Posted 8/18/2014 12:59 PM (GMT 0)
Very sorry to hear what you are going through, and that the dr's haven't been able to pinpoint things for you. It's good you've stopped in here, and I hope that you find YOUR direction, as each of us walk our own, fine tuned path. Remember, if this is Lyme and/or co-infections, each person is very unique in how they are infected, how they best heal with specific, individual treatment, and diet/stress play a huge role in all of this.
If you haven't yet, we suggest you read through the post titled, "New To Lyme?.......Start here!" There's a lot of invaluable info, and can offer many suggestions for you during this process of finding answers, and beyond during healing.
One of the first things suggested is to get a Lyme test done by the IGeneX lab in California. They test more strains, and test against the ones in the USA and NOT the Europe Lyme as the other labs do, so the other labs get a lot of false negatives, upwards of being wrong 70% of the time, missing actual infected people!
IGeneX will mail out a kit that includes everything needed for the lab work. Call or email the company and they will send it free of charge. The return package (enclosed) is also free to mail back. All one needs is a Dr to sign the enclosed script, get the blood drawn and send it back (only do lab work M-W, as this needs to get sent over night as lab needs the blood in before Fri. The two basic lab tests from them are #98 and #99, cost are $100 each. They have more extensive testing available, and the costs are included in the packet.
If you get this lab work, chances are you'll get a better/more accurate test. Also, if you can locate a Lyme Literate Medical Doctor (LLMD) near you, they can also do a symptoms test, and if they feel you are dealing with Lyme, and/or co-infections, they might start you on treatment.
You could also locate a Lyme Literate Naturopath Dr (LLND), and they could also diagnose using symptoms, and they treat using natural herbals/tinctures/supplements.
Start a new post with "Searching for a LLMD/LLND in ________"(your area, ex. NY,NY). People will then know to open your post and provide info.
Hang in there, don't stop seeking answers and help, and we are here to provide needed support.
Good luck.