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Posted 7/21/2014 1:39 PM (GMT 0)
Feels like my head is full of fluff. Nothing working right today. Got straight As in college genetics and organic chemistry......today I'm just struggling to type this out.

Freaking hate Lyme.

Wish I could take a detox bath now, but I gotta go feed critters.

Sorry to complain, but today's not a good day.
Posted 7/21/2014 2:15 PM (GMT 0)
I'm so sorry that you are having such a rough day today, Sayyadina! Maybe you can take a detox bath as soon as you are done? If you don't have enough time for a full detox bath, you should try using a detox foot bath using the Epsom Salt and peroxide too.

Lyme can temporarily take so much from us! Hang in there!!!
Posted 7/21/2014 11:24 PM (GMT 0)
What helped me besides detox baths was binding up the ammonia inside my brain and body. I needed extra help so I took (which was recommended) Dr. Jernigan's Neuro-Antitox CNS/PNS formula.

Scientific data shows that when lyme bacteria die they leave over toxins. One of the worse toxins is Ammonia which causes not only the dreadful brain fog but joint pain and other ailments. When I took the Neuro-Antitox it cleared up my brain fog and my joint pains as well as the detox baths.

Hope this helps!
Denise
Posted 7/22/2014 3:18 AM (GMT 0)
I definitely agree with the foot baths! My brain fog the last few weeks has been ridiculous too. One day it got to the point where I was having issues even spelling my own name. Took a long foot bath and it helped heaaaps!
Posted 7/22/2014 6:26 PM (GMT 0)
Oh Sayyadina... I completely understand your brain fog issue and family/friends issue. It is so hard to function with brain fog and be around people who don't understand and don't even sympathies, just expect you to be perfect and happy all the time.

This disease made me realize that I don't really have any true friends. They want to be around me when I act like I'm not sick but instantly criticize or push away when I am not at my best.

I've really been thinking about joining a Lyme support group around here and becoming friends with other Lymies as those people might be the only ones that can be better friends right now and understand and support.

I started treating Bartonella about 1.5 months ago and have been feeling crummy mentally much of the time killing it off. I've been so negative and mildly depressed. Bartonella causes terrible mental symptoms. I have a friend, our sons are best friends, who also had Lyme in the past and thought she would be the one person who understands, but even she doesn't. She had Lyme without coinfections and recovered in 9 months on antibiotics. My symptoms have been so much worse than hers with having Bartonella as well... Mental symptoms as well as the constant full body pain.

So... Anyone in NJ area who needs a friend, I'm here :)!
Posted 7/22/2014 9:13 PM (GMT 0)
Sayyadina,

Please don't apologize :-) we are here for each other.

A lot of us have this feeling of being alone... I'm sorry that the people you are living with are ignoring you. That is hard to handle.
Is there a Lyme group or a church group you could join? It might be of great help to talk with fellow lymies. That could be a good step to take Inspiredby3.
I wish we had this over here, I would certainly consider joining.

The brain fog is horrible. It shuts you out from the world around you. You could try to detox as much as possible: the baths, a coffee enema helps a lot when I'm like that.

I hope you will feel somewhat better today...

MarieLS
Posted 7/22/2014 9:36 PM (GMT 0)

sayyadina said...
I'm just feeling totally completely alone. I live at home (because I have to), and my dad totally completely ignores me. When I try to express myself, he finds a way to dismiss me. My sister is off in her own world, and I can't rely on her either. Just feeling completely alone, unloved and unappreciated. I lost the friend that I had, since she didn't understand that sometimes I'd really like to have fun but I might be too sick.

Nobody understands.

I know how you feel. It's hard when your young, but keep up your treatments and detox, detox, detox. I'm sorry your family isn't helping you. It sounds like they don't have any understanding of it.

You're not alone here. We'll adopt you. :) Keep coming here so you can get support while going through treatments. Hang in there!
Posted 7/23/2014 12:07 AM (GMT 0)
Sayyadina,

I understand, having felt that way quite often myself.

Just keep taking your abx or herbs or whatever it is you're doing.

I wonder about my friends sometimes too, and I have no family in this country, plus my family in Europe thinks I'm whacked.

Eventually, you will have good friends.

You have to befriend yourself, (and us of course).

Do you have a cat?

Margaret
Posted 7/23/2014 5:08 PM (GMT 0)
I'm sorry you can't enjoy your animals as much now. They can be such a comfort. Parrots can be a pill sometimes though. We used to have an African Grey and she would delight in getting me irritated.

You might check and see if you could ride with someone in the support group. Our group leader contacted me a while back to see if we could pick up someone for the meeting who couldn't get there on her own, so we did. The same might work for you to get to the synagogue too.
Posted 7/23/2014 6:13 PM (GMT 0)
I agree with Garden Peace about checking to see if someone who may not be having such severe symptoms could pick you up and take you to a meeting or to a Synagogue!

I would also encourage you to try using something to help you detox better to help with the brain fog specifically (like zeolite or Dr. J's antitox formulas) and maybe try to do more detoxing as well.

Also, if you feel like they help, allow the animals to be a comfort to you. My critters have always helped me. If I have to stay inside, it's my dogs and cat, but back when I had goats and chickens, if I could get outside being with them helped too. It's odd for some people, but some of us seem to really connect with our animals.
Posted 7/23/2014 6:57 PM (GMT 0)
I've always had a strong connection to animals. We lost our dog 3 or 4 years ago and I still miss having her around. She was a silly girl.
Posted 7/23/2014 7:20 PM (GMT 0)
Recently I've been trying calcium bentonite clay masks all over my head and it helps my brainfog so much, maybe you could try it?
Posted 7/24/2014 9:39 AM (GMT 0)
Hi All-

I am in NJ and was just diagnosed with Lyme last week. My doctor says I must have had it a while. My worst complaint is the brain fog which is horrible, lately it just doesn't seem to go away.

Ruth
Posted 7/24/2014 8:39 PM (GMT 0)
I'm sorry you went through those losses of pets, especially your alpaca since it was so sudden. They're interesting animals. A neighbor has several of them, so I enjoy them. cockatiels are nice little birds. Will you get another one some day?

I'll get another dog some day since I prefer them. We have 3 cats, one of which wandered into our yard one day and stuck around. I put ads up since she was a purebred, but nobody called. She's a great cat, so sweet.

Yes, they do become part of the family.
Posted 7/25/2014 7:34 PM (GMT 0)

Ruey said...
Hi All-

I am in NJ and was just diagnosed with Lyme last week. My doctor says I must have had it a while. My worst complaint is the brain fog which is horrible, lately it just doesn't seem to go away.

Ruth

Hi Ruth!
Welcome to our community!! If you haven't already, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists (as Lyme rarely occurs by itself), helpful links and pdf's, how to detox when one has these infections, and a list of questions that you can ask any doctor that you are seeking treatment from.

Are you seeing an ILADS trained Lyme doctor? These are the only types of doctors that are educated properly about these infections and how to treat them. If you need help finding one, please do let us know!!

about the brain fog - are you detoxing? If so, maybe you just need to increase the amount or the number of things you are doing to detox - if not, we have some really great suggestions in the "New to Lyme?" thread I mentioned above.

Please feel free to start a new thread and tell us a bit about yourself and your treatment, symptoms or whatever you feel you should share!
​.​
Posted 7/25/2014 9:09 PM (GMT 0)
Hi Traveler-

Thank you for the welcome! I don't have an ILADS trained Lyme doc (thanks for the advice) I will look into that.

My primary care doc focuses on natural treatments & is the one who just diagnosed me. I was complaining of feeling like my brain was in a terrible fog for a while. I thought I was possibly anemic. When she got my blood results in she said I was positive for Bartonella, and based on the reading she thinks I must have had Lyme for a long time.

She just started me on a homeopathic treatment with Byron White formulas: A-bart & a 2nd I can't remember at the moment...Dragon-something. I'm not at home at the moment so I can't check the name. She also recommended I drink lemon or lime water, alka-seltzer gold or baking soda in water & do epsom salt baths or saunas.

I have many chemical sensitivities & allergies, so I am already gluten-free and don't drink cow's milk. Aside from that she had previously diagnosed me with Hashimoto's last year, which is a thyroid disease.

Overall, I am trying to stay positive and am putting faith in the natural treatments at this moment. My husband is not so sure, so we have another appointment with an infectious disease doc in another week or so. I have been reading as much as I can and have read that the optimal treatment may involve 3-6 months of antibiotics.

It is all so new, so I'm not 100% positive in which direction to go.

Thanks for listening.

Ruth

confused
Posted 7/25/2014 9:29 PM (GMT 0)
Ah, wait!! I didn't realize that you were seeing an alternative medicine doc!!

Byron White formulas work for many people. You can use the search function on this site to locate more posts from those that have used them.

Hashi's is actually fairly common with those that have Lyme disease and have a thyroid issue. Is she doing anything for your thyroid issues? They should be supported as well.

But, unless the ID doc is ILADS trained, hold on to your boots! You can get all kinds of remarks from ID docs that aren't ILADS trained from "your positive test is wrong" to "it's all due to anxiety" and more!

"Optimal" treatment isn't antibiotics for everyone. Some use antibiotics and heal, but if you have has these infections for a while, it's very likely that 3 - 6 months won't be enough no matter what you use and you'll be left to deal with chronic Lyme. Over the last 7 years, I've watch many come here due to having not been treated long enough the first time.
Posted 7/25/2014 11:19 PM (GMT 0)
Hi Sayyadina,

You and I are New England neighbors! I live north of Boston.

Social support is a really important aspect to recovering from illness, in my experience. Please know that you have us here! And feel free to email me anytime, if you need to talk to someone off the forum.

Keep posting, okay? We are here for you :)
Posted 7/26/2014 4:32 AM (GMT 0)

sayyadina said...
Thanks bluebyyou.

Between being sick, life on the farm and finishing college, I haven't had much chance to meet people. My life has pretty much been studying or classes btw morning and afternoon chores, and then trying to keep myself together physically on days where I didn't have school. I finally finished school (with a 3.97 GPA in Biology despite chronic Lyme), so that pressure is off now.

The distances here are also very isolating too. Its about 30 minutes to get to a decent size town, and over an hour to get to a decent size city.

And then there's the Lyme itself. I'm coming to realize more and more that the Lyme has really gone after my nervous system and gut, with some very unpleasant consequences. Sound sensitivity, easily overstimulated, and a lot of the the I have a really hard time following a conversation. Or even knowing how to respond.

I feel your pain. Am trying to finish college myself. It's never a good time to get lyme disease, but it's really hard watch all my friends move onto other things, and I can't even though I worked hard cause of this. No one really gets it, so I don't talk about it to anyone.
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