Lyme in the Tendons

lymepickle - I definitely have joint issues - can't decifer if its the tendons or not - but what supplements are you taking to help your muscles/joints?

I take coenzyme q, magnesium, pc biofilm, and omega fish oil. all of those things help the muscles and joints. you may just have residual issues that do not need antibiotic treatment. I have so much to report. my llmd appointment was excellent this week, I felt better than ever these past few days, and have been off antibiotics for 5 weeks now. I am just having an issue with a reaction to a detox kit I tried, so I will post the update once I get passed this. I posted a thread about it, my stomach turned into a balloon!!

No, I had joint pain with all of this, with all different joints, including my fingers and hips! My right knee and shoulder still bother me. But my Dr said it's not the lyme causing the pain anymore, its just leftover inflammation.

there is no antibiotic that is specific for the tendons (except stay away from levaquin since it can cause tendonitis), so as long as you are taking teasel root, I think the teasel root will draw the lyme out of the joints, and the antibiotics will kill it. At least that's what I think it did for me.

Chapelle... I too also have the hip and shoulder issues. Yesterday my left shoulder was sore. And my hips ache too. My knees aren't a problem anymore since I got proZolone injections in them and they are now sterilized... But they did take some time to heal. I only have it in my left shoulder though like you. My right shoulder is fine. Both hips are equally achy but more on and off.

Now to the issue is the shoulder pain and knee pain from the lyme or left over inflammation? For me in my case I believe it is still active disease as the symptoms respond to antibiotics. They are hard to kill and keep rebirthing! Lol. Like they are coming back from the dead or something. You are lucky your case is just left over inflammation. Maybe your immune system is just mopping up the dead ones... My disease just comes back to life, I kill them, they die, then I have no symptoms at all, then they come back to life, I kill them again, symptoms go away. Lol what a viscous cycle. But I believe someday they will stay dead. Or they will learn to behave themselves and stop causing me disease! Lol.

Hi Lyme Pickle, I have it in my tendons. So does my husband and one of my sons. I brought this up to my LLND on my last appointment. He told me to take Glucosamine with MSM. I will be seeing him again on Tuesday for my kids and will ask him again and let you know.

LP - how can you tell if it's in your tendons? How do you differentiate between tendon pain, and other pain - i.e. muscle...joint...?

LymePickle - I can relate. Body pain was my worst symptom. Years ago it felt like all over body pain and stiffness, when it all hurt, was hard to tell where it came from. But is was everything - muscles, the outer facia that holds our bodies together, and tendons.

If a joint is visually swollen - then it is in the joint. But some complain of joint pain with no swelling- in that case it can be tight muscles and tendons pulling on the joint, creating what is called refered pain in the joint(s).

I think you have to be very self analytical to figure to lyme body pain - which is not a natural inclination for most people. DRs are of no help in this area either.

As I progressed in non medicine options (actual muscle and tendon PT work), I could tell more of the specific areas it was originating from - mostly fibrous muscle ends - the tendons. I did have muscle adhesion's and knots in muscle as well, which shortens muscles putting strain on the tendon ends.

I've spent 10 years fixing and healing the body pain. It wasnt till a year ago that I started antibiotics that I would have quicker muscle recovery almost like non-lyme healthy people do (2 days vs 6).

This is the order of fixing lyme body pain that seem successful so far, I learned to do some of this stuff on my own, not as effective as a "body" practitioner (PT/ chiro ect) but saves thousands of $..

1) Feel muscle for tight knots - treat manually by Trigger Point Therapy to loosen muscle mid sections.

2) Treat muscle ends and TENDONS with Active Release Therapy - its trade marked and has a web page site, some is on U tube before it gets removes (cause its tradmarked). Use MSM topical cream on tendonitis areas, with MSM capsules, and Magnesium oil and mag glycinate tablets.

3) Learn Myofacial Release (5 min of pressure, yes FIVE) on muscle facia surrounding area, lay on med pressure inflatable able 4" ball (more deep than those foam rollers). I also use a 2" super ball and 4" Whamo brand super ball to lay on - works on sides of shoulder rotator cuff tendons too. I also bought a There-Cane to release tight areas.

4)One all these fibers are loosened, then chiropractic can accually be effective, (if your still tight chiro does not hold).

5)Finally, muscle rehab of the effected areas, its best with the help of a manual PT therapist or athletic trainer for people that do not have a good grasp on muscle movements. ****Note doing muscle training while body is still tight can do more harm than good.****

I learned all this the hard way. Unfortunately not of the "body work practitioner" that do the above, do all of it. They mostly know their treatment and don't know how to put the above plan together. I have discussed the order of my plan above that was the only thing that helped me, and they mostly agreed (accept for some tunnel visioned old school chiros).

I am still working on some suborn tendons while rehabbing muscles. The loser and stronger I get, the trouble areas become more centered and obvious as opposed to pain everywhere.

All this is available in pieces on the internet, I hope all this put together with help others. Many people need muscle and tendon rehab that antibiotics cant correct. Many times treating long term
Lyme only stops new pain, whats damaged needs repairing, and this is beyond most LLMD's knowledge areas..

I'm not really up to par on how this forum works, but if there was a "pain" section within, I think it would be bennificial to have that 5 step plan it, as these questions are asked hear a lot if you search for it. I know there are others that have discovered new pain recovery tricks too, but its lost in the forum.

Moderator??

hope this help people understand / treat lyme pain better

Hello All.
I know it's been a while since the thread had been started. This is my first post here so stay with me.
I've got bitten in 2015.04. Year after I started to feel hip pain(or what I thought was hip). In the end I think it was more located in tuber ischiadicum and connected tendons. Looked for help with
few orthopaedists, had XRay, MRI, ultraSound picturing and so on. Nothing gave the answer.
In 2017.08 made 2 trier LB tests and got both positive. Got 4 weeks of 200mg Doxy.
Tendon pain never stopped permanently. It faded for a months but in general it increased and few more new places shown up with the pain.
So atm I think I have 4 different places painful at times.
I all those places I can locate and I am able to annoy/deep touch it increasing the pain.
When rolling over a had ball it pain reliefs for some time.
I have no typical lyme arhisis thats why I am not getting any more abxes. Started to look on my own for answers and found this publication: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3751012/
which sheds much light on the lyme and tendons and ligaments.

What is yours story after so much time?

Thanks astroman!
In regards of that paper I linked - I am not sure how accurate and how legit it is. And what is the author reputation. Or what is our own (patients) experience.
This is the part of the reason I published it here.
With my own PT and running I am simply afraid now of spontaneous tendon raptures etc. So doing all very light or none.
What do you think?

I cant really relate to tendon pain on its own but one of the things I noticed before my diagnosis was that I would pull/tear my tendons really easily and they would then take forever to heal. It would be agony for months,

This symptom has now gone away only to be followed by terrible joint pain.

My llmd has prescribed Plaquenil as this is used to treat arthritis aswell as lyme and so far it seems to be working great, 90% of the pain has gone.

How do you know if it is Lyme or bart?

And the luxurious prize package behind door number two goes to .....(contestants waiting, drum roll)......

....Girlie!

astroman said...
The tendons and ligaments around my tuber ischiadicum (sit bones) are way better. Working on my upper IT/glute junction right now and left foot tibialis tendon.

The pain in sit bones was first thing which pushed me to do Lyme tests. I've been having achilles tendon and tibialis tendon pains as well.
@astroman Tell me one thing though. You stopped abx in 2016 and still working you collagen deficits and flexibility? Have you supplemented it well?
See I finished abx in Aug 2017 (the one course of 28days@doxy@100mg x 2 which I had) and still getting those symptoms. But for me it's only now I found out that collagen thing around BB and I've just started to supplement it. That paper I linked implies that BB cells can stay in collagen and ligaments and tendon even after abx courses. My doc started to hesitate to put me on IV abx but she never told me about collagen and tendon thing. For her its all lyme arthritis in general and she waits for better prove of it. I wonder should I insists on a month iv abx or just start working on those collagen deficits and rebuilding strength and flexibility of tendons?