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Lyme Disease
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Posted 8/12/2014 1:56 PM (GMT 0)
I have a heart Dr appt today for 1:40 pm, made over a month ago.

I got a phone call 30 min ago from the Dr office, stating Dr has a meeting and needed to cancel my appt.

Said they could get me in next available on Sept 17th! WHAT?!

Hahaha, I said, "Well, no, that's not acceptable. I've already waited over a month for this appt. Fit me in, today, tomorrow, the next day, I don't care, but this week. OR, I'll be sitting in the office every day until they get me in. Let me talk to who ever handles this. I will not wait, I cannot wait, I have issues, and do not, will not go to the ER. Do whatever you need to do, get me in this week. Thank you, Vicki."

She just called me back and said they can 'fit me in today at 2 pm.' She, as I, was very polite.

I am not upset, I am not feeling put out. I am proud of how I handled this one. I am proud that I stated what I would accept, when, and how, and nothing less would be acceptable. She heard me, and took me seriously. I know this is not the norm, but I accept it. Gladly.

Something within me has shifted, and this is but one positive result. Many more are to follow.

I am happy they will be seeing me today. I need to have my heart looked at, more than just a monitor. I need them to actually 'look' at my heart. Pray that this appt goes exactly the way it is meant to go for my most highest benefit. I am excited that this Dr and staff will recieve me with a sense of respect and professionalism, affording me quality, educated and non-ego care. tongue Stranger things have happened!

I'll write back later with my positive report.

Posted 8/12/2014 2:20 PM (GMT 0)
Good for you! I hope it will go well and that you'll get the answers you need.
Posted 8/12/2014 2:30 PM (GMT 0)
yeah turn yeah turn

There is certainly a shift going on!!! Congrats on how you handled this!!!
and good luck with the appointment, keep us posted!!

Marie
Posted 8/12/2014 2:52 PM (GMT 0)
Strength!
Posted 8/12/2014 3:11 PM (GMT 0)
Way to go!!! Good luck with your appt. saying a prayer for you.
Posted 8/12/2014 8:23 PM (GMT 0)
So, the Cardio Dr was very, umm, un-concerned? I guess that's what he was. Has me getting a stress echocardiogram, and also wear a monitor for 2 wks. Part of me is like, well, that's a bust. All of this for nothing but for me to do busy work which will show , what? The other part is like, oh well, at least I"m getting some tiype of 'look see', right?

Gotta love all of this lyme-go-round 'medical care'. So, guess I'm just like all the rest, getting pushed thorugh the system. I heard this dr telling another patient in the room next door, who had bi-pass surgery last year, that her pain can't be from her heart, without even hearing/listening to what she was saying! It was crazy. He was really arrogant, to say the least. Guess he's JUST doing his job, bleh.

Cheers, keeping my chin up. ; )
Posted 8/12/2014 8:26 PM (GMT 0)
Also, my son was with me and heard/saw the person/patient who lost their appt instead of me. This older guy came into the office as I guess they didn't reach him via phone to tell him, he waited around 10 min before the receptionist told him his APPT WAS CANCELLED, and he had to reschedule! He just laughed, and said this is the second time IN A ROW that you've done this to me!

This is our health care system, stellar.
Posted 8/12/2014 10:00 PM (GMT 0)
Good thing he's doing the echo and halter monitor they will tell a lot. Hopefully, everything comes out good and you never have to go back to that crazy office!
Posted 8/13/2014 9:33 AM (GMT 0)
Acctually it doesn't seem like a runaround at all. The the monitor will tell a lot especially seeing as things are so sporadic with these infections.a lot can be missed unless timing is perfect. My mom went through the same thing with her Lyme. They gave her a remote monitor which he had a built in alert system. Hours ayer getting it she got a call and was told not to move an inch an ambulance is on the way. She was then put through every test in the book. It's a gate way to testville. Yeah they found out it was Lyme.
Posted 8/13/2014 11:39 AM (GMT 0)
Will, that's amazing about your mom!! So happy that worked out for her! I pray she is doing well now.

I've heard so many other peoples' experiences with the heart docs and what I've read, getting this test and the monitor are the standard treatment at this point. Most of the people mentioned that these tests did nothing for them, and nothing was figured out. That's what I was saying, like, ok, here we go, now it's my turn, kind of thing. I am happy I've gotten this far, and I hope if anything is needed to be found, that it will be found and then I can move forward better equipted.

Blessing to all, and let's all keep moving forward in health and spirit.
Posted 8/13/2014 1:29 PM (GMT 0)
I'm very proud of how you handled the situation with the office wanting to cancel your appt! I get so tired of doctors all thinking that we are there in service to them when we are the ones paying them!!

I hope that these tests are the gateway for you - not the end of looking into things. If they turn up nothing, at least you have now had them done and can move on to the next set of tests - or the next doctor. Just be sure to get your test results so you can take them with you.
Posted 8/13/2014 4:43 PM (GMT 0)
Thanks, Trav!! Yes, good suggestion/reminder about getting the results (hard copies) for my records. I may not have thought of that when that time comes.
Posted 8/13/2014 5:40 PM (GMT 0)
FYI- In January I was getting a echo, when I sat up to get on the treadmill my pulse went from 100 to 140 in a few seconds. I was diagnosed with POTS on the spot. They also found some QT irregularities so I have to be careful not to take 2 meds at the same time that may effect QT.
The good news is that the cardiologist said all this should resolve with treatment for lyme and co's.
I'm one of those people that will do anything to avoid going to the doctor/specialist.The LLND and cardio are the two appts. I'm glad I kept. Best of luck!
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