Question about Lyme/MS/ALS

Because I'm curious, how would you know if you had symptoms of ms/als or Lyme disease, or does lyme lead to these things and when would you notice starting to happen? Excuse me because I am not informed on this subject I am just trying to get some answers.

Not only that but I feel like I will be that unlucky person who does get ALS or MS instead of a lyme diagnosis and that kind of scares me. I mean I don't really have much muscle weakness mainly what I go through is the dearealization and depresonalization along with twitching and anxiety and things just don't feel natural or right to me, I get very out of body symptoms after working out for only a half hour and dizzy. Sometimes I feel a bit weak but not to the point where it is horribly bad at this moment anyway.



I am just curious how would you know if you had lyme or if it was als/ms or lyme causing either of those two? Would other people notice things wrong and would you be completely weak and unable to do most things? I have no idea, as you can tell I am a scared anxiety ridden person and I think about this a lot and what lyme can lead to, if anyone could provide some information and maybe ease my fears a bit that would be nice, thanks. :-/

I am not an expert by any means, and am only going off of what I've read recently and saw in the movie "Under Our Skin":

In the movie the one doctor studied 10 brains of deceased Alzheimer sufferers--7 of these 10 had indications of Lyme (presumably through antibodies, I can't remember).

Resources also indicate that people are often misdiagnosed with what appears to be MS or ALS, and these symptoms can sometimes reverse with the right medicine. Some doctors have also begun to theorize that the autoimmune diseases we currently don't have an explanation for, such as MS, Parkinsons, etc., could begin as Lyme and then get worse if gone untreated.

This is JUST my opinion, but that last theory makes a lot of sense to me. I began to have twitching around the corners or my eyes at 27 years old. Weakness in my hands began at 28. Large leg muscles began to severely atrophy in mid-30s--much more than they are supposed to at this age. This has been accompanied by much more frequent facial twitching, weak hands and arms, and very weak legs, hard to walk. I started to suspect these were the early signs of MS but didn't want to say it out loud. Then recently, when people on this forum helped me connect all the dots, I realized it's all a part of Lyme. I just started treatment and the symptoms are starting to disappear.

I'm steadfastly believing, praying, hoping, that I am able to cure this long-standing infection for good. I reject and rebuke the very idea of this becoming worse!

I know it's hard, but try not to worry about it and know that at least you caught it and started treatment for Lyme--which has a much better prognosis than MS or ALS!

Thanks for the replies all, it can be a scary thing to think that is for sure. I just wonder like it's been six months since onset of symptoms, also have some tingling as well, the only kind of test I had regarding head or brain symptoms was at urgent care back in May and the doc thought I was fine.


Since its been six months, say if I had ms or als or something would my symptoms be seriously a lot worse by now? Or would they just stay the same? It's so hard to figure out what can be going on. If I didn't remember a clear tick bite I would not know what to think at all, I'm pretty sure what I have is Lyme, but I always question the what ifs and all that thinking about having more sinister things, blah :/

Thank you Hornet, that does ease my fears a bit :) although I do have ebv, I am actually waiting on an ebv panel to come back fromy doctor to see if I have current or past infection or never had it at all because he is curious as I had a positive mono spot back in May.


I guess things will happen and there is really nothing to do about them but try to stay positive and detox and treat. What's going to happen is what will happen and sometimes I need to learn to accept that, but when it comes to a health ailment I have a hard time accepting that no matter what I may have it scares me to think that it could be my demise. Don't mean to trigger anything for those with anxiety I just have a negative attitude ever since I became ill.


But I am sure there is hope in staying positive best we can and just do what we all need to do to help ourselves.

Also, I don't think that antibiotics would cause a herx if you had ALS or MS, would they?

With ALS, time will definitely tell...and in a matter of a year, most people do get worse.
With MS, it's trickier...because you can actually have improvement between relapses...and it can be years between relapses.
I was told my symptoms weren't really lining up with MS...but I was given the MRI anyway...and having another one, in a month.

I personally think Lou Gehrig had lyme but back in the late 1930's they didn't know much about lyme so they called it ALS or another label. He spent lots of time outside playing baseball so who knows? We don't even know if he had a famous bull's eye rash...

Also, Dr. Lida Mattman did lots of research on MS and found lyme bacteria.

lymediseaseresource.com/wordpress/new-probe-shows-lyme-as-a-cause-of-multiple-sclerosis-victims

Denise