Burning feet after 8 months without?

That may be Bartonella symptoms emerging. Lyme, babesia or bart., when treating one at a time, the symptoms of the one being treated less or not treated start to show up. Think of it as if they are competing for power, the strongest one always manifests.
I am sure somebody will explain it better.

Oh, thank you Traveler. I just learned something new about the reverse symptom. Thank you.

;-D

I was treating lyme for 4 months and then I took a big turn for the worse. I don't know if it was herx , the coming out of another coinfection, allergy to the herbals, or my exposure to mold.

I developed hot burning skin like everywhere. Its the worst in my mouth. It was weird sometimes a body part would feel like it was intensely hot, but it didn't hurt. Then it would feel like another body part was on fire with pain. Not deep pain, like how a horrible sunburn would feel. So weird!!!!!

I tested negative for bart. So im not back to treating lyme yet, just detoxing for now. Some of this has actually diminished from the detoxing but its not gone yet.

I read about a person diagnosed with fibro recently and it was actually small fiber neuropathy. I think they got much better with IVIG. Are you in MA? This was a story about really good neurologist at Mass General who was helping this woman who got misdiagnosed get well.

Thanks Louise!

I am in Mass actually :)

I wonder who that neurologist was?

I saw a neurologist last week in Boston and he wouldn't perform a skin biopsy on me to figure out if it was SFN and said IVIG was out of the question...

I'm trying to find a lyme literate neurologist who might be able to help me.

Traveler you are always like our beacon of hope! I would love it, if this burning pain could disappear for me as well. Im hopeful it will with some treatment.

Joey,
If you go down the path to rule out small fiber neuropathy, I think the dr's name was. Dr. Annie Oaklander, at MGH. Im posting her name because she isn't associated with lyme. Im too tired to try to find the article but if you google her, maybe it will come up. It was recent. It was about a mass woman devastated by fibro but got her life back or (most of it) with IVIG for small fiber neuropathy with this doctor. I think this doctor also is a specialist in complex regional pain disorder but I may be wrong. good luck!!

Joey,
I just checked and I have the contact info for a LL Nero in Harvard, Mass. Email me if you wish to have their contact info.

And thank you for your words of encouragement!! They are greatly appreciated as I sit here with my feet in Epsom salts & peroxide!!

Louise74,
Ugh. I have this burning exactly as you described. my mouth is the most annoying but it’s my whole body!
I have been in “remission” since April of 2019. I’m thinking it may be time to try to treat again. Or up my detox. I’m so discouraged with having symptoms again. I’m breastfeeding my 9 month old, so I’m waiting until he’s weaned before attacking the bugs again. It was a nice 2 years though.

Traveler,
Can you please tell more about Avina Sativa? what form did you take it? how long/much?

Traveler said...
Actually, I have had it go away! My foot/leg pain would get so bad that I could only stand for 10 minutes without having to sit down or start bawling from the pain. BUT... I don't have Bart symptoms any longer - haven't since I finished my Bart treatment back in Dec of 2011.

Now here's the kicker - I got foot pains very similar to the Bart foot pain with the Neuro Lyme that I just got reinfected with!! It's not Bartonella though, because once I'm back to using my Lyme herbs it only took about 2 weeks of treatment for it to go away again. So it could also be from Neuro Lyme.

Just want to say I dont know u but u give me so much hope and positive vibes! You're like the light in the darkness lol. So I suspected the same, may be bart may not be bart, could be neuro lyme as I've had lyme since i was 4 yrs old and im now 29 going on smh. Guess nobody knew about lyme bk then or even considered it.

magoo2 said...
Have you treated parasite?
My feet itched-burned-tingled all the time-parasite treatment was my cure.
Just a thought

What type of parasites did u treat and what type of medication ?

Ivermectin and albendazole

MedicalNerd said...

Traveler said...
Actually, I have had it go away! My foot/leg pain would get so bad that I could only stand for 10 minutes without having to sit down or start bawling from the pain. BUT... I don't have Bart symptoms any longer - haven't since I finished my Bart treatment back in Dec of 2011.

Now here's the kicker - I got foot pains very similar to the Bart foot pain with the Neuro Lyme that I just got reinfected with!! It's not Bartonella though, because once I'm back to using my Lyme herbs it only took about 2 weeks of treatment for it to go away again. So it could also be from Neuro Lyme.

What is pain or burning? I have the worst burning like acid or sunburn but worse. Just started after clindomycin. What did u take for bart herbs? You've never taken antibiotics for any of this , just herb treatment only? Sounds amazing

Yes, it felt at times like a sunburn or acid, but also I had sharp, shooting pains as well - kind of an "all inclusive' pain experience, if you will. LOL.

If it started after the start of any treatment, that means that the symptoms are from you herxing - as that is the definition of herxing.

Yes, herb only treatment for me, as I couldn't tolerate (as I like to term it) the big guns of antibiotics. They created way too much die off for my body to be able to handle, so I had to be able to not only regulate the strength of my treatments, but I had to start off on very small doses and work up slowly, as the herxing allowed, as well as needing a whole lot of detoxing before and during treatments It was quite a project, but I dedicated myself to it, and managed to do it.

I feel that Stephan Buhner is correct - the body is intelligent and can heal itself, if given the right tools. With these infections, it's like those tools got lost, so I needed to help my body 'remember' what to do and when to do it a lot of times. That's why detoxing, digestion, and healing each area became the foundation of my overall healing.

Treating chronic, late stage Lyme is like trying to put a shotgun shell back together after it's been fired from the shotgun. There is one disease, but it causes a cascade of issues in the body - so we have to address all that has now been altered in some way, and then go after the root cause - the infections. That's not to mention those other infections that we likely have, since Lyme lowers the immune function in order to protect it's own survival. So we have those issues to tackle as well. 

I started off with Lyme treatment, and then 9 months later added in Bart treatment. I used what is commonly known as the "Chronic Tonic" on this forum. You can look for posts talking about it by using the search feature on this forum, but the original post I made on the formula can be found here:
https://www.healingwell.com/community/default.aspx?f=30&m=3244272&p=1

After 9 months of using only the Chronic Tonic, I added in Houttuynia to help treat my Bartonella and didn't have to add anything else. After 9 more months of both of those, my Lyme and my Bart infections were healed - but the damage they did was not healed. I had to go on and help my body heal the damage after that.