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Know a person on abx for 15 years with lyme...how do they still work?

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Posted 7/27/2014 2:53 PM (GMT 0)
A very close family friend of mine has been on abx for 15 years cause of lyme. It's very sad, I'm incredibly concerned about her. She is trying new things to try to ween herself off of them, but I get very anxious whenever I think about her.

She has tried stopping in the past, and has almost died twice because of it.

My question is, how is it that antibiotics keep the infections at bay after all that time? Wouldn't they just be resistant? There is a reason it gets worse when she tries to stop, I'm just very confused from a biological standpoint how they still help her but she can't stop them...
Posted 7/27/2014 3:00 PM (GMT 0)
Although not always the case I'm sure, she is likely on what we would consider to be a low dose, so all they are doing is stopping the bacteria from replicating. When the abx are stopped, the bacteria begin to replicate and create real issues for her.

It's something that I have heard many times over, yet usually those people have been convinced that there is no other way, that no treatment will be complete.
Posted 7/27/2014 6:46 PM (GMT 0)
Gotcha, that makes sense. She still hasn't rifed or used herbs much to be honest, so there is certainly still hope.
Posted 7/27/2014 6:52 PM (GMT 0)
There's always hope for healing!!! I was infected for at least 40 years before being diagnosed and treated properly and I no longer have any active tick-borne infection symptoms!! It does take a lot of commitment to your healing, finding out what all you are dealing with and addressing each thing, but it can be done and the rewards are tremendous!!

I would encourage her to see an highly qualified LLMD.
Posted 7/27/2014 6:54 PM (GMT 0)
Traveler, uugh! That scares me because I can only take small amts of abx as well!! I've wondered about just what you have stated. I feel as if mine maybe just being kept at bay as well. My LLMD from Columbia Mo has this same mindset of "slow and steady" and not too much at one time confused   Ive feel like I'm being prompted to focous on treating for yeast right now and lay off abx for short period of time
Posted 7/27/2014 7:10 PM (GMT 0)
That may very well be a good plan though - systemic Candida isn't something to play around with either! Getting it under control is really a good idea. Be sure that you are taking a whole bunch of good quality probiotics or a good probiotic drink like kefir or kombucha as well.
Posted 7/28/2014 1:01 AM (GMT 0)

Traveler said...
There's always hope for healing!!! I was infected for at least 40 years before being diagnosed and treated properly and I no longer have any active tick-borne infection symptoms!! It does take a lot of commitment to your healing, finding out what all you are dealing with and addressing each thing, but it can be done and the rewards are tremendous!!

I would encourage her to see an highly qualified LLMD.

I love it.

Said woman actually saw Dr. H. for a while, as well as another reputable LLMD. I think she's kind of given up on them now and is trying to figure this out on her own.
Posted 7/28/2014 1:10 PM (GMT 0)
We each have to do what we believe is right for our body and our situation. Regular MD's and even LLMD's don't always have the answers for us - I'm a good example of that. I treated for 1 year with a LLMD, but I healed by using herbs and a practitioner that had never knowingly treated tick-borne infections before, but she was willing to learn and was highly intuitive, so we made a good team for my healing needs.
Posted 7/28/2014 5:46 PM (GMT 0)
^good for you, there's hope!

I have an amazing job opportunity next summer, have been dealing with tick related illnesses for a year and a half now...feel much better than my low point but I'm finally starting babesia antibiotics next month. Wish me luck!
Posted 7/28/2014 6:48 PM (GMT 0)
I wish you the best of luck with your Babesia treatments!! And I hope that you are able to take advantage of that amazing job opportunity too!!
Posted 7/29/2014 5:35 PM (GMT 0)
Thanks Traveler! I'm starting slow and my probiotic is 100 billion strong! yeah
Posted 7/30/2014 1:15 PM (GMT 0)
I hope that the Candida heals quickly for you, Lymerunner. Are you following an anti-Candida diet as well? It would be one more thing to help you get past this.
Posted 7/30/2014 2:30 PM (GMT 0)
This is me too -- reluctant antibiotic user (sick 16.5 years on abx for autoimmune & sinusitis before Lyme dx) now I take azith 500 morning, tinidazole 500 evening, plaquenil 200 twice (for undifferentiated connective tissue disease but doc says it also works on Babesia).

Have all along tried every supplement and alternative treatment I could afford. Still need to try Rife and biomat.

Am on nutramedix banderol and samento with support from noni, burbur, parsley, and sparga (I have sulfur problems). Recently found out about histamine intolerance, which means I have to choose certain probiotics. Candida is a big problem and I take an antifungal plus antivirals for viral infex that got into my organs. Am not sure I'm making much progress.

Started Autoimmune Paleo and have lost 30 lbs and feel some better, more to go. Starting with functional medicine doc and she is recommending PK protocol to clean toxins out. Will first do Shoemaker bloodwork. She also ordered BodyBio, a fatty acid analysis of the red blood cells. Don't know results, but am sure that I have way too many toxins!

Have not taken bentonite or diatomaceous earth or even charcoal b/c my supplement schedule is so complicated. I am low in all minerals and take special forms of B, C, CoQ10, E and support herbs. Have to take slippery elm or cannot tolerate antibiotics. Taking fibrinolytic enzymes on empty stomach before medicines with food in order to break up biofilms.

Ok I forgot what I was trying to say. Oh, yeah, TOXINS.
Posted 7/30/2014 4:41 PM (GMT 0)
@Traveler which probiotic brand do you think is best when on heavy antibiotics for Lyme? And how many a day? Pharmacist recommended Culturelle but no idea if it has what is needed.
Thanks
Posted 7/30/2014 4:54 PM (GMT 0)
Traveler, I haven't yet other than attempt low sugar diet. After the way I herxed ramping up the nystatin, I know this is significant problem. Do you know a good book or literature for a candidia diet?
Posted 7/30/2014 9:54 PM (GMT 0)

RTF said...
@Traveler which probiotic brand do you think is best when on heavy antibiotics for Lyme? And how many a day? Pharmacist recommended Culturelle but no idea if it has what is needed.
Thanks

You want one with as many different strains of good bacteria as you can afford as you want to 'rebalance' the intestinal tract. Culturelle has only one strain - Lactobacillus Rhamnosus.

You can find many probiotic choices in your local health food store, but be sure that they are in the refrigerated section as those will be the most potent.

I used kefir that I made at home with raw goat milk, because it was the highest amount of good bacteria and yeasts I could find. (www.culturesforhealth.com/milk-kefir-grains-composition-bacteria-yeast).
Goat milk is the only "healthy" milk, according to most Homeopaths and Traditional Chinese Medicine Practitioners. It never added to my symptoms or increased the amount of flem I dealt with because it's easier to digest, and the fermenting process removes almost all the lactose that most people are allergic to.
Posted 7/30/2014 9:57 PM (GMT 0)

lymerunner said...
Traveler, I haven't yet other than attempt low sugar diet. After the way I herxed ramping up the nystatin, I know this is significant problem. Do you know a good book or literature for a candidia diet?

Here is a site that I found very helpful when I had to go on an Anti-candida diet - fortunately it was during the summer when I could easily indulge in salads!! It also has handy-dandy lists of foods to avoid and foods to limit! :-)
altmedicine.about.com/od/popularhealthdiets/a/candidadiet.htm

I hope this helps!
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