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supplements to heal the brain?

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Posted 8/3/2014 12:45 PM (GMT 0)
anyone have any good results with supplements healing the damage that the brain has suffered d/t lyme & co? ty
Posted 8/3/2014 3:29 PM (GMT 0)
Hi Shelly—

One of the first supplements my LLMD put me on—even before I tested positive for lyme, Bartonella, and Babesia was Pinella tincture, which was to help with some symptoms I was having: derealization; disconnect between brain and body; word loss; memory loss; constant agitation; "lyme rage"; depression…

I think it's helped. I've also taken huge doses of salmon oil (omega 3) for the past decade, which I think has kept many of my brain and other symptoms (there are MANY) from being more severe than they are.

-p
Posted 8/3/2014 6:13 PM (GMT 0)
I wish I could find some more information on Pinella. All I've seen are the claims made by Nutramedix -- the only company that seems to sell it.
Posted 8/3/2014 6:16 PM (GMT 0)
Coconut oil is good for the brain too.
Posted 8/3/2014 6:36 PM (GMT 0)
Huperzine is also helpful but it took high doses for me to have an impact… got expensive.

-p
Posted 8/3/2014 7:29 PM (GMT 0)
Dr.J says to use Primerose oil, I also use cns.gets toxins out of the brain and heavy metalwork
Posted 8/3/2014 7:33 PM (GMT 0)
Dr.J says to use primerose oil and cns. CNS helpsget toxins out of the brain
and heavy metals
Posted 8/5/2014 8:01 AM (GMT 0)
What is cns?
Posted 8/5/2014 6:02 PM (GMT 0)
Shelly, My son has neuro-psychiatric brain lyme right now. He was misdiagnosed OCD, ODD, TICS and Bipolar this past few months. When I researched everything, I finally saw "lyme" and "recurrence" and put it altogether as he had lyme 4 years ago when his knee swelled. He obviously was undertreated - gotta love the CDC.

Anyway, he was put on doxy the end of May by a lyme/psych specialist - blessed he is sowise and famous and lives around the corner! Finally selected and saw an LLMD 5 weeks later. My son was a MESS. The dr. looked at me and asked "is he detoxing"? me - No.... dr. - oh..... that's why! So I ordered my 5 bottles of Pinella that day. He has been on it for 3 weeks - took him a couple weeks to be convinced to try it... more time lost.... Anyway, the spitting, hitting himself, raging (that was frightening, though I never let him know it), screaming and yelling, pretty much, all gone - they were bad and got worse on the doxy. I think he has a long way to go - still not completing assignments to get him to the next grade in h.s., just gaming all day and lots of body movement/tics, but I would say, that was a pretty great progression, wouldn't you?

So, in my opinion, go for it and in 2 weeks or so you should be much happier!
Posted 8/5/2014 9:25 PM (GMT 0)
@Lymebrain Mom - is it the pinella brain nerve cleanse that is only sold by nutramedix? Do you put the 10 drops in water? Thanks
Posted 8/5/2014 10:01 PM (GMT 0)
Yes, I found the only place you can get it is on their website. If you order 4, you get 10% off and a free bottle, thus I have 5. I plan on him using it for months, so not a problem.

Yes, put the drops in water and wait 2 minutes for it to react properly and drink.

You can also use lemon water or something citrus, but not milk.

He would not take it for awhile so I was sneaking it in water things like hulled out strawberries, chicken soup at room temp. etc.

I wrote to the customer service at the company a couple of times and that is the best way, the water. I now use 15 drops in 1/2 cup + a bit more water as I can only get it into him 3 times a day with his doxys and probiotics - trying not to overwhelm him - he has some psych meds too that he does not want, so trying to keep the pills to a minimum!

I'm promising you though, they really helped him and should help you. My LLMD was very certain. I thought the prozac was helping his tics and ocd, but the other day the pharmacist said it takes 4-5 weeks for that to really kick in and work, so he's only on it a week, so I now know it was the pinella doing so much good.

It's pricy, but so worth it. Write it off on your taxes as an over the counter expense in with your other meds :)
Posted 8/6/2014 12:15 AM (GMT 0)
Good post. I use Vinpocetine, but both Huperzine and Vinpocetine have the potential to cause migraines in me. But a lot of things cause migraines in me, that don't in other folks.

Acetyl-L-Carnitine, along with Phosphatidyl Serine and Phos. Choline are supposed to help.

The worst thing for my brain is herxing.

One thing that has helped is Calcerea Carbonica, but whether or not it helps depends on your homeopathic profile.

I'm going to write down all the stuff from this thread.

Margaret
Posted 8/6/2014 5:04 AM (GMT 0)
WHAT about SUPPLEMENTS TO HEAL BRAIN INFLAMMATION?

Margaret
Posted 8/6/2014 7:52 AM (GMT 0)
I've heard fish oil is good for brain damage.
Posted 8/6/2014 4:47 PM (GMT 0)
Primrose oil
Posted 8/6/2014 8:24 PM (GMT 0)
I read an article by a neurosurgeon that recommended saffron
Posted 8/6/2014 11:27 PM (GMT 0)
Thank you all for the responses! Great info here.

Lyme brain mom, I actually have Burbur, pinella & parsley but have never used them yet. I am definitely going to start. How much pinella do I start with? Do I need to work it up? Do I need to space it away from meds? Thank s
Posted 8/6/2014 11:29 PM (GMT 0)
Moon, you said you use cns to get toxins out of the brain? What is cns? Thx
Posted 8/7/2014 12:26 AM (GMT 0)
The brain would be considered part of the cns - central nervous system <- the main part of the nervous system which would be nerves in your brain and spine.

Nice to see ya Shelly, how are you doing?
Posted 8/7/2014 2:41 AM (GMT 0)
Paperbutterfly—

YES! I have read several accounts of people who have been almost declared brain dead (from accidents, mostly) but family was able to convince Drs to try high doses of Omega 3 fish oils and had success. Amazing stories.

I've taken Omega 3 salmon oil capsules (kind of expensive—the source is really important due to mercury levels in salmon so I highly recommend Vital Choice brand) for over 10 yrs. When my ND did some blood work recently, my levels were over 12 (3 is considered "high") and none of the other docs had ever seen levels that high. I am CONVINCED that the O3s and mostly organic diet for the past 10 yrs are the a main reasons I'm not sicker (and I'm pretty sick).

Anyway, fish oil does a lot of other amazing things too, but it has helped stabilize my moods and I think it's supporting the detoxing well.

-p

Post Edited (Pirouette) : 8/6/2014 8:44:06 PM (GMT-6)

Posted 8/7/2014 5:26 PM (GMT 0)
Hi Shelly,

I just gave it all to him the first shot. He was in such bad shape I figured how much worse could it get. I gave him the 10 drops 3 times a day. He only takes it with meds and gives me a hard time, so I didn't boost it to 4 times a day, but I do now use 15 drops in the water, 3 times a day.

He is really clearing

I plan to ask about Burber, Samanto and Parsley as a protocol after he finishes abx maybe - I really feel with how bad he has been, he should be on something for life so this never happens to him again. It will ruin his life... it would have this time if I listened to the drs. and did not let up in my search...

Let me know how the others go for you - you may want to include Samanto.
Posted 8/7/2014 10:48 PM (GMT 0)
Oh , I hear you about not listening to doctors...4-5 doctors told me I didn't have lyme!!! And they told me not to research it, I would drive myself crazy. Ummm, like 3 seconds after I started googling my symptoms, I figured out it was lyme & it didn't make me crazy, it made me seek proper help. If I would have listened to them, I'd still be on steroids half dead. Anyway, thank you for the info, I'll let you know how it goes with the pinella. I am going to try to do it tonight.
Posted 8/8/2014 1:12 PM (GMT 0)
Hang in and good luck!
Posted 8/8/2014 11:06 PM (GMT 0)
ougirl, I am ok. treating babesia at this time. was on Byron white's A L Complex for Lyme for a few months & it brought out the babesia: sweats (not at night only, and not drenching, just a feeling of breaking out into a minor sweat 4-6 x day which lasted about 2-3 weeks) anxiety, anger, apathy, shooting head pains, attention deficit, chest pains &tightness, wooziness (like being on a boat). these symptoms are not sever & the sweats are gone, and I could work through the symptoms. he put me on A Bab in addition to the AL complex and possible abx after taking that for 3 months. How are you???
Posted 8/8/2014 11:06 PM (GMT 0)
I know what the cns is, but he said he was "using cns"
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