Posted 7/25/2014 9:26 PM (GMT 0)
Summersun-
Here's my story in a nutshell...
Background: I was infected as a child living in midwest (unsure exactly when.) Fatigue began June 2007 and progressively got worse until things really deteriorated during my 1st year of med school Sept 2010. Left school May 2011 to figure out my 'mystery illness.' Was finally correctly diagnosed in Sept 2013 (age 28) after my intuition led me to push my naturopath to test for lyme. Tested positive for 3 bands on ELISA/WB, positive for EBV (mono) but negative for all co-infections. During this time sought the care of a lyme specialist who suspected Bartonella and nutritional deficiencies. At time of diagnosis, damage to neuro function was well under way (memory problems, poor concentration, panic episodes with unrelenting anxiety, migratory pain in joints, irrational fear, and fatigue that words cant even describe, to name a few.)
Treatments:
Sept - Dec 2013: IV doxy and ceftriaxone via PICC line. Azithromycin and plaquenil for short time - unsuccessful
Jan 2014 began Cowden Protocol - saw results very soon after starting but biggest breakthroughs in recovery were month 3. I experienced very sudden positive changes in that I was able to drive again, going out places without feeling overwhelmed by stimulation (light,sound,etc.), less anxiety and no panic, more energy than I had in years. No more pain, achy joints, neck stiffness, or neuro symptoms. Anxiety and fears finally resolved around early May - those were more stubborn to heal.
To treat anxiety and sleep: I found Nutramedix “amantilla” and L-Theonine to be the only things that worked for me.
To treat neuro symptoms: Nutramedix “mapalo” worked wonders and I only took it for two months. Cleared up brain fog, slow thinking, memory issues. I mapped my mental progress throughout my treatment by doing brain exercises on Lumosity.com.
Current Status:
Strengthening my immune system which took a hit from having lyme and persistent EBV (mono.) I am about 80-90% recovered based on symptoms with no relapses or herxheimer rxns since mid-March. I still deal with is lower energy than I remember having years ago.
Lyme Care:
I see a lyme specialists here in Phoenix who’s an MD and advocate of alternative medicine - she recommended Cowden program. She has shared many stories with me about late disseminated cases showing improvement on cowden within weeks of being on it. So, what I know about that program is not only from my own personal experience but the many successful cases at my clinic I go to. Aside from my doctor, I have done hundreds of hours worth of research over the past year on all things lyme related :) I would assume many of us have who go through this have done their share:)
What I currently take:
***Cowden Protocol
***ACS 200 Advance Cellular silver + zeolite + glutathione sprays
**Olive Leaf Extract from Gaia supports the immune system (antibact/antiviral)
Zinc + copper
Omega 3
Vitamin B Complex
CoQ10
Colostrum High- iG by Symbiotics
***Moringa Powder
Vit D3
***BRM-4 500mg - rice bran and extract from shiitake mushrooms which is “clinically shown to triple natural killer cells (CD57 score) within 4 weeks” - often given to HIV and cancer patients with immunodeficiency. I cannot validate that it triples NK score personally YET, as I will be retested soon to find out my score. I am very hopeful about this product, so stay tuned...
Hope that helps... you are welcome to email me with questions. Sorry for long dissertation :(