content to describe my condition as late-onset celiac. I noticed consuming too much dairy caused headaches/sinus pressures as well, which makes sense b/c it's an inflammatory (like gluten).

But I didn't know about the preservatives....that's really intense. Especially considering how limited your diet is with gluten alone. I'll look into that, and if you think you do have lyme, it seems like the general consensus is to start minimal treatment as soon as possible. Better to err on the side of caution is what I've read countless times.

I had a majority of these symptoms as well in the beginning. I acquired high blood pressure out of the blue (never had it before in my life), the adrenaline surges were unbearable, especially in the middle of the night and morning (I had 3 cortisol blood test and saliva tests that revealed no adrenal problems), also had off the charts anxiety, depression and heart palpitations that sent me to the ER. Lastly, I had strange vibrations in my chest, and limbs....I was always shaking....like an internal shaking if that makes sense.

I was taking Xanax to cope, and had horrible withdrawals once I stopped. (even with weaning).

For me, it drastically improved with treatment. I still get the symptoms once and a while, but they're tolerable now. I keep telling myself it WILL pass, and I inhale and exhale DEEPLY for at least 10 seconds which also seems to help.

You WILL get through it!