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This Lyme disease is taking up too much brain space

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Posted 8/9/2014 3:24 AM (GMT 0)
Anyone out there think the same thing? It is unreal how much brain space and time this illness takes. If I had a sore throat , cold, or even the flu, I wouldn't even really be taking up this much time and brain space.

I think it's affected my thought complexes and given me a different kind of attitude...

It's unbelievable how profound an impact this infection has. I would never have known until actually experiencing it first hand. The Lyme lady I caught this from seemed completely normal to me! As in healthy! And she made a big deal like she has Lyme, I just thought well how bad could it be? She doesn't seem sick at all. Lol now I know.
Posted 8/9/2014 5:11 AM (GMT 0)
What do you mean by brain space? Do you mean literal swelling of the brain, or cognitive problems like memory and attention?


Margaret
Posted 8/9/2014 5:38 AM (GMT 0)
By brain space... I mean like memory storage! Like you read the Dr.H book, then you read the Buhner book, then you read LLMD blogs, then you're reading research papers, then you're reading other peoples protocols, then you're focusing on your symptoms that have been bugging you, then you start to wonder if you'll ever get cured or maybe you are one of the chronic ones, then you have to think about ordering more antibiotics, then you gotta book your next LLMD appointment, then you gotta order more supplements, then you gotta detox, then you gotta think about what you will eat...
Anyways get my point? Brain space as in thought processes. If I didn't have Lyme I would be doing other things probably much funner and more enjoyable. Watching movies, playing games, working out, reading books, watching documentaries, living life, meeting people....

Instead I got Lyme disease. And it is just taking up so much time, mental space, and lots of my thoughts are about the disease.
Posted 8/9/2014 5:41 AM (GMT 0)
Oh and i have no swelling or cognitive issues at all anymore! My cognition is 100% normal now and has been since about April. But I will be honest and realistic and say I don't believe I got rid of every last germ yet. I have the slightest and most subtle of symptoms that remain.
Posted 8/9/2014 2:19 PM (GMT 0)
LymePickle, how long did it take for you to have 100% cognition and what do you think helped the most?
My son is on doxy and Pinella (also a couple of psych drugs to calm things down). I think the Pinella has worked the best.

My son has recovered from some ocd/tics, still has a lot of body movement. BUT, he won't talk about his mind. He was brilliant - now has not done his 4 page thesis to finish 9th grade, or read the two summer reading books. Spent all summer in the corner in the dining room killing zombies. He is the administrator/server for the site, so I know he has some intelligence. Just not sure it's enough to get through 10th grade - and at this point with crummy in home instruction - and he really can't sit in a classroom.

Starting to stress as school approaches.

thanks, eileen
Posted 8/9/2014 6:19 PM (GMT 0)
I believe the #1 killing combo against Borrelia is the combination of a tetracycline and an Azole. A Dr. tested this in the laboratory and it was the only way to kill virtually all the spirochetes.

For brain penetration effectiveness tetracycline < doxycycline < minocycline is the order of effectiveness. Actually minocycline is 2.85 times more lipid soluble and therefore penetrates the brain 2.85 times better than doxycycline.

Tinidazole has shown to be the best Azole. Works far better than flagyl.

I used a combination of minocycline + Plaquenil + septra DS + tinidazole. And my cognition was back to 100% in just 6 weeks on that combo.

Mino + tinidazole is in my opinion the best drug combo possible for treatment of Lyme disease. I read lots of people that got a cure or remission using these 2 drugs. Also there are people that report cure or remission on doxy + tinidazole as well. Just you have to take 400 mg of doxycycline to do what a 200 mg of minocycline will do.

You should consider a couple things though. Azoles I think are toxic drugs and could potentially cause cancer. I felt toxic on it. Please keep that in mind. also you say your child is finished grade 9 so about 14 years old. So his teeth should be developed. I was going to say doxy can stain teeth but since his teeth are already developed probably not.
Posted 8/9/2014 6:51 PM (GMT 0)
Thanks Lyme Pickle

I'll have to see about adding Tinidazole - I feel bad for him, we kept him home a year since he was a summer baby, so he just turned 16 last week.... if he misses this year... he'll be like 19 grad. hs! Yet he is brilliant and could probably have taken the GED in freshman year and passed to go to college! Lyme stinks.

6 weeks for cognition and no brian fog is AMAZING - I just read someone who still had it after 3 years!

I think the Pinella is helping a lot - guess I'll just keep following what the llmd and school admin advises - hope they all know what they are doing. I"m pretty sure the doc will be throwing in some grapefruit seed extract sometime, that should make things worse before better.

Glad you are well so fast - you must be so pleased!

Thanks for your response, eileen
Posted 8/9/2014 11:05 PM (GMT 0)
Lymepickle, I completely feel like you!! Then I still have to try to be a good mom to my 3 kids and stay on top of all their school stuff when school starts! My head is spinning! With all this learning, maybe we're reviving some brain cells that Lyme is killing off! My friends are thinking what to do with the kids in the summer and I'm reading, researching what else I can try that might make be better. Not enough time in a day to do it all...
Posted 8/10/2014 6:07 AM (GMT 0)
I feel the same..it feels like i am under some drugs.

Why healthy people get high on drugs??? They don t know being sick maybe...
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