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does that sound like lyme/co-infection to you ? please help for the sake of God

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Posted 9/3/2014 1:15 AM (GMT 0)
For a year now I have been having unexplained bruising exclusively on lower legs...weird lesions ( couldn't post picture ..will try aGain )
Pulsatile tinnitus in right ear ( when u hear ur heart beat in your ear especially when I move my head certain way like bend over, so not constant )
dizziness spell..eyes pain..
Pain behind the lower head and neck and behind ears ...
tingling in Right temple and between eyes sometimes ...very very brief blurred vision ..
heaviness feeling in my left shoulder at the edge and under armpit.( so my left breast feels heavy, and it feels like the whole area there like someone is pressing on it and it feels just weird can't explain the feelings
varicose vein on my thighs..pain in legs (shin) especially right one when i walk that feels like I am pressing a nerve at the front of my lower legs.among other symptoms ...

sed rate was normal , The only positive test is ANA : 1320 homogeneous and MTHFR ( compound heterogeneous)... Could my symptoms be neurological or autoimmune ? But if neurological, could my ANA be accidental finding ? could it be heart problem ? lyme?

lyme test was negative but the original test not Ignex test cause cannot afford it.

my symptoms come and go..and rotate so each day one symptom and the next another..other days symptoms free..
I saw Rhuematologist, neuro, eye doctor ( saw small hemorrhage in back of eye once then resolved and haven't being seen in a year now), Ent ( normal hearing test)... MRI/MRA normal
Please advise me.. I am at my lowest point in life ....what could be wrong with me from your experience ? could it be more than one thing ?

I can't afford LLMD at this point, so how should I proceed ?
did u have positive ANA like mine ? pulsatile tinnitus ? bruisinG ?
Posted 9/3/2014 1:29 AM (GMT 0)
Abenewhere1 - Welcome to this forum. This is a great place for support and asking questions.
So sorry to hear how terrible you've been feeling.

While I did not have a high ANA, several other people on this forum have. The symptoms you are describing could quite possibly be lyme disease.

Is there any way you can save up for an appt. with a LLMD? It is sometimes quite a wait - several weeks before you can get an appt...and in the mean time you could work on saving the money?

There are natural herbal routes to treat Lyme disease that are not expensive, but it is best to see either a LLMD or LLND for guidance.
Posted 9/3/2014 1:38 AM (GMT 0)

Girlie said...
Abenewhere1 - Welcome to this forum. This is a great place for support and asking questions.
So sorry to hear how terrible you've been feeling.

While I did not have a high ANA, several other people on this forum have. The symptoms you are describing could quite possibly be lyme disease.

Is there any way you can save up for an appt. with a LLMD? It is sometimes quite a wait - several weeks before you can get an appt...and in the mean time you could work on saving the money?

There are natural herbal routes to treat Lyme disease that are not expensive, but it is best to see either a LLMD or LLND for guidance.

so you think this could be lyme, how sure you are, or what the percentage of my symptoms relativity to lyme ?
did you have bruising or pulsatile tinnitus ?
if i can't afford LLMD now what do u advise me to do ?
finally ..how can i post a picture...?
Posted 9/3/2014 1:42 AM (GMT 0)
you could try an llmd.

or, you could start one of the protocols, and see if they work.

But you would need to know something about lyme and about herxing, and how to detox.

Margaret
Posted 9/3/2014 8:16 AM (GMT 0)
Hi abenewhere,
Welcome to the forum! Do have a look at our "New to Lyme?" thread at the top of the forum. It has a lot of info and resources as well as symptom lists that you can use to compare to your symptoms.

I'm guessing you have some form of insurance because you have been having all of this testing. Could you go to an Infectious Disease doctor? Perhaps you can get them to diagnose you.

In any case, your best next step would be to educate yourself about Lyme so you can be your own health advocate and make informed decisions.

Hope you can find a way to get to a Lyme doctor soon.
Posted 9/3/2014 8:22 AM (GMT 0)
Was your ANA 1:320 or 1:1320?
Posted 9/15/2014 3:20 AM (GMT 0)
it was 1:320 why ?
Posted 9/15/2014 3:40 AM (GMT 0)
abenewhere1—

I have to note a few similarities in our experiences. Please do visit the "new here" thread, as someone suggested—so much good info there.

I really think you should figure out a way to get an IGeneX test done. It's worth it—especially if you can find an LLMD who participates in an insurance plan you can sign up with—they will need a positive test to cover care.

I had weird bruise-like markings on my legs (and under breasts, top of buttocks, lower back, inner thighs) for months and months. They only went away when I started AL-Complex, which is a Byron White herbal tincture for lyme treatment.

Many of your pain symptoms sound familiar—I couldn't even describe some of them they were so weird. But I do appreciate your description of the pain in your breast—like a heaviness or someone pushing on it. YES. I also had weird pains in my head and have vision issues.

Also, my first lyme test (Elisa, as promoted by CDC) was negative. My LLMD "provoked" an immune response by having me take 5 capsules of olive leaf extract every day (purchased at health food store for $30) for a month. My IGeneX results came back CDC-positive, which is like the holy grail. No way could insurance company dispute treatment.

I hate to suggest that you probably need to look into the lyme issue a little bit, do some homework, and it would be great if you could find an LLMD to at least do some testing and verify what infections you have. There are quite a few people on this board who self-treat and perhaps they could guide you through the best approach to start that if necessary. You made a great start by posting, though—please let us know how things progress.

-p
Posted 9/15/2014 4:54 AM (GMT 0)
Cause your post said 1320 which would be high but 1:320 may be interpreted as just a prior infection. I have been from 1:160 - 1:320 and my drs could of cared less. I thought they should care since out of range but they did not, the rest of my blood work was normal.
Posted 9/15/2014 7:03 PM (GMT 0)
If you can't afford an IGenex test you can ask to have a Western Blot sent to the Lyme lab at SUNY Stony Brook. That is covered by insurance.
Posted 9/16/2014 1:48 AM (GMT 0)
Hi abenewhere1,

So sorry to hear you are feeling so low.

I have Lyme Disease and did not have the bruising but sometimes have Pulsatile tinnitus, blurred vision, and shin pain, among many other symptoms. I thought there were so many different things wrong with me, but it ended up that they were all related to LD. My symptoms come and go and rotate as well.

Keep searching for answers and learning about Lyme. You have come to the right place for help. There is a wealth of knowledge on this board.
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