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circulation problems.. feel severe

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Posted 8/29/2014 5:54 PM (GMT 0)
I was trying to find the thread on hereditary thick blood. I had lyme., now my veins are sort of popping up.. I have a lot of pain. I can hardly use one arm. My doctor says it's nothing. He says "it's because I'm "45" now" & to get on with my life. Meanwhile I have a positive IGg., a high Immunoglobin M ? (for thick blood).. I have a headache all the time. I'm sort of disabled. I am currently not working. I'm afraid., and I'm not sure what to do.. that.. he basically does not believe me. He said those high levels are just remnants of lyme I had from before - that just stayed in my blood. He said I don't need to come back for 4 mths., meanwhile.. this feels like an emergency to me.
Posted 8/29/2014 6:10 PM (GMT 0)
Sorry to hear that your Dr. is treating you that way. You don't deserve that, but it's not unusal for Dr.'s to dismiss lyme.
45 is not old...my goodness!

You said you had Lyme before. Did you have a LLMD treat you? How long were you in treatment?
It is very important for you to see a LLMD.
If you need help finding one, start a new post: "Looking for LLMD in ____" (put your state in the blank)

My veins are popping up, too - mostly on my lower legs and feet. The LLND I see figures it's from Lyme. I can't remember if he said my blood was thick...or if he even gave me a reason why.

This forum is a good place for support, and help, so keep posting.
Posted 8/29/2014 7:36 PM (GMT 0)
There have been a few responses, including my own, in the other thread that you posted about on this - please see that thread:
www.healingwell.com/community/default.aspx?f=30&m=1864165&p=1
Posted 8/29/2014 8:16 PM (GMT 0)
I don't think 45 is old either! I've always been very active.. now I'm .. sort of disabled. I'm not sure what a LLMD is? or LLND? I went to an infectious doctor (recently) before he said the recent lyme test said I'm negative., and that I had a positive Lupus from 2 yrs ago., (that no one ever told me about- when I was in the hospital for "mono") - but now I am not positive (for Lupus)? This recent test said I had High !gg.. High Igm? (even high sugar)- Honestly.. I think it's all Lyme., I will look at the link to these other posts.. Thank you so much!!
PS I have had positive Rocky Mt spotted Fv., Lyme., Babeosis., In the middle of my treatment.. (fever 104).. <this was 2012). I went to hospital.. they said "no it's Mono".... & took me off treatment. They wouldn't let me continue! I've had my pancreas go crazy.. I've been hospitalized twice. First time I was told I almost died.. cause all my organs went crazy (2011 Sept).. they said they "don't know what it is".. Before that.. I was extremely healthy.. hardly even a cold.. Now the doc said "you're fine.. now get on with your life".. but I have never actually healed! I'm having "chronic issues"..
Posted 8/29/2014 8:27 PM (GMT 0)
Flint - LLMD = Lyme Literate Medical Doctor and LLND = Lyme literate Naturopathic Doctor.
They are Doctors who are knowledgeable and experienced with Lyme disease treatment.

Most Infectious disease doctors don't know enough about Lyme.

A LL Doctor will not base your diagnosis solely on the lab test; he/she will do a clinical diagnosis - which is based on your history (possible exposure to ticks carrying lyme disease), your symptoms, and will use the lab test as an "extra" confirmation.

I was the same - very active - athletic, never sick...and bang - all of a sudden health downhill with many symptoms affecting many areas of the body.
Posted 9/1/2014 12:48 AM (GMT 0)
Hi flint01,
Just want to make sure you saw the other thread and that you know how to go about finding an LLMD or LLND in your area. You actually have a few options to find one local to you:
1. Start a new thread titled "Looking for an LLMD/LLND in (your city & state)"
2. Call Igenex at 800-832-3200 and ask for a list of ILADS (International Lyme and Associated Diseases Society) trained doctors in your state.
3. Log in to Lymediseaseassociation.org and you can search for up to 3 LLMDs per month based on a zip code or address.
Hope this helps! From your history it really looks like you could use a compassionate doctor who's experienced with Lyme and associated diseases. You are your best advocate!
Posted 9/1/2014 1:50 AM (GMT 0)
Yes,

Most of us try going through regular drs and Infectious disease doctors who don't listen or take us seriously.

That is usually how we end up at these specialist office. And to tell you right now...it worked for me (I'm no longer in treatment) and it is working and has worked for a lot of other people too. So I would definitely say it is worth a shot to find a lyme literate physician.

Lyme can definitely cause thick blood and poor circulation. There are a lot of herbal treatments to alleviate that. Some of the more natural ones would be about a thumb size of fresh grated ginger every day with some tea. Any berries are good for circulation. but not as potent. That is where I would start though, ginger is pretty gentle!

~beth
Posted 9/1/2014 1:52 AM (GMT 0)
Thank you soo much! everyone.. Actually I'm feeling more upset. My veins are showing more & more.. and it's hurting., and I feel pins & needles.. I have an appointment with a rheumatoid., but.. honestly the person is not very nice.. to put it bluntly. I was very intimidated the way she was speaking to me. It's silly.. but I'm almost "afraid" to return. But I am more afraid of what is going on.. and am starting to feel angry... instead of passive helpless..
Posted 9/1/2014 1:55 AM (GMT 0)
If it is your blue veins...a lot of us get that. Mine finally went away but it took awhile. See link below..

http://buhnerhealinglyme.com/symptoms/nattokinase-helped-my-veins/

Although I would not recommend taking nattokinase or blood thinner until you are on some sort of treatment plan for lyme!
Posted 9/1/2014 2:21 AM (GMT 0)
Oh My Gosh! I have so much to learn! I've never heard of "biofilms".. or buhner website. This is amazing. It feels like what is going on with me. It is a lot of blue veins (all over my body actually.. progressively growing in number).. which involves pain, pressure, tingling.. a headache at some point everyday.. Sometime red flushing.. and burning skin.. funny thing is.. when I've taken my temp at those times it's 96.. below normal.. Thank you so much everyone! (PS.. I am not on any blood thinners.. because my primary refuses to acknowledge this new developement! It's like he thinks I'm lying! I'm literally afraid.. because I think damage can happen right now..
Posted 9/1/2014 2:23 AM (GMT 0)
has anyone heard of this? http://www.lymephotos.com/
Posted 9/1/2014 1:53 PM (GMT 0)
Never heard of it but checked it out. I'm naturally a skeptic so I don't necessarily believe that the macroscopic strings were borrelia. It would be more likely a secondary infection/parasite that was allowedto go unchecked due to a weakened immune system.

However the Vitamin C/salt method they talk about is relatively well known in the lyme community with mixed reviews. I did take high doses of vitamin C during my treatment but was not really interested in this protocol as it stresses your own cells too. But some people really do swear by it.
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