Posted 11/10/2014 8:04 PM (GMT 0)
In Feb 2012 I began having numb arms which for me was weird. I was still running at the time and began to notice my feet were also getting numb. Then one day I got up from a 2 week flu or virus and noticed that my tongue, and chin and parts of my head and feet were getting numb so I rushed to emergency thinking I was having a stroke. I also had a very large crusty, itchy, weeping red rash on my right palm that took months to clear up. One night I noticed for the first time numbness just crawling up my legs to my torso. I would also awaken at night several times in that period with an incredible pain in the upper back of my head which caused both arms to burn and tingle. I noticed at work for a few weeks it was painful to keep my neck up. I would also get headaches that were so painful and intense for very brief periods I couldn't believe it. I also had severe insomnia and was unable to sleep without prescription sleeping pills. I also went to emergency two other times thinking I was having a heart attack but that was an early symptom that never reappeared. Additionally at night I noticed my heart beat was very intense but that too was an early symptom that passed. It seemed also that the 'volume' of my brain was being slowly turned off as I just didn't feel right with numbness at different parts of my head I suppose what some people call 'brain fog'. For four months afterwards I felt like I was having the worst hangover of my life and would have a general feeling of feeling queezy. I would always feel best in the mornings and get progressively worse after that. I immediately lost 30 pounds within 5 weeks. The main thing about my symptoms was that they always changed. I knew I would get intense neurological symptoms somewhere in my body but not always at the same time. Like most people I saw many doctors including a neurologist who took a head and neck MRI, spinal tap and visual evoked test as he was suspecting MS. Eventually he found nothing wrong. The systems eventually plateaued after about 6 months until they were at least tolerable but still very unpleasant. I recently had an IGENEX test and am being treated by a LLD doctor with the prescribed(doxycycline, clarithromycin, nystatin, metronidazole ) and am having some very severe Herx reactions. I find that after two months on antibiotics I'm not doing well. I do know it can take 5 to 7 to 9 months for some people to start feeling better. I'm having very severe tinnitus and sound sensitivity at the moment and severe neurological symptoms from head to foot which includes numbness and burning. Mainly I just don't feel well at all. My left side is more affected than the right side which includes my left ear, arm and leg. I never really got the joint pain that can by typical of Lyme other than my finger joints initially.
Here are my IGENEX results. I’m curious to know what you think?
IGG
** 23-25+
**31 ++++
**34 IND
**39 IND
** 41 ++
58 ++
IGM
** 23-25 IND
** 31 +
**39 IND
**41 +++
58 ++
** 83-93 IND